Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back Pain Gone Since Gluten-free!


Cyathea

Recommended Posts

Cyathea Newbie

I can't begin to tell you how happy I was to find some people posting here about back pain going away after going gluten-free. My doctors are happy for me, but seem to think it's a coincidence that more than 4 years of constant, debilitating back pain have, for the most part, disappeared after I went gluten-free. I still can't believe it and find myself smiling all the time.

I went through a year with an orthopaedist, 3 outpatient trips to the hospital for steroid injections in my back, x-rays, MRIs, 12 weeks of physical therapy and practically LIVED with my chiropractor. Five days after giving up gluten, most of the pain disappeared. After another 2-3 weeks, I would say it's 90 percent gone.

The best part of all is this - I had NO idea this was possible! I went gluten-free as sort of a solidarity thing with my niece and sister. My niece had done research and felt this was an issue in our family since we fit a lot of the digestive problem issues (terrible cramping, frequent diarrhea, etc.). It sounded worth a try, so I went along. My stomach felt much, much better within days and the diarrhea went away, but the disappearance of the back pain was a total shock. I didn't tell my family for almost a week because it seemed too good to be true and I was afraid it might come back. I hadn't gone more than a day without back pain in a long time.

I don't know yet if it's celiac; the doctor added it to the prescription for blood work that he had just given me. Either way, I am SO happy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

That is absolutly great~~~i'm soooo happy for you!

Keep in mind though...if you've been gluten free prior to the blood work: a false positive may come back!

I thought at first this diet was going to be hard....but it has made my life better in sooo many ways!!! i'm glad it did for you too!

Cyathea Newbie
That is absolutly great~~~i'm soooo happy for you!

Keep in mind though...if you've been gluten free prior to the blood work: a false positive may come back!

I thought at first this diet was going to be hard....but it has made my life better in sooo many ways!!! i'm glad it did for you too!

Oh wow, I didn't know about the false positive thing. I obviously have to read up on this more.

I also thought it would be hard to follow this diet, but the change in my life is so incredible I would eat sawdust if they told me it would keep that awful pain away. It isn't that bad at all! I do like to cook and have discovered a wonderful yellow cake recipe.

Thank you for your kind words.

Ridgewalker Contributor

Wow! I've never heard of this happening- I'm very curious-- what did your MRIs show to be the problem with your back?

-Sarah

DingoGirl Enthusiast
Wow! I've never heard of this happening- I'm very curious-- what did your MRIs show to be the problem with your back?

-Sarah

Ditto - same question for me! I have never heard of back pain going away from removing gluten. In fact, my back pain worsens as I age -- has nothing to do with gluten removal - - there is misalignment of discs, spine compression, and severe sciatica.....

while nearly everything ELSE has improved in my life going gluten-free :rolleyes: , the back pain is a constant.....I had deep pain in my left flank from a kidney infection immediately before diagnosis, and for several months after, and THAT pain is gone.....but the lower back and spine.....ugh.

lob6796 Contributor
Ditto - same question for me! I have never heard of back pain going away from removing gluten. In fact, my back pain worsens as I age -- has nothing to do with gluten removal - - there is misalignment of discs, spine compression, and severe sciatica.....

while nearly everything ELSE has improved in my life going gluten-free :rolleyes: , the back pain is a constant.....I had deep pain in my left flank from a kidney infection immediately before diagnosis, and for several months after, and THAT pain is gone.....but the lower back and spine.....ugh.

I had been diagnosed with fibromyalgia by my doctor. This includes ALOT of severe muscle pain in my back, joints, you name it. Once he figured out I had celiac disease he told me that his diagnosis of fibro was probably wrong, and that once I went gluten free, all of my muscle pain in my back, etc might go away. I've read alot of posts on here about people saying their back, joint, and muscle pain went away after going gluten free as well.

SunnyDyRain Enthusiast

I had some back pain prior to being gluten free, I went to a chiro, turns out my neck is bending the wrong way and my lower back is turned the wrong way. I was seeing him 3 times a week for 6 mo with minor improvement (he estimated 18 mo to return the natural curve). At that time I was sore daily as he was movign stuff around all the time. Once I stopped going the orginal pain would come back when I over did things, but I'd be sore for days. Now that I've gone gluten-free, I've noticed that I am only sore for a short while, and it dosen't stay inflamed and hot for days like it used to. I used to apply ice for days to keep the swelling down, now usally just 1-2 applications of ice and it's done being mad at me.

My "OMG it's gone" Symtom of going gluten-free was my heartburn. I started to have it 3-4 times a week about 4 monthes before going gluten-free. Now I'm gluten-free I eat more spicy mexican food than before and I never get heartburn.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
That is absolutly great~~~i'm soooo happy for you!

Keep in mind though...if you've been gluten free prior to the blood work: a false positive may come back!

I thought at first this diet was going to be hard....but it has made my life better in sooo many ways!!! i'm glad it did for you too!

I believe this person meant to say a false negative. I have never heard of a false positive but false negatives abound. If you are gluten free this may very well occur but it does not mean you don't need the diet. I had my longstanding back pain go away also along with my arthritis, I still have the joint damage but I have full movement again and no pain.

