Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Psychological Effects


mandigirl1

Recommended Posts

mandigirl1 Enthusiast

first of all, thank you to everyone that responded to my message about eating the same food over and over.....its great to have a website like this so one celiac can help another celiac. Thanks for the great advice and general support.

I have another topic to mention and this concerns celiac and depression. Ever since diagnosed with celiac, I was never the same. My whole life changed. I went through the anger, the poor me phase, to binge eating. I have been obssessing about food and my weight since the day I started the gluten-free diet. :angry:

I started to get depressed right after being diagnosed. I felt at times so overwhelmed with anxiety. My doctor put me on Prozac and Wellbutrin. It saved my life! It allowed me to get through the day. I am a 4th grade teacher and as you can imagine have lots of stress. In the beginning (of being diagnosed) I used to cry in the morning on my way to work and ask myself, how am I going to get through the day???? The pills worked wonders. It helped me to deal with my lifestyle change and I was really happy! :P

I take Wellbutrin to counterreact the sexual side effects of the Prozac (loss of libido in particular). Its a great mix!!!! Ive been on it about 6 years......maxed out on doses.....dont get that"high" happy feeling anymore, or silly giddiness and hyperactive behavior. Now its just part of my daily routine/diet. It just helps me to "be" and relax more. Along with Celiac and depression came anxiety, binge eating, excessive exercising in the gym to "erase" consuming a ton of calories, and obsessing about food every single day:

Not a day goes by, where I do not ask myself: What am I going to eat today?

I lost alot of my desire to enjoy food. Now I basically eat because I HAVE to. Usually my mom or boyfriend....yes boyfriend!!!!! will prepare meals/cook for me or get me to eat healthy. If it were up to me I would just eat peanut M&Ms all day. I would just eat a non-filling/unhealthy/"quick fix food (popcorn, rice cakes with peanut butter was a serious addiction, rice pudding, almonds, sugar pops cereal, just to name a few). and a TON of it too!!!!!!! :o

I still get into "moods", and experience brain "fog" without eating gluten, and the feeling of being tired all the time. Yes I am a teacher (in a good NYC public school) and its normal to be tired. However, even not at work, on vacations or now, during summer without the responsibilities, I am TIRED ALL THE TIME. And usually have unrestful sleep at night. :(

Do other celiacs feel this way?

Is anyone else on anti-depressants?

Any advice or suggestions?

I really appreciate it!!!!!!!! (I just joined this site) :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Hey, I live in NYC, also! I'm only 14, but I feel like I have a handle on this diet and I'd love to help you, as well. If you give me a slightly more specific location (neighborhood) I can help you a little more. There are some AMAZING gluten-free bakeries and restaurants downtown (most exclusively or nearly exclusively gluten-free) and there's a restaurant on the Upper West Side just started its gluten-free menu, including maybe ten pasta dishes, homemade bread, brownies, etc. I live on the Upper East Side, so I know most of the health food stores in the area (and the owners, lol :lol: ). There are numerous Whole Foods spread out and some have a gluten-free bakery inside. If you want help with any product replacements (i.e. a good gluten-free pizza or bagel, etc.) ask away here or e-mail me...

Oh, about those restaurants, lol...they're with the GFRAP ( Open Original Shared Link ) and are now catering to the celiacs as a result of the hard work of those people--the list constantly updates, so it's good to have. And here's a post I made on gluten-free in NYC:

Open Original Shared Link

and some more on it...

Open Original Shared Link

I'm not advocating that you eat out, every meal :lol: ...quite the opposite. But if you find that you're eating m&ms and rice cakes, but you just have no idea what to eat, there are options in NY and we should take advantage of them when necessary. Like I said, e-mail if you need anything--support, product recommendations, help specifically w/ gluten-free in nyc...

Diosa Apprentice

It's hard *not* to be food obsessed when first diagnosed. I know I am to a certain degree (diagnosed a few weeks ago). I know that feeling of your world crashing around you, the whole how #$%@@#$ unfair it is, and the what do I do now and how do I eat. You are not alone. :)

I cope by making a meal plan for the week, and just making that. It's simple foods really, stuff that I found in my old WW and low carb cookbooks, and some stuff found online. I'm trying not to obsess so much with food, but try to enjoy what I make. I basically eat meats and veggies, but am trying to get some semblence of fruit back in my diet (even though I hate the stuff) just for the variety.

If you ever want to talk, PM me or any of the greeat people on here. They all understand. Also, check around here, because there are lots of gluten-free recipes posted on here. :) Down in the recipe section tarnelberry posted some amazing ones!! *hugs* (if you want them)

watkinson Apprentice

Hi mandigirl1,

I would thouroughly, completely, absolutely encourage you to try taking daily omega 3 fatty acids. You can eat salmon or tuna several times a week and add flax meal to gluten-free breads, cereals, or yogurt (if you can eat dairy) Or you can take it in pill form. Whole foods sells a good gluten-free kind.

