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Suggesting A Hyst. For Cramping Not Going Away.


mommyto2kids

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mommyto2kids Collaborator

I was diagnosed 4 months ago. I still have all the same symptoms except the constant diarreah. I had my mind make up until may friend told me to get my hormones checked. Another friend said check for a parasite. Someone on here suggested to check IgG or IgA mediated allergies. I don't know what that is. Does anyone know? I also have an enlarged tipped uterus. Could it be causing the pain? Ob thinks it is. So confused and frustrated. Is would be a partial hyst. Thanks so much for advice. Gastro thinks pains are an ob issue. Hubby works at a hospital and most of his coworkers have been happy with their result of their hyst. This is such a strange sutuation since I have celiac as well.


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organicmama Contributor

IgG (Immunoglobulin G) and IgA (Immunoglobulin A) are types of antibodies searched for in tests for food sensitivities. Soe labs offer panels for each type. IgA are supposed to be the more accurate indicator, but some people have low total blood serum IgA which makes all of their IgA results false.

Have you already cut other things besides gluten? I would certainly investigate other foods before agreeing to surgery. I've read a number of times about celiacs having unnecessary surgeries and would be 100% positive it's not related before I moved forward.

GlutenFreeManna Rising Star

Have you tried cutting out dairy or soy? Those are common sources of cramping/pain. Also since you are new to eating gluten-free your body may just be adjusting and your digestive system can be really sensitive for the first 6 months to year. Some things that were hard for me to handle early on were: beans, raw veggies, nuts, too much fruit and processed gluten-free foods. pretty much anything that is hard to digest caused me pain. I ate a lot of steamed/cooked veggies and lean meat. You might try keeping a food and symptom diary to see if there is a pattern in what you eat and when you have pain. If there doesn't seem to be a pattern then I would consider it is OB related. But I would really want to rule out other causes before having surgery. Good luck!

tarnalberry Community Regular

I would FULLY investigate all kinds of food issues and stress based issues (stress manifests physically and can have a huge effect on the digestive system) before removing an organ...

IrishHeart Veteran

In my humble opinion, I would wait on it. GYN issues can be related to gluten for sure, but you are getting a major operation on a "maybe" and I would give the gluten-free diet some time before committing to major surgery. You are still healing. Any number of things could be causing the pain--as the previous posters have wisely suggested.

I speak from experience. I had a tipped uterus, fibroids, cysts, heavy bleeding, blah blah blah and a history of miscarriages and failed fertility treatments, a really EARLY peri-menopause and a hyster at a young age. If I knew back then that I had celiac and it caused many of those problems, I could have been spared a LOT of misery and loss. A hysterectomy doesn't solve all gyn problems, in fact --it can create new ones. You think your hormones are unbalanced now? oy!

I do not know your age or circumstances, but unless you are in a life-threatening situation that requires this hysterectomy, please give the inflammation from the celiac a chance to diminish and see if some of this pain doesn't resolve. See what other foods may be contributing to the problem. I had my gall bladder out too (did not solve any problems--just made more) because of celiac disease and I have learned..you cannot put an organ back.... :blink:

Of course, it is your choice, but that's my two cents. :) best wishes!

ravenwoodglass Mentor

Have you taken care of all CC issues in your home? If not then you may be still getting some gluten injestion causing the continued pain. I also agree with the others that dropping dairy and soy for a bit may be a good idea.

Once an organ is gone it is gone. It seems odd that all your husbands coworkers who have had a hysterectomy have been 'happy with the results'. It isn't really a typical topic of water cooler conversation with a male coworker even in a medical setting. Do you know these women and why they had one done? There are many reasons to do a hysterectomy but it isn't like having a mole removed it is serious surgery. If they remove the ovaries as well as the uterus it will throw you into a premature menapause and if they leave the ovaries you are still going to have stuff like PMS. This should be a last resort IMHO.

Please give the diet a bit longer to resolve issues as the healing can take some time and it can take some time for the antibodies to resolve and if you have been CC'd that will flare those antibodies again.

cahill Collaborator

I would FULLY investigate all kinds of food issues and stress based issues (stress manifests physically and can have a huge effect on the digestive system) before removing an organ...

Agreed

I had a hysterectomy 25+ years ago and still had the same type of cramping you are talking about. Mine was an intolerance to soy. (WARNING to much info here) I felt like cut glass was passing thur my intestines and my insides were being cut to ribbons. I have not had an issue since going soy free.

There is of course a possibly that the origin is OB but I would suggest investigating food issues since your doc has not seen a clear medical issue.


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  • 2 weeks later...
mommyto2kids Collaborator

I went ahead and did the hyst. It was a good thing. I had lots of adhesions all over the place. So hopefull things will get better soon. On day 2 after surgery.

kareng Grand Master

I went ahead and did the hyst. It was a good thing. I had lots of adhesions all over the place. So hopefull things will get better soon. On day 2 after surgery.

Sounds like it was a good idea. Hope you are feeling OK.

Jestgar Rising Star

I went ahead and did the hyst.

I have never regretted my decision to have one. :) Welcome to the "Thank heavens I'm done with all that crap" club.

I'd also recommend Open Original Shared Link for information.

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Is it realistically safe to eat food my mom cooks, if we get separate pans/ and boards even if gluten is still used in the same kitchen? There will always be low risk of cc chances like that she will still touch stuff that was touched by her and my siblings after they ate gluten. And as there are gluten eaters in the house and she also prepares and eats gluten. So would opening the fridge then getting the food and touching the food be okay? So basically what i am doing, washing my hands multiple times while preparing food, she would only wash it once before, then touch anything else (for example water tap or handles) that were touched with gluteny hands, then also touch the food. I dont know if I ever could feel safe, I could try telling her how important cc really is. And I trust her so she wouldnt lie to me then be careless about cc, but idk how safe it really can be if she and everyone else keeps eating gluten and touching stuff in the house after eating. 2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage. 3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy? 4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust? 5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.) 6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?  7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful? 8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if its gluten or something else but our dish washer doesnt seem to make it completely clean. 9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.  10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? 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