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Dealing With Fatigue And Lack Of Stamina

jymles

By jymles
in Coping with Celiac Disease

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kabowman Explorer
kabowman
Posted

I take multi vitamins (don't care for the liquid), plus 500 C, 1000 calcium, and the B vitamin-complex/complete.

Blood sugar is a problem but I keep that pretty controlled because of a yeast intolerance too which elimates almost everything sweet and I eat protein with most carbs for balance. Discussed with dietition.

I have been gluten-free since July 2004, soy, peanut, and corn free since August 2004, almond and garbonzo bean free since September 2004, yeast free since October 2004, and lactose/casein and MSG free for more than 5 years

My thyroid has been checked within the last 6 months. My iron, last we checked about 6 months ago was OK too...and the doc said I don't have all the points for (sp) fibremyalga.

I have NOT been formerly dx with celiac disease. I was gluten-free for several months before my doc checked and by then (not before) I knew there was a danger of no visible signs for a positive ID and I told the docs that I REFUSED to go back in order for a positive ID and no definitive signs of damage were found.

-Kate

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mela14 Enthusiast
mela14
Posted

Hi Kate,

Boy you sound a lot like me with all the intolerances. How do you do it? I am still having a hard time and often find myself eating something I think is safe and then reacting to it. Vitamins are a little problematic for me as they irritate the heck out of my gut. I just started cutting my vitamins in quarters. Let's see how that works for me. All my blood tests were good....not showing any vit deficiencies.

I am going to columbia presbyterian tomorrow for a consult ....just in case someone is missing something. I know I will NOT go back on gluten for an endoscopy so let's see what they have to say about that. I thought I was doing a good job watching the gluten but test results yesterday showed a number of 35.....still high but at least nowhere near 66 from 4 months ago.

My dr also ran other tests and of course soooooo many more intolerances...ones that I have been reacting to. What do you eat? I am having a hard time with variety and often find myself craving something sweet. I have given into raisins, and some fruits and apple sauce but now...the Candida is in flare! back on a round of Nystatin to help me along. With my immune deficiencies it is hard to keep things in check.

OH WELL................more chicken tonght for dinner!

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      Hello, and welcome to the forum. Getting use to gluten-free eating is a struggle, but it is worth it. Your daughter should begin to feel much better and the fatigue will fade but it can take some time. I am sure you will get lots of suggestions from forum members - we have a few from the UK. I am a bit pushed for time just now but will come back later. Russ
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      I’m sorry you’re going through all of this. It sounds very stressful, especially when you feel that your symptoms are not being taken seriously. Until you are seen next week, it may help to keep the focus very practical: take clear photos of the skin sores, write down a timeline of symptoms, list all medicines, eye drops, supplements, implants/leak history, and any test results, and bring that to the dermatologist. If there is drainage, spreading redness, fever, worsening pain, eye involvement, or signs of infection, that needs prompt medical care. I would be cautious about assuming parasites or staph without testing, and also cautious with new supplements or putting vitamin C directly on sores, since irritated skin can get worse. A dermatologist can culture lesions, biopsy if needed, and refer to infectious disease if the findings point that way. On the celiac side, I understand your concern for your son, but being HLA-DQ2 positive does not by itself mean he has celiac disease; it means he has a genetic risk. If he is eating gluten now, this is actually the best time for proper celiac blood testing before he tries a gluten-free diet. His symptoms, weight, congestion, and family history are worth discussing with a gastroenterologist, but he should not be told he has celiac based only on HLA status. For your own care, try to keep pushing for objective testing and clear documentation in your records, because that is often what gets doctors to take the next step.
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