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Not To Jump The Gun Or Anything But Day 4 And Jeez..

asickdaddy

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asickdaddy Explorer
asickdaddy
Posted

I am slightly shocked

Maybe placebo, but at this point who cares.

What I have noticed, it may sound extreme but to be honest it is more subtle that it sounds but..

I am breathing better, not great but not like it was.

I have ketarosis pilaris or a million red bumps all over my arms and legs, these have faded quite a bit

I have these little red sores on my shoulders and arms, maybe 5 in total and these seem to be healing meanwhile they have been there for 6 months

I am actually getting tired and falling asleep normally rather than the extreme insomnia

My acid reflux has improved 75% and I have not needed any antacids

My hoarse throat, still pretty bad, actually sounds terrible but I did have a moment or two where I sounded clear.. just a brief moment.

Lastly and best of all my stomach pain has all but virtually left me a lone. I had a brief hour or two with it yesterday and moments of it today but for the most part it is giving me a break. This has led to a great improvement in mood and function. I have actually achieved many many things in the last few days and been a more involved father and husband with a better attitude.

Now I only quit 4 days ago. I have been in control of my food so no CC that I can dream of. I have not cheated. I have quit dairy and gluten so I am not sure which one is the culprit. I have had some serious cravings and it was challenging on mothers day to not order at the restaurant, I actually bought my own chicken at the store and ate that in the car, lol. I did get a fruit smoothie, that was all fruit, orange juice and honey.

I am quite surprised actually and keeping my fingers crossed. I really have something happening to me with dairy and gluten, what my title or whatever is I don't know? How long this will continue I do not know? If everyday was like today I would actually be a much more productive human being and that is a good thing.

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mushroom Proficient
mushroom
Posted

Long may it last :D

Jestgar Rising Star
Jestgar
Posted

happens quick, don't it. :)

ravenwoodglass Mentor
ravenwoodglass
Posted

:):):):):)

Yes you can improve that quickly. I have literally never had another migraine since the day I went gluten free, except a couple times early on when I got glutened. My tummy issues also stopped really fast and after having D day and night for 15 years that was a real pleasent change.

I hope you continue to improve. After you have been feeling better for a couple months then you can try adding dairy back in. Many of us can add it in after we have fully healed.

atb913 Newbie
atb913
Posted

I had been off gluten for about 3 days when I noticed I could see things more clearly. Like the film in my eyes disappeared.

I've only been gluten-free for a week and a half but I'm NEVER going back!

blank Newbie
blank
Posted

Oh wow! I didn't know what "Keratosis pilaris" was until i read it in your post, then i googled it. I've had this for as long as i can remember. Gluten causes it?

i didn't even know there was a name to it, i just figured i didn't scrub those parts of my body hard enough.

wow, im suspecting i have some food allergies as well (headaches/migraines/brain fog) etc are my biggest concerns though.

wow! thanks for sharing info.

edit:

here is a picture of one of my legs. not very good (its dark here) but is this ketarosis pilaris?

This is one of my legs. i know it looks bad and nasty. I try to scrub and scrub my body in the shower but these never go away

leg.webp ?

asickdaddy Explorer
asickdaddy
Posted
  • Author

Yep that looks like the bumps I have all over my biceps and legs. It seems to get deeper in red and almost infected looking as I ingest more gluten. I am now a week off and they look mildly faded. I do not think they will ever go away, but probably improve greatly.

I also get larger open red sores, generally in the same spot on my shoulders. I have about 5 of them, and they are so bad that when they do heal they are scars. They seem to completely close up and heal to a scar when I quit dairy and gluten. When I return to gluten and dairy, it takes time but usually a few weeks back into it and these wounds reappear.

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Cypressmyst Explorer
Cypressmyst
Posted

No placebo Darlin' just a life free of ingesting poison anymore. :) Welcome to the first 4 days of your beautiful life. ;) And when you are at a good place and you notice even more things clear up please do tell others. Gluten Intolerance effects everyone in my estimation.

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    • Scott Adams
      Test interpretations

      By Scott Adams · Posted

      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Test interpretations

      By trents · Posted

      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
    • suek54
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      By suek54 · Posted

      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      Test interpretations

      By MicG · Posted

      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Test interpretations

      By trents · Posted

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
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