Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Eosinophilic Esophagitis
0

6 posts in this topic

My 8 year old with celiac disease has been having a tough time with a nauseous feeling in this throat after eating, and a feeling that food is getting stuck. This started after he was taken off of the prevacid he took for years for reflux and also his zyrtec to better track allergic symptoms during his elimination diet. The problem began when we added soy, then just got worse and worse despite discontinuing soy. His doctor says that he may have EE, and that if his symptoms don't improve next week after resuming his meds and adding pepcid complete, to come in.

My question is: How important is it to know whether or not it is EE? I think he is improving on his medications, but I am still worried that he might have it. It is only diagnosed by a biopsy, so I am wondering how important the diagnosis is.

- Jane

0

Share this post


Link to post
Share on other sites


Ads by Google:

This doesn't really answer your question, as I don't know anything about EE, but I have lots of experience with reflux. Before I was diagnosed with GERD, I had the feeling that something was constantly stuck in my throat. This was from the irritation that the reflux had caused. I never really felt nauseous, but it did make me gag sometimes. Since going gluten-free, I haven't needed the medicine---until recently. And I think that is simply because I have recently eaten something that has caused a lot of acid to build up. I got heartburn, a sore throat, and that same "lump in the throat" feeling. I eliminated some things (citrus) and the heartburn is gone, the sore throat is getting better, but I know it will take more healing time for that lump feeling to go away. Perhaps going back on his meds will be all he needs.

Hopefully someone else can answer your question. :D

Lisa

0

Share this post


Link to post
Share on other sites

Nancy, I found some great information through the link you posted, and am posting Dr. Lewey's response to this question below in case anyone else is ever searching for the same answer.

Lisa, thank you, too, it is good to hear that regular GERD can cause that same stuck-food in the throat. Hope you continue to feel better.

From article by Dr. Lewey:

"Why is it important to diagnose eosinophilic esophagitis and distinguish it from acid reflux esophagitis?

Acid reflux esophagitis usually responds to acid blocker medications like histamine 2 blockers ranitidine (Zantac), cimetidine (Tagamet), famotidine (Pepcid) and proton pump inhibitors like omeprazole (Prilosec) or esomeprazole (Nexium) whereas eosinophilic esophagitis often does not get better with these medications. Acid reflux injury to the esophagus can result in narrowing or constriction of the lower esophagus causing a food sticking sensation. This can be treated by a stretching of the constriction known as esophageal dilation that is usually safe and highly effective. Eosinophilic esophagitis also may result in constrictions of the esophagus but the stricture or rings are usually multiple, located higher in the esophagus and carry a high risk of tearing or puncturing the esophagus if dilation is attempted before treatment with steroids. There does not seem to be an association of cancer of the esophagus with eosinophilic esophagitis like there is with acid reflux. However, eosinophilic esophagitis can be chronic and difficult to treat."

0

Share this post


Link to post
Share on other sites

www.apfed.org

I'd say its extremely important to have a knowledgable doctor about it and an accurate diagnosis.

0

Share this post


Link to post
Share on other sites




I'm a member of apfed.org, I have EE and EGID... So I like to say ED which means eosinophilic disorders (but seems to mean another disease that you take Viagra for!)

Anyhow, I also have Celiac and I got better when I went gluten-free but not entirely. I feel so lucky that I had a GI doctor that kept looking and I was diagnosed via a biopsy. Once I had the diagnosis I was sent to an allergist, allergy testing was done, elimination diet and I've pretty much got it under control. I take gastrocrom for it, which is a mast cell inhibitor and that has really helped me a lot.

I'd say that getting a proper diagnosis for EE is really important, otherwise you might be limiting foods or doing the wrong thing for a condition your child may or may not have.

Good luck,

Susan

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,908
    • Total Posts
      919,593
  • Topics

  • Posts

    • Are M&Ms Gluten Free?
      Hi. Thanks for the reply. I read "wheat" on the packaging of the regular / plain M&Ms package. Not on the mini's package. I've never seen a package of mini-M&Ms. I've only seen them as ice cream toppings. I'll buy a pack and photograph what I read. Maybe this would be helpful? Thanks again, Olivia 
    • how long does it take to show signs of being glutened?
      My two year old son has been diagnosed with celiac for almost three months. So far, I think we have done well keeping him completely gluten free. Our biggest worry is cross contamination because he is so young and constantly putting his hands in his mouth. My question is, how long does it take to show signs that he was glutened? He complained of a stomachache yesterday before bed (I wasn't sure at the time if it was just a bedtime stalling technique) and also had two very messy diapers today. I've been racking my brain trying to figure out if he could have gotten glutened somehow, or maybe it's just a normal stomach issue for any kid. It would help if I knew the average time it took for symptoms to show up after someone has been glutened. Thanks!
    • Did Jennifer Esposito Leave Town Amid $43 Million Gluten-Free Bakery Lawsuit?
      Wasn't this some gossip rag nonsense from a few weeks back?  I think it's been proven false.  But, even so, why is celebrity gossip from unreliable sources here?  And I can't leave a comment on the actual article, because he approves and often edits the comment.
    • Recovery?
      Hi PLB, If he hasn't been gluten-free very long, he might still be able to get blood testing done for the gliaden (gluten) antibodies.  More than a couple weeks may be too long tho. As far as recovery, it varies from person to person.  The condition associated with celiac that you are thinking of is probably gluten ataxia.  Gluten ataxia is an antibody attack on the brain cells that can cause problems walking and controlling muscles.  Generally it seems people consider nervous system healing / recovery to be a fairly slow process.  Although it sounds like your husband is experiencing some recovery already, which is great! I've read about coconut having benefits for people with alzhiemers disease, but don't know if it would help him.  I doubt it would hurt though.  The B-vitamins including B-12 are supposed to be very important for nervous system health.  Vitamin d is also important but make sure you take a supplement that is tested and reliable.  Check out https://labdoor.com/  for their review/test results.  Dr. Hadjivassiliou has done some research on gluten ataxia and you might find reading his information helpful. Nuerological symptoms without gastro symptoms
      http://www.ncbi.nlm.nih.gov/pubmed/20170845 Dietary treatment of gluten ataxia
      http://jnnp.bmj.com/content/74/9/1221.full Ubo's, Epilepsy And Celiac Testing for celiac disease usually starts with a blood antibody test and then a endoscopy to check for gut damage.  If a person has been off gluten for a while though, the tests are not much use.  The antibodies in the bloodstream start to drop off and may not be detectable anymore.  They usually say to eat gluten for around 12 weeks in that case before trying testing again.  I can understand why he wouldn't want to do that though considering his symptoms.  I am not sure it would be a good idea. Welcome to the forum and congrats on finding  away to improve his condition! If you turn on the notify me of replies slide button near the bottom left of the reply screen you can get an email when you receive responses to your thread. There is some helpful info in this thread about celiac disease.             
    • Genetic Results
      I have been looking for an explanation to what exactly I have, as my doctor just said that I have the genes that cause Celiac. They never went any further than that.... The wikipedia link makes some sense, but at the same time it does not. It almost seems like I have 1 full DQ2, and half of a DQ2?   Test: DQ Alpha 1 - 02:01,03 Test : DQ Beta 1 - 02:02,03:02 DQ Serologic Equivalent: 2,8 Method: Molecular typing of HLA antigens performed using reverse SSOP and/or SSP methods, reported as serological equivalents and low to medium resolution molecular values
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,954
    • Most Online
      1,763

    Newest Member
    Olivia
    Joined