Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Family Thinks I Am Neurotic...


norahsmommy

Recommended Posts

norahsmommy Enthusiast

They think I am purposely looking for things 'wrong' with my kids. I had a miscarriage 2 yrs ago at 12 wks gestation, and 2 wks later I was pregnant with our youngest daughter. It was a stressful time and I worried alot. When she was born I was very relieved. She was a perfect and easy baby. Very different from my fist 2 who never slept and cried all the time and ate constantly. As soon as I started introducing solids at 6 months things changed. Her perfect yellow seedy breast milk poo changed overnight to huge firm logs of poo that she couldn't even get out. I had to pull them out and she would scream in pain and crawl up my shoulder trying to get away from it. I had been giving her veggies, fruits (one at a time of course) and checking for reactions like you are supposed to. She loved to bite and chew so I would give her those gerber puffs that melt as well. It never occurred to me that it could be the puffs causing problems. I also fed her baby oatmeal. She was having so much trouble pooping I started giving her straight apple juice and prunes every day. It did nothing to help. I cut out bananas completely and it got better for a bit so I thought that was it. Then it was bad again so I took her off all solids and added them back one at a time slowly to check reactions. This time I noticed she reacted to puffs, cherrios, crackers, bread etc. I eliminated all those things and she got better. her poops were great and she had no pain. Then I gave her ONE cracker and she spent the rest of the day crying and was in alot of pain trying to poop, straining for the next few days and then finally pooping a horribly large hard thing that made her bleed. She also get similar problems when she eats cheese or has anything with milk in it. I took her off all those things and talked to her doc. He thinks she is too young for testing but told us to keep her off those things. My husband told me today that he thinks I go to far with her, that I am just so paranoid about 'keeping my kids safe' that I am actually looking for things wrong with them when there is nothing wrong. He asked me today "what if I told you I had been feeding her bread without you knowing?" I told him I would kick him if he ever did such a thing, and that I know he didn't do it because her poop would tell me. I told him " I do all the research, the studying, the doc visits, YOU don't. Talk to me about being paranoid and its all in my head when you HAVE done all these things." The more I research the more I understand the more I question my own possible sensitivity to gluten and my 2 older kids as well. I don't think I am being paranoid, I think I am being thorough. I really hate when I tell my husband that I have had bm issues for about 3 yrs and since going gluten free fell 100 % different he tells me its all in my head. When he told me drinking milk made his stomach hurt I didn't bat an eye and went out and got goat milk and lactaid for him to try to see if it helped. Then after he had been drinking no milk at all or lactaid he was suddenly able to eat beans and tuna. Foods he had previously not been able to eat because one caused him stomach pain and the other swelled his esophagus shut. Did I tell him it was all in his head and those things were unrelated? NO, I believed he was right. Sorry, long vent. I am just upset.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

It is upsetting!!! It is bad enough having our doctors not believe us and thinking we are being hypochondriacal, without husbands added to the mix. I think you are being an excellent mother (and wife :o ) although you would have probably liked to say something. Perhaps in time he will come to understand that your wee girl has some serious problems that you are trying to solve. Do you share any of your research with him, or is he just not interested?? He should be forced to read some of this stuff to be made to realize you are not just making this up, and that there is a direct cause and effect relationship to what is happening. Make him come along to a doctor's visit if that is the only way he will get to see the light. I am so sorry you are having to go through all this stress. :)

dilettantesteph Collaborator

It took a long while for my husband to get with the program. It was hard in the meantime and he would say things like that too. It made me angry, and made me doubt myself. He was probably just in denial. When I learned about the denial stage of accepting an illness it helped me to understand. Keep up your hard work being a good mother and he will eventually come around.

quakenbake Rookie

You are most certainly not neurotic and sound like a great, and understandably worried, mother. I had horrible colic as a baby and needed special predigested formula. I have since suffered with all kinds of health and GI problems and am now just discovering that I am intolerant to gluten. You sound like you are doing everything right- trying to figure out what is causing your daughter's problems and making sure she isn't eating breads and such. It is hard to accept the diagnosis or potential diagnosis of any disease, especially when it is your child. It seems like it's easier for you to understand because you seem to have gluten sensitivities as well, so you can empathize with as well as actually see what's happening with your daughter. Your husband will come around eventually, but I'm sure it is very frustrating in the mean time. I hope things turn around sooner rather than later; patience, although needed in vast amounts from any perspective, can be hard to come by. Just keep doing what you're doing, and I'm sure it will all be fine.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748

    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.  
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.