What Does Gluten Free Mean?
Posted 20 August 2010 - 12:21 PM
Last night I decided to try the "Gluten free Moo Goo Gai Pan" from PF Changs...2 hours later I was in horrible pain which lasted all night. That was the only thing I had to eat yesterday. Is this ever frustrating.
Posted 20 August 2010 - 02:00 PM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 20 August 2010 - 02:12 PM
Like Raven said you may have been CC'd or maybe you are still healing and something else bothered you. Even if there is a gluten free menu, you still need to be careful and vigilant and express to your server and the manager about your special dietary needs. Some restaurants are better than others. We go to our local PF Chang's occasionally and they so far have been very helpful and accommodating. Not everyone has that experience I've heard.
Posted 20 August 2010 - 06:31 PM
As RWG said, gluten-free means wheat-free, but the reverse is not true. Wheat is not the only source of gluten, as it is also contained in rye and barley. Oats are subject to debate, but most commercial oats in North America are contaminated with wheat and thus unsafe for celiacs.
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)
Celiac.com - Celiac Disease Board Moderator
Posted 20 August 2010 - 06:48 PM
Posted 20 August 2010 - 11:00 PM
At restaurants with a gluten free menu I tell the waitress or manager that I'm very sensitive. I request that they speak personally to the chef and let him know I'm sensitive to cross contamination and can he please be extra careful with my order.
Had GI symptoms, allergy symptoms and unexplained illness my whole life.
Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!
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