Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im New And Need Help For My Son..


heidi111

Recommended Posts

heidi111 Newbie

Hi evereyone i am new on here, So i hope someone out there can help me. My son has just found out that he has celiacs disease, we know absoloutely nothing about this disease so i am trying to search through it all with what he can an cant have. He lives with his girlfriend and his new baby daughter and they are finding it hard to shop and find the right things. As it is his 18th birthday soon alothough not probably his thought of a great gift ,i thought i would find out if there is anyone that knows of a scanner of some sort that you can buy so he can take it to the shop and scan the labels to see what is gluten free, or i have heard that you can buy a handheld pc and buy a download for it to help with this problem, although i am not sure which pc or downlad is any good or wat the download actually helps you with.. so please if anyone can understand what i am going on about or knows of these items i would love some help... thankyou.. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JennyC Enthusiast

You can purchase gluten free food software, but when I bought it many of the brands that I use were not even on it. In my opinion it was a big waste of money. I think the best way to shop is to buy products from companies that will not hide gluten in other ingredients such as spices, flavorings, and natural flavorings. When you look in the ingredient list from one of those companies if there is gluten in the product they will disclose it. For example, Nestle Butterscotch chips ingredient disclosure looks like this: natural flavors (barley). There are many companies like this including Kraft, General Mills, and Nestle. I will post a link to a more complete list. Other companies have gluten free lists online such as Ore-Ida/Heinz, Newman's Own, and Frito-Lay. What I do is if the company does not list their gluten, I go to their website and look under the FAQ or ingredient section and if I find nothing there, then I call them. It gets easier once you figure out the brands to buy.

I recommend that you call all of the major companies, because this list may not be perfect.

Open Original Shared Link

Luisa2552 Apprentice

What a nice mom you are! What you could do is gather the lists and put them in a binder for him. Get him a copy of Living Gluten Free for Dummies- it's a great, easy to follow book. All the big grocery store chains usually have lists of gluten-free foods they stock.

If you are a baker you could do some experimenting with gluten-free products and bake him a gluten-free birthday cake! The possibilities are endless :)

Start with this list of unsafe ingredients. I'm sure others will post other lists for you. Good luck

https://www.celiac.com/st_prod.html?p_prodi...-02107601791.3f

Crystalkd Contributor

I agree that there is no need to buy programs to help. I would also suggest Living gluten free for dummies. I have two copies. One I keep at home and the other pretty much stays with me. I would also pick up a gluten free cook book for him as well. It will cut down on cost some if he stays away from the processed stuff and learns to cook for himself. Make larger portions when you cook and the refrigerate or freeze them in single servings that that he doesn't have to cook every night. Things are hard at first but it gets easier with time.

  • 2 weeks later...
JNBunnie1 Community Regular
Hi evereyone i am new on here, So i hope someone out there can help me. My son has just found out that he has celiacs disease, we know absoloutely nothing about this disease so i am trying to search through it all with what he can an cant have. He lives with his girlfriend and his new baby daughter and they are finding it hard to shop and find the right things. As it is his 18th birthday soon alothough not probably his thought of a great gift ,i thought i would find out if there is anyone that knows of a scanner of some sort that you can buy so he can take it to the shop and scan the labels to see what is gluten free, or i have heard that you can buy a handheld pc and buy a download for it to help with this problem, although i am not sure which pc or downlad is any good or wat the download actually helps you with.. so please if anyone can understand what i am going on about or knows of these items i would love some help... thankyou.. :)

Also, if you send a private message to a member called NoGluGirl, she has a list of brands and products that's pretty current.

KHumphrey Newbie

My husband has celiac disease and I find myself reading a ton of labels. It can be tiring but he likes to try new things. It is nice that a lot of companies are noting on the bottom of the ingredientes "contains- gluten or wheat". This way I don't have to read through the whole label.

I do a lot of baking for my husband as whenever I make cookies or cakes, he wants some too. I've found that working with corn starch and potato starch as a substitute for flour works pretty well. I usually use 2/3 corn starch and 1/3 potato starch. But usually have to add xanthium gum (not sure on spelling) it helps hold the products together better. You can get it at speciality or organic stores.

There are also some great cookbooks. I'll have to write down the one from home that I use all the time. Sometimes I even prefer his baked goods to mine (his cakes are very dense).

  • 8 months later...
tiredeyes Newbie
Hi evereyone i am new on here, So i hope someone out there can help me. My son has just found out that he has celiacs disease, we know absoloutely nothing about this disease so i am trying to search through it all with what he can an cant have. He lives with his girlfriend and his new baby daughter and they are finding it hard to shop and find the right things. As it is his 18th birthday soon alothough not probably his thought of a great gift ,i thought i would find out if there is anyone that knows of a scanner of some sort that you can buy so he can take it to the shop and scan the labels to see what is gluten free, or i have heard that you can buy a handheld pc and buy a download for it to help with this problem, although i am not sure which pc or downlad is any good or wat the download actually helps you with.. so please if anyone can understand what i am going on about or knows of these items i would love some help... thankyou.. :)

If he joins the celiac society he can get a book that lists all types of ingredients, if they contain gluten or not, it makes shopping so much easier yes you have to look at all the ingredients on packets. But being a mum of a daughter with celiacs you get to know what you are looking for and what not to have or give there are alternatives to all sorts of foods these days and a lot of them you wouldn't know the difference. hope this is some help goodluck your a great mum for caring to find out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
Amyleigh0007 Enthusiast

Get him a crockpot! Crockpot cooking is so easy! Get a large one and they have leftovers for lunch the next day. Just throw in some chicken breasts and BBQ sauce (Sweet Baby Rays is gluten free and yummy) and cook on low for 7 hours. There is nothing easier than that!

Walmat's store brand, Great Value, states Gluten-Free on all products that are free of gluten. That makes shopping much easier and faster.

I also found the book Living Gluten Free for Dummies by Danna Korn very helpful in those early weeks after my son's dx. It's simple to understand and fun to read.

rumbles Newbie

A new cutting board and new cooking utensils, pots, pans might be a great gift. Old cutting boards, collanders, wood spoons that were used to make products containing gluten need to go, - it's almost impossible to get the gluten out of them. A new toaster could also be a great gift, - since he'll need one that is never used for gluten. If he barbeques, perhaps a new barbeque (or grill insert) and some natural wood barbeque coals (the regular BBQ coals are made with gluten).

cruelshoes Enthusiast

Here are some links you may find helpful.

Open Original Shared Link - a great starter guide

Open Original Shared Link

Open Original Shared Link

WhimsiKay Apprentice

Because it's something I want very much for myself, and he IS turning 18 ( ;) ), I would recommend getting him an iPod or equivalent for your cell company.

Aside from the sheer awesome of it, it'll be extremely helpful: he can keep DO NOT TOUCH lists or grocery lists on it (tons of list keeping!) without having to carry around physical binders of products, and the best part, he can browse this forum and do a search right on the spot if he's at the store or a restaurant and has to look up a brand name or product.

Plus, you get super, awesome, mega-special bonus points for being coolest mom ever. ;) I've been reassured this by my nephew. :rolleyes:

dksart Apprentice
Because it's something I want very much for myself, and he IS turning 18 ( ;) ), I would recommend getting him an iPod or equivalent for your cell company.

iPhone

  • 3 weeks later...
ericajones80 Newbie

i second the iPhone

TrillumHunter Enthusiast

I third the iPhone. He can search online in the store or call the company. Plus, it has a notepad where he can keep lists of stuff he likes. Not to mention it has an iPod as well.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.