Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Family Thinks I Am Neurotic...


norahsmommy

Recommended Posts

norahsmommy Enthusiast

They think I am purposely looking for things 'wrong' with my kids. I had a miscarriage 2 yrs ago at 12 wks gestation, and 2 wks later I was pregnant with our youngest daughter. It was a stressful time and I worried alot. When she was born I was very relieved. She was a perfect and easy baby. Very different from my fist 2 who never slept and cried all the time and ate constantly. As soon as I started introducing solids at 6 months things changed. Her perfect yellow seedy breast milk poo changed overnight to huge firm logs of poo that she couldn't even get out. I had to pull them out and she would scream in pain and crawl up my shoulder trying to get away from it. I had been giving her veggies, fruits (one at a time of course) and checking for reactions like you are supposed to. She loved to bite and chew so I would give her those gerber puffs that melt as well. It never occurred to me that it could be the puffs causing problems. I also fed her baby oatmeal. She was having so much trouble pooping I started giving her straight apple juice and prunes every day. It did nothing to help. I cut out bananas completely and it got better for a bit so I thought that was it. Then it was bad again so I took her off all solids and added them back one at a time slowly to check reactions. This time I noticed she reacted to puffs, cherrios, crackers, bread etc. I eliminated all those things and she got better. her poops were great and she had no pain. Then I gave her ONE cracker and she spent the rest of the day crying and was in alot of pain trying to poop, straining for the next few days and then finally pooping a horribly large hard thing that made her bleed. She also get similar problems when she eats cheese or has anything with milk in it. I took her off all those things and talked to her doc. He thinks she is too young for testing but told us to keep her off those things. My husband told me today that he thinks I go to far with her, that I am just so paranoid about 'keeping my kids safe' that I am actually looking for things wrong with them when there is nothing wrong. He asked me today "what if I told you I had been feeding her bread without you knowing?" I told him I would kick him if he ever did such a thing, and that I know he didn't do it because her poop would tell me. I told him " I do all the research, the studying, the doc visits, YOU don't. Talk to me about being paranoid and its all in my head when you HAVE done all these things." The more I research the more I understand the more I question my own possible sensitivity to gluten and my 2 older kids as well. I don't think I am being paranoid, I think I am being thorough. I really hate when I tell my husband that I have had bm issues for about 3 yrs and since going gluten free fell 100 % different he tells me its all in my head. When he told me drinking milk made his stomach hurt I didn't bat an eye and went out and got goat milk and lactaid for him to try to see if it helped. Then after he had been drinking no milk at all or lactaid he was suddenly able to eat beans and tuna. Foods he had previously not been able to eat because one caused him stomach pain and the other swelled his esophagus shut. Did I tell him it was all in his head and those things were unrelated? NO, I believed he was right. Sorry, long vent. I am just upset.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

It is upsetting!!! It is bad enough having our doctors not believe us and thinking we are being hypochondriacal, without husbands added to the mix. I think you are being an excellent mother (and wife :o ) although you would have probably liked to say something. Perhaps in time he will come to understand that your wee girl has some serious problems that you are trying to solve. Do you share any of your research with him, or is he just not interested?? He should be forced to read some of this stuff to be made to realize you are not just making this up, and that there is a direct cause and effect relationship to what is happening. Make him come along to a doctor's visit if that is the only way he will get to see the light. I am so sorry you are having to go through all this stress. :)

dilettantesteph Collaborator

It took a long while for my husband to get with the program. It was hard in the meantime and he would say things like that too. It made me angry, and made me doubt myself. He was probably just in denial. When I learned about the denial stage of accepting an illness it helped me to understand. Keep up your hard work being a good mother and he will eventually come around.

quakenbake Rookie

You are most certainly not neurotic and sound like a great, and understandably worried, mother. I had horrible colic as a baby and needed special predigested formula. I have since suffered with all kinds of health and GI problems and am now just discovering that I am intolerant to gluten. You sound like you are doing everything right- trying to figure out what is causing your daughter's problems and making sure she isn't eating breads and such. It is hard to accept the diagnosis or potential diagnosis of any disease, especially when it is your child. It seems like it's easier for you to understand because you seem to have gluten sensitivities as well, so you can empathize with as well as actually see what's happening with your daughter. Your husband will come around eventually, but I'm sure it is very frustrating in the mean time. I hope things turn around sooner rather than later; patience, although needed in vast amounts from any perspective, can be hard to come by. Just keep doing what you're doing, and I'm sure it will all be fine.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      Pear Bread

    2. - Aretaeus Cappadocia commented on Amiah's blog entry in Amiah
      2

      Help!!

    3. - knitty kitty replied to Jmartes71's topic in Doctors
      12

      Second chance

    4. - Mari replied to Jmartes71's topic in Doctors
      12

      Second chance

    5. - trents replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test interpretations

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,683
    • Most Online (within 30 mins)
      7,748

    Alaena
    Newest Member
    Alaena
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I adapted this to be a gluten-free recipe from www.tasteofhome.com/recipes/autumn-pear-bread. Wonderful flavor profile, great texture, fairly easy to make. The almond flavor from the almond flour complements the pear flavor. Ingredients 1 cup almond flour 1 cup sweet rice flour 1 cup millet flour 2 Tablespoons tapioca flour 1 cup sugar 1 ½ teaspoon baking powder 1 teaspoon baking soda 3/4 teaspoon salt 1/4 teaspoon ground nutmeg 6 tablespoons cold butter 3 large eggs, room temperature 3/8 cup buttermilk (1 tsp white vinegar + 3/8 cup milk) 2 teaspoon vanilla extract 1 ½ cup finely chopped ripe pears (1-2 med/large pears. You could peel them but I don't) Directions (optional) cut butter into pats, place on saucer in the refrigerator while prepping other ingredients In large bowl, combine flour, sugar, baking powder, baking soda, salt and nutmeg. (I use a whisk to mix) Cut in butter until mixture resembles coarse crumbs. (I use pastry blender) Combine eggs, buttermilk and vanilla (I use same whisk); stir into flour mixture just until moistened. (I use a mixing spoon) Fold in pears. (mixing spoon) Spoon into 2 greased 5 x 8 inch loaf pans Bake at 350° for 35-40 minutes or until toothpick inserted in center comes out clean. Cool for 10 minutes before removing from pans on to wire rack. Allow to cool completely. Not sure how long you can keep this at room temperature because it gets eaten quickly
    • knitty kitty
      @Jmartes71, I understand how frustrated you feel.  I have been disappointed with the medical system myself.  Have you read my story in my blog?   What can we do to help you get better?   Nutritional deficiencies are common in Celiac disease.  Have you been checked for vitamin and mineral deficiencies?   Which supplements are you taking?
    • Mari
      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form  you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married.      How to Request Copies of Medical Record from Kaiser Permanente Form - Fill Out and Sign Printable PDF Template | airSlate SignNow
    • trents
      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated. 
    • knitty kitty
      Welcome, @anya22, Can you tell us more about your diet?   How much gluten containing foods did you eat?  What kinds of gluten containing foods did you eat?  What has your high calorie diet consisted of?   Some gluten containing foods contain less gluten than others.  Cakes and cookies may have less gluten than something like deep dish pizza.   Glad you're here!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.