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Dealing With Fatigue And Lack Of Stamina

jymles

By jymles
in Coping with Celiac Disease

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kabowman Explorer
kabowman
Posted

I take multi vitamins (don't care for the liquid), plus 500 C, 1000 calcium, and the B vitamin-complex/complete.

Blood sugar is a problem but I keep that pretty controlled because of a yeast intolerance too which elimates almost everything sweet and I eat protein with most carbs for balance. Discussed with dietition.

I have been gluten-free since July 2004, soy, peanut, and corn free since August 2004, almond and garbonzo bean free since September 2004, yeast free since October 2004, and lactose/casein and MSG free for more than 5 years

My thyroid has been checked within the last 6 months. My iron, last we checked about 6 months ago was OK too...and the doc said I don't have all the points for (sp) fibremyalga.

I have NOT been formerly dx with celiac disease. I was gluten-free for several months before my doc checked and by then (not before) I knew there was a danger of no visible signs for a positive ID and I told the docs that I REFUSED to go back in order for a positive ID and no definitive signs of damage were found.

-Kate

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mela14 Enthusiast
mela14
Posted

Hi Kate,

Boy you sound a lot like me with all the intolerances. How do you do it? I am still having a hard time and often find myself eating something I think is safe and then reacting to it. Vitamins are a little problematic for me as they irritate the heck out of my gut. I just started cutting my vitamins in quarters. Let's see how that works for me. All my blood tests were good....not showing any vit deficiencies.

I am going to columbia presbyterian tomorrow for a consult ....just in case someone is missing something. I know I will NOT go back on gluten for an endoscopy so let's see what they have to say about that. I thought I was doing a good job watching the gluten but test results yesterday showed a number of 35.....still high but at least nowhere near 66 from 4 months ago.

My dr also ran other tests and of course soooooo many more intolerances...ones that I have been reacting to. What do you eat? I am having a hard time with variety and often find myself craving something sweet. I have given into raisins, and some fruits and apple sauce but now...the Candida is in flare! back on a round of Nystatin to help me along. With my immune deficiencies it is hard to keep things in check.

OH WELL................more chicken tonght for dinner!

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      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
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      By xxnonamexx · Posted

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      Yeast extract

      By JoJo0611 · Posted

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      Labs ? Awaiting in person follow up with my GI

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    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

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