I am glad you have gotten some relief, stay with the diet no matter what those blood tests say, your dietary response has proven you to need the diet.

Cyathea Newbie
I believe this person meant to say a false negative. I have never heard of a false positive but false negatives abound. If you are gluten free this may very well occur but it does not mean you don't need the diet. I had my longstanding back pain go away also along with my arthritis, I still have the joint damage but I have full movement again and no pain.

I am glad you have gotten some relief, stay with the diet no matter what those blood tests say, your dietary response has proven you to need the diet.

Okay, a false negative makes sense. I'll see what happens with the results. However, no matter what the results are, I'm staying on this diet. I have inadvertently had something with gluten in it a couple of times (found out later), and my back started hurting by that night. No food is worth that kind of pain.

Guest j_mommy

Yup meant to say "false negative" SORRY for the confusion!!!!!!!!!

Cyathea Newbie
Wow! I've never heard of this happening- I'm very curious-- what did your MRIs show to be the problem with your back?

-Sarah

The MRI showed some slight degeneration, I believe it was at L1 and L2. The ortho said it wasn't at all unusual for my age and wasn't enough to account for the pain I was in. Nothing was ruptured, or anything like that.

I'm assuming my intestines were just so inflamed all the time that it hurt my back. Don't know what else to think.

Cyathea Newbie
Ditto - same question for me! I have never heard of back pain going away from removing gluten. In fact, my back pain worsens as I age -- has nothing to do with gluten removal - - there is misalignment of discs, spine compression, and severe sciatica.....

while nearly everything ELSE has improved in my life going gluten-free :rolleyes: , the back pain is a constant.....I had deep pain in my left flank from a kidney infection immediately before diagnosis, and for several months after, and THAT pain is gone.....but the lower back and spine.....ugh.

I still have some sciatica, but it's not that severe. That's why I didn't say I'm 100% percent better with my back. But now I can live with it and do what I have to do to bring some relief. Before, I just didn't know where to start. The chiro would ask me what hurt and I didn't know what to say. Everything back there hurt! Now I can point right to that area and we can work on it together.

Cyathea Newbie
I had some back pain prior to being gluten free, I went to a chiro, turns out my neck is bending the wrong way and my lower back is turned the wrong way. I was seeing him 3 times a week for 6 mo with minor improvement (he estimated 18 mo to return the natural curve). At that time I was sore daily as he was movign stuff around all the time. Once I stopped going the orginal pain would come back when I over did things, but I'd be sore for days. Now that I've gone gluten-free, I've noticed that I am only sore for a short while, and it dosen't stay inflamed and hot for days like it used to. I used to apply ice for days to keep the swelling down, now usally just 1-2 applications of ice and it's done being mad at me.

My "OMG it's gone" Symtom of going gluten-free was my heartburn. I started to have it 3-4 times a week about 4 monthes before going gluten-free. Now I'm gluten-free I eat more spicy mexican food than before and I never get heartburn.

I've noticed this too. Although I still have some sciatica, it seems much less painful than it was and sometimes it even goes away!

By the way, how do I reply to these posts without including a quote of your entire letter?

Guest j_mommy

Hava you been checked for osteoprosis?????

It is one of the things that can happen with this disease(along with ageing itself). I am 24 and I had to be tested. They did bone scans and such...now I'm on meds to help "repair" some of the damage.

Guest j_mommy

to reply with the quotes...I use the add reply on the bottom....not the one at the bottom of the last post!

SunnyDyRain Enthusiast
I've noticed this too. Although I still have some sciatica, it seems much less painful than it was and sometimes it even goes away!

By the way, how do I reply to these posts without including a quote of your entire letter?

At the very bottom, there is just an AddReply button. That is for the whole thread. The ""Reply button is to quote something.

Cyathea Newbie
Hava you been checked for osteoprosis?????

It is one of the things that can happen with this disease(along with ageing itself). I am 24 and I had to be tested. They did bone scans and such...now I'm on meds to help "repair" some of the damage.

No, I haven't, but that's very doubtful in my case. I'm a tall, large woman with no family history of osteoporosis. I had a bone scan at 45 which came out fine. I understand it's possible to be celiac and not be thin, but less likely. I'll see what the blood work says. If it comes out negative, I'll just assume that I'm intolerant to gluten. Either way, I'm staying on this diet. I feel great!

Cyathea Newbie
to reply with the quotes...I use the add reply on the bottom....not the one at the bottom of the last post!

But how do I reply WITHOUT the quotes? Do I simply delete the quote that appears on the screen when I hit "add reply"? I don't see any other way to answer the posts.

Thanks for all your help.

WorkNsurf Rookie
But how do I reply WITHOUT the quotes? Do I simply delete the quote that appears on the screen when I hit "add reply"? I don't see any other way to answer the posts.

Thanks for all your help.

You may be in outline mode, try clicking options on the top right corner of the topic and go to standard. then goto add reply on the bottom of the page.

Cyathea Newbie

Thank you! That did it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.