Why do this? There is tremendous data available on why our bodies deperalty need it. You can google it or check out different books. (the omega 3 connection is brilliant) Studies show that our bodies are meant to have a balance between the good fats and bad fats. about a 6 to 6 ratio. But that our society is raging with so many bad fats and almost no good fats that we now have a ratio of about 22 to 1. <_<:(

Studies also show that getting these fats back on line can improve all the workings of our bodies including the brain. Making problems like bi-polar disease, ADHD, and depression improve so drastically that some people are cured.

My daughter is bi-polar. She started taking high levels of omega 3 about a month ago through her docotr. She (and the rest of the family) have already seen improvement! :) She says she can tell she feels better. :)

Let us know if it works, it may take a few months,

Wendy

celiachap Apprentice
Hi mandigirl1,

I would thouroughly, completely, absolutely encourage you to try taking daily omega 3 fatty acids......

Very informative posting, Wendy.

Since I rarely eat fish, I take Nordic Naturals Omega 3 - their "Ultimate Omega" capsules. I only take one a day, rather than the recommeded two, becuase they are very potent. They are available in Vitaminshoppe's stores and website.

Open Original Shared Link

Studies of how Omega 3 can benefit children with various difficulties:

Open Original Shared Link

I also eat a lot of Mary's Gone Crackers (original) which contain organic flax seeds that are rich in Omega 3 fatty acids.

skbird Contributor

Oh, I love Mary's Gone Crackers originals!!! Those are DELICIOUS! I got a non-gluten-free friend hooked on them this past weekend...

Omega 3s is a great idea. Helps me a lot. I take fish oil, flax oil, and flax meal on a daily basis. I also eat salmon at least weekly and usually wild caught Pacific salmon. I have noticed a lot of improvements in my mood and how I"m feeling.

Stephanie

beelzebubble Contributor

it always makes me sad when i see these kinds of posts. i DO have issues with food obsession. you can't help it when you have to scrutinize everything you eat. but, i have no problem with food choices or variety. food can be fun-even gluten free food :). you just have to open your mind about what you eat. AND...most importantly...you have to learn to cook. i can tell you that being diagnosed with celiac changed my life in a really positive way, if only because i now make cooking a priority. my advice is eat easy and yummy things for breakfast and lunch (i eat lots of salads, fruits, veggies, nut thins and cheese) and wander into the land of ethnic foods for dinner. it's really hard to feel deprived when you are eating dishes that blow other peoples' out of the water.

here are some things i've eaten over the last few days:

cold avocado gazpacho

black bean and corn salad over fried cotija cheese

jambalaya with rice and a side salad

yogurt marinated lamb with a greek salad

shrimp, orange roughy, and langostine ceviche with tortilla chips

garlic shrimp with coconut curried rice and sauteed peppers

barbecued chicken legs marinated in a mix of wheat free soy sauce (tamari, actually), sweet chili sauce, sesame oil and rice vinegar

with a side salad

you get the idea. be adventurous. food can be fun, even when you can't eat gluten. i just plan my meals and make almost all the components from scratch, even my salad dressings. i would be happy to share my recipes with you, if you like.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Merika Contributor

Hi,

I go to www.savingdinner.com - an inexpensive subscription site - recommended by www.flylady.net . Saving Dinner sends weekly menus and grocery lists, and you have a choice of menu (reg, veggie, low-carb, frugal, etc.). They are easily convertible to gluten-free, and most are tasty.

The nice thing about it is you don't have to think or plan much for the week. It comes every Wednesday to your email and off you go on Thurs to shop. Cooking directions are simple.

From your email it sounds like you've been gluten-free for 6 years? I can't give you great advice, I've only been gluten-free for 1 1/2 yrs. It IS hard at first. Family support was a lifesaver for me too.

I'm not on medication. I admit I'm generally scared of all western medication, as I've had some really bad reactions to it.

It sounds strange, but the flylady link above may help your depression. Check it out :)

Merika

2old4 Rookie

Mandigirl1-

Hi, I am a 34 year old, wife, mother of a 3 year old, manage a busy retail store and I also take an anti-depressant. I've only been gluten-free for 6 weeks and I think my body is still recovering. But I have also noticed that I feel much better when I am eating whole meals instead of my "quick fix" of Lays & Reeses. I tend to be really tired alot if I don't eat properly. I also have started taking gluten-free vitamins (Pioneer) and am noticing a difference in my energy levels. Treat yourself well-

Patty

watkinson Apprentice

Hi mandigirl,

Another thing you may want to investigate is, are the meds your on gluten-free. Ask your pharmasist. If they don't know ask who is the manufacturer and give that company a call. If they ar not gluten-free that may be the reason for the depression.

Wendy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,369
    • Most Online (within 30 mins)
      7,748

    Nick H.
    Newest Member
    Nick H.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...