Posted 09 June 2004 - 04:23 PM
I got some sort of contamination (could it be bacon? fresh sliced at an upscale grocery?) yesterday, and never got nauseaus, just the inescapable (for me) reaction of the runs and exhaustion and being really emotional. Nothing is really wrong, I am just a little lonely (all loved ones far away for a couple of weeks) and SO TIRED.
I have been bursting into tears since last night, and when I tried to lift my spirits by going for a run, a walk was all I could manage. I just feel like sucha big, freakin BABY. I have been gluten-free for 5 months now, and on the whole, life is wonderful. But these setbacks are are much more difficult more me emotinally than physically.
Have you found any tricks for keeping your head on straight? All I have figured out so far is to lie low and hide until I don't feel crazy anymore. I could use some ideas on how not to become so damn useless for 1-3 days after getting something...
Posted 09 June 2004 - 04:32 PM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 10 June 2004 - 05:16 AM
This probably sounds wierd, but when I get down on myself about something, I find that if I do something for someone else, I fell better - maybe it's the shift from thinking about me to thinking about someone else? Not sure really, but I know it works for me.
And if you feel too lousy to get out and DO something for someone, go on-line and help someone here! Or call an old friend, or make something for someone you love while you're stuck at home anyway.
Hope you're having a better day today!
Posted 10 June 2004 - 04:54 PM
Can't hurt! Good luck!
Posted 13 June 2004 - 06:27 AM
I think that for many of us, the emotional toll of gluten ingestion is unavoidable. A woman doctor friend of mine told me that she considers gluten to behave as a "neurotoxin" for many of us. I've been gluten-free for 3 years, and if I have a bit of gluten accidently, I'll be on the verge of tears for 24 hours. The woman who sits next to me a work has celiac and she has the exact same experience.
It helps me to know that it's the gluten doing it - it's not my life or my job or my relationships. It's just the dumb gluten. I always drink lots of water on those days , and if it's a work day, I start out the day with caffeine - which seems to counter the dull headedness of gluten.
take care and know you aren't alone!
Posted 14 June 2004 - 08:39 AM
Posted 14 June 2004 - 09:10 AM
Posted 17 June 2004 - 03:39 AM
I knew about this board when I was going through all my testing ... and kind of scanned over it a few times... but have recently been changing jobs and getting ready to go back to school in the fall (yikes, it's been almost 5 years!)... so I kind of forgot about it...
I was having a bad morning... (well, last 48 hours or so) and somehow found my way back here...
And I just wanted to say, THANK YOU!!!
To each and every one of you who posts on here... I'm a member of a local support group, but haven't found as much emotional connection to any of them as I have to all of you on here...
Sometimes, it feels like I'm reading something I would have written myself... and right now would probably be a messy bundle of tears, if I wasn't sitting at work.
I'm this strong, independent woman... who's overcome a lot in life... but for some reason... this disease is really hard for me to cope with... I know it could be a lot worse... and I know it's a 'simple' treatment plan... which is what I tell everyone (including my BF who's been a dream through all of this)... when I put on my brave face and my best smile and tell everyone it's not that bad...
But for the most part... when I'm alone and don't have to pretend anymore... I'm scared. And I have the most uncontrollable moodiness... and I'm an emotional wreck.... I just feel so 'not me'.
But it's good to know, that I'm not alone.
Posted 20 June 2004 - 03:43 PM
I don't mind being celiac, feeling crummy was just part of life, so knowing how to change that was nothing but positive. BUT, I get really resentful of these setbacks, because I am trying so hard. I feel like, if I am doing everything right, shouldn;t I feel as great as I want to? All the time? forever?
Posted 20 June 2004 - 04:05 PM
I certainly feel for you, and understand a bit of what you're going through. It is so hard to understand, when we are trying to be gluten-free, and something catches us off guard! I'm so in the learning process still, so know I'll make more mistakes.
My biggest problem is family gatherings. They know and seem to understand, and try to help with food products for me. But, it seems as there is a barbecue, meal out, picnic, or other all day activity every weekend, and is posing more challenges than I am good at yet. I know it's because it's summer, and everyone wants to get together, but is so hard for me.
I end up either eating something cross contaminated, or maybe even with dairy, that I'm yet unsure of. I haven't gotten sick, but I end up so tired for a couple of days after. Maybe I'm lucky I'm not so sick, like some of you, but no one understands how tired and down feeling I am. After father's day breakfast out today, I was so tired I wanted to nap at 10:30! I dozed a bit, then took a 1 1/2 hour nap in the afternoon. I would've slept longer, but set an alarm!
I'm beginning to think I'm nearly asymptomatic, as only got very sick after some stress at work. Anyone have any ideas about this??? I finally go to a dietician on Tues. I sure hope she can help me a lot!
Anyone else have much help with a dietician?
Posted 20 June 2004 - 06:18 PM
I had to take off a few days from being here online, since I tend to be a little incoherant and make mistakes when trying to do my moderator duties. I am still dealing with the left over DH rash and the occasional sudden bathroom stops, but my head is starting to clear and the fatigue is starting to let up a little bit. The worst part about it was that I had to continue my life as if nothing had happened, since I had responsibilities and also an extra child for the week. I just tried to pare my daily activities down to the minimum and only do the fun activities I had promised the kids. They ended up running wild around the house while I layed on the bed or couch and the house ended up very messy! I am still not caught up on the laundry or housecleaning.
I hope the rest of you are feeling better.
Mariann, gluten intolerant and mother of 3 gluten intolerant children
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