Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Family Thinks I Am Neurotic...


norahsmommy

Recommended Posts

norahsmommy Enthusiast

They think I am purposely looking for things 'wrong' with my kids. I had a miscarriage 2 yrs ago at 12 wks gestation, and 2 wks later I was pregnant with our youngest daughter. It was a stressful time and I worried alot. When she was born I was very relieved. She was a perfect and easy baby. Very different from my fist 2 who never slept and cried all the time and ate constantly. As soon as I started introducing solids at 6 months things changed. Her perfect yellow seedy breast milk poo changed overnight to huge firm logs of poo that she couldn't even get out. I had to pull them out and she would scream in pain and crawl up my shoulder trying to get away from it. I had been giving her veggies, fruits (one at a time of course) and checking for reactions like you are supposed to. She loved to bite and chew so I would give her those gerber puffs that melt as well. It never occurred to me that it could be the puffs causing problems. I also fed her baby oatmeal. She was having so much trouble pooping I started giving her straight apple juice and prunes every day. It did nothing to help. I cut out bananas completely and it got better for a bit so I thought that was it. Then it was bad again so I took her off all solids and added them back one at a time slowly to check reactions. This time I noticed she reacted to puffs, cherrios, crackers, bread etc. I eliminated all those things and she got better. her poops were great and she had no pain. Then I gave her ONE cracker and she spent the rest of the day crying and was in alot of pain trying to poop, straining for the next few days and then finally pooping a horribly large hard thing that made her bleed. She also get similar problems when she eats cheese or has anything with milk in it. I took her off all those things and talked to her doc. He thinks she is too young for testing but told us to keep her off those things. My husband told me today that he thinks I go to far with her, that I am just so paranoid about 'keeping my kids safe' that I am actually looking for things wrong with them when there is nothing wrong. He asked me today "what if I told you I had been feeding her bread without you knowing?" I told him I would kick him if he ever did such a thing, and that I know he didn't do it because her poop would tell me. I told him " I do all the research, the studying, the doc visits, YOU don't. Talk to me about being paranoid and its all in my head when you HAVE done all these things." The more I research the more I understand the more I question my own possible sensitivity to gluten and my 2 older kids as well. I don't think I am being paranoid, I think I am being thorough. I really hate when I tell my husband that I have had bm issues for about 3 yrs and since going gluten free fell 100 % different he tells me its all in my head. When he told me drinking milk made his stomach hurt I didn't bat an eye and went out and got goat milk and lactaid for him to try to see if it helped. Then after he had been drinking no milk at all or lactaid he was suddenly able to eat beans and tuna. Foods he had previously not been able to eat because one caused him stomach pain and the other swelled his esophagus shut. Did I tell him it was all in his head and those things were unrelated? NO, I believed he was right. Sorry, long vent. I am just upset.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

It is upsetting!!! It is bad enough having our doctors not believe us and thinking we are being hypochondriacal, without husbands added to the mix. I think you are being an excellent mother (and wife :o ) although you would have probably liked to say something. Perhaps in time he will come to understand that your wee girl has some serious problems that you are trying to solve. Do you share any of your research with him, or is he just not interested?? He should be forced to read some of this stuff to be made to realize you are not just making this up, and that there is a direct cause and effect relationship to what is happening. Make him come along to a doctor's visit if that is the only way he will get to see the light. I am so sorry you are having to go through all this stress. :)

dilettantesteph Collaborator

It took a long while for my husband to get with the program. It was hard in the meantime and he would say things like that too. It made me angry, and made me doubt myself. He was probably just in denial. When I learned about the denial stage of accepting an illness it helped me to understand. Keep up your hard work being a good mother and he will eventually come around.

quakenbake Rookie

You are most certainly not neurotic and sound like a great, and understandably worried, mother. I had horrible colic as a baby and needed special predigested formula. I have since suffered with all kinds of health and GI problems and am now just discovering that I am intolerant to gluten. You sound like you are doing everything right- trying to figure out what is causing your daughter's problems and making sure she isn't eating breads and such. It is hard to accept the diagnosis or potential diagnosis of any disease, especially when it is your child. It seems like it's easier for you to understand because you seem to have gluten sensitivities as well, so you can empathize with as well as actually see what's happening with your daughter. Your husband will come around eventually, but I'm sure it is very frustrating in the mean time. I hope things turn around sooner rather than later; patience, although needed in vast amounts from any perspective, can be hard to come by. Just keep doing what you're doing, and I'm sure it will all be fine.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      325

      Terrible Neurological Symptoms

    2. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    3. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      325

      Terrible Neurological Symptoms

    4. - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Schar's products contain wheat!

    5. - Scott Adams replied to Jmartes71's topic in Doctors
      5

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,614
    • Most Online (within 30 mins)
      7,748

    FilbyFam
    Newest Member
    FilbyFam
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.   For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
    • Scott Adams
      By the way, a few years back Nestle launched gluten-free DiGiorno pizza which also used Codex quality wheat starch, but due to backlash from the celiac community quickly reformulated and it is now wheat-free. Personally I think it's not a good direction to go, considering the many alternatives available now.
    • Scott Adams
      I just want to mention that a colonoscopy would not be the test for celiac disease damage, was it an endoscopy? It is not unusual to do either or both tests as a long-term follow up, especially if you're having issues. I fully understand you not wanting to go through a gluten challenge, and would be curious why they would request that part of your follow up--perhaps they questioned your original diagnosis?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.