Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reducing Gluten Vs. Gluten-Free? (New Member)


anna34

Recommended Posts

anna34 Enthusiast

Hello, and thank you for the information provided to me so far.

My daughter's blood test results have prompted the GI to do the biopsy/scope next week. While we're waiting, my husband and I have been discussing how things will change if it comes back positive for celiac. I'd like to know if someone who has celiac must go completely gluten-free to get better, or can reducing the amount of gluten in one's diet help?

Also, if one is "gluten sensitive" rather than celiac, would reducing the amount of gluten in one's diet perhaps work?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Gluten has to be avoided completely if one is Celiac or gluten intolerant.

Even the dust of flour on a counter can make you ill if you are Celiac or gluten intolerant.

Cross contamination is a big issue that must be avoided.

Accidentally ingesting gluten can make us very very ill.

You will find that you or your child may become hypersensitive to even trace amounts of gluten once you have been gluten free for a time.

Although there are some people who have no symptoms when they ingest gluten, that seems to be the exception rather than the norm. Avoiding cross contamination is no small task. Yet it absolutely must be done if your child is Celiac or gluten intolerant.

No taking buns off burgers and eating the meat.

No eating toppings off pizza and leaving the crust.

No occasional cookie....

These things would be causing gluten ingestion which will cause damage to Celiacs, or symptoms for the gluten intolerant.

It is hard to think about avoiding it entirely, but it is absolutely necessary for the health of your child if he/she is Celiac or gluten intolerant.

The kitchen would need to be cleaned of gluten, Teflon pots and pans that are scratched need to be replaced.

Medications and vitamins need to be checked.

The more meticulous you are the better the health of the gluten intolerant person.

Having said that, there are degrees of sensitivity to gluten.

But the science and general consensus shows that even trace amounts need to be avoided.

Best of luck

Happyw5 Explorer

I am allergic to wheat and gluten sensative, I avoid gluten completely. It has only been a month for me, but it is getting easier every day. If she has celiac or gluten intolerance you have to avoid it completely. It will be hard at first but once she realizes how good she starts feeling it will be worth it. I have 5 small kids and in my home we are all eating gluten free except our bread and a few snacks(because it is so expensive). They have not even noticed-they actually like everything better then I do. I make everything homemade now and it is getting very easy...I proudly made chicken strips from scratch that were amazing and I make awesome choc chip cookies!!! Good Luck--and you can do this!!!

anna34 Enthusiast

Thank you. I assumed that once one goes gluten-free they would become more and more sensitive to it and it will need to be eliminated completely.

ravenwoodglass Mentor

Thank you. I assumed that once one goes gluten-free they would become more and more sensitive to it and it will need to be eliminated completely.

Yes that does happen but that is the bodies way of protecting us. Celiac or gluten intolerant the body is forming antibodies that can attack any organ including the brain. Even if the biopsy is negative with positive blood tests she need to be strictly gluten free. You should also have all first degree relatives tested whether they seem to have symptoms or not. Some folks have organs other than the GI system effected first, like joints, gallbladder, liver etc. It might be helpful to make your home gluten free or at least restrict gluten items. Whole unprocessed naturally gluten free foods will help her heal the quickest.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    2. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    4. - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,581
    • Most Online (within 30 mins)
      7,748

    MaggieSc
    Newest Member
    MaggieSc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.