Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Guide For Family/friends Available?


kota

Recommended Posts

kota Rookie

Hello,

I haven't posted in quite awhile, and not sure if this question has been posted or not:

Is there a guide (book, website, blog, pamphlet, anything...) written specifically for family and friends about celiac disease/gluten intolerance?

Mostly because of an elimination diet, and also a quesionable biopsy I have been told by both a GI doctor and a dietician to avoid gluten. Even with that, and all the information that I read and share, my husband just does not 'get it'. He is off work this week and next which should be wonderful, but I am suffering as a result of cc issues. Not exactly the way I want to spend Christmas.

He thinks he does enough to keep food separate, but then won't wash his hands between touching his wheat bread & my food. Or, he'll just brush some of the wheat crumbs off the counter and think it's clean (half the time he doesn't even make that useless attