Suggesting A Hyst. For Cramping Not Going Away.
Posted 17 July 2011 - 02:02 PM
Posted 17 July 2011 - 02:47 PM
Have you already cut other things besides gluten? I would certainly investigate other foods before agreeing to surgery. I've read a number of times about celiacs having unnecessary surgeries and would be 100% positive it's not related before I moved forward.
Posted 17 July 2011 - 03:16 PM
Posted 17 July 2011 - 03:45 PM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 17 July 2011 - 04:46 PM
I speak from experience. I had a tipped uterus, fibroids, cysts, heavy bleeding, blah blah blah and a history of miscarriages and failed fertility treatments, a really EARLY peri-menopause and a hyster at a young age. If I knew back then that I had celiac and it caused many of those problems, I could have been spared a LOT of misery and loss. A hysterectomy doesn't solve all gyn problems, in fact --it can create new ones. You think your hormones are unbalanced now? oy!
I do not know your age or circumstances, but unless you are in a life-threatening situation that requires this hysterectomy, please give the inflammation from the celiac a chance to diminish and see if some of this pain doesn't resolve. See what other foods may be contributing to the problem. I had my gall bladder out too (did not solve any problems--just made more) because of celiac disease and I have learned..you cannot put an organ back....
Of course, it is your choice, but that's my two cents. best wishes!
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
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Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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Posted 18 July 2011 - 04:15 AM
Once an organ is gone it is gone. It seems odd that all your husbands coworkers who have had a hysterectomy have been 'happy with the results'. It isn't really a typical topic of water cooler conversation with a male coworker even in a medical setting. Do you know these women and why they had one done? There are many reasons to do a hysterectomy but it isn't like having a mole removed it is serious surgery. If they remove the ovaries as well as the uterus it will throw you into a premature menapause and if they leave the ovaries you are still going to have stuff like PMS. This should be a last resort IMHO.
Please give the diet a bit longer to resolve issues as the healing can take some time and it can take some time for the antibodies to resolve and if you have been CC'd that will flare those antibodies again.
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 18 July 2011 - 12:12 PM
I would FULLY investigate all kinds of food issues and stress based issues (stress manifests physically and can have a huge effect on the digestive system) before removing an organ...
I had a hysterectomy 25+ years ago and still had the same type of cramping you are talking about. Mine was an intolerance to soy. (WARNING to much info here) I felt like cut glass was passing thur my intestines and my insides were being cut to ribbons. I have not had an issue since going soy free.
There is of course a possibly that the origin is OB but I would suggest investigating food issues since your doc has not seen a clear medical issue.
Gluten free Oct/09
Soy free Nov/10
numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.
Osteoporosis before age 50
Hashimoto's thyroiditis disease .
Diagnosed type 2 Diabetes
Gilbert's Syndrome , confirmed by gene testing
Posted 28 July 2011 - 10:41 AM
Posted 28 July 2011 - 10:43 AM
I went ahead and did the hyst. It was a good thing. I had lots of adhesions all over the place. So hopefull things will get better soon. On day 2 after surgery.
Sounds like it was a good idea. Hope you are feeling OK.
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Posted 28 July 2011 - 10:52 AM
I have never regretted my decision to have one. Welcome to the "Thank heavens I'm done with all that crap" club.
I went ahead and did the hyst.
I'd also recommend HysterSisters for information.
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