Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Label Says Wheat But No Reaction?


Stylo

Recommended Posts

Stylo Rookie

I've been living gluten free since April, and I feel great. I have lost 30 pounds, I feel good.

I have had some issues where I've reacted and had diarrhea, this was from usually cross contamination or having something that I would assume was gluten free but wasn't. I believe mine is more of an intolerance then a alergy because my reactions are nothing compared to my friends.

My friend is a Celiac, who will vomit and get diarrhea at the same time. He also reacts to whiskey when I don't.

We have both eaten hot dogs that say they have wheat on them on the label, but neither of us react. We didn't know about the wheat at the time either.

We can also get away with eating chicken strips without reactions (for the most part). A friend of mine says it has something to do with the deep fry process, but I'm not sure I believe that as I haven't heard that elsewhere.

I'm curious if anyone has any information on this? Why do some foods have no reaction with us?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Sounds like you girls are experimenting. Everyone reacts differently. What you might not react, your friends might react terribly too. Nothing is exact, when you are dealing with Celiac.

The variations can come from time healed, time exposed, extend of damage, how strict you are and many times there are secondary intolerances which may come into play.

I am a firm believer that Celiac can go into remission and then appear when you let you guard down. So please choose carefully. ;)

AND, "deep-frying process" is a no-brainer - don't even go there, with your friend. :)

(frying cannot kill the gluten)

GlutenFreeManna Rising Star

You may not have an immediate reaction to something with a very small amount of gluten, but that doesn't mean that it isn't doing damage. You could also have a delayed reaction. I very rarely react immediately to small amounts or cc. I always feel sick the next day or sometimes even two days later. Large amounts or certain foods I will know right away, though.

ravenwoodglass Mentor

I am a firm believer that Celiac can go into remission and then appear when you let you guard down. So please choose carefully. ;)

This is found in some young people and doctors call it the 'Honeymoon Effect' and it is why they used to think kids would outgrow celiac. However, and the however is a biggie, they now know that celiac can not be 'outgrown'. The symptoms may lessen but damage is still being done. GI symptoms may seem to resolve but the autoimmune attack will continue sometimes working on different organs like the brain and liver. IMHO playing with not being gluten free after a firm diagnosis is playing with fire. Eventually you will get burned and when you do it may be in a way you can't go back from, like lymphoma.

Stylo Rookie

Thanks for all the information guys!

Yeah, I think my friend is full of c**p when she said the thing about the deep fryer making it okay. It's her boyfriend who is my friend as well who has celiac. She doesn't, but I think she trys to stay knowledgeable for his sake because he doesn't always think before he eats. Him and I both had negative blood test results but positive reaction to diet, as well as our mom's both have cut out gluten due to constant stomach issues.

My doctor never had much information so I go based off of what Mike has learnt and I learn myself by doing my own research.

Knowing this, I'll be careful going forward. Just because I don't react to those hot dogs they may still do damage which is good to know.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    Donna Shields
    Newest Member
    Donna Shields
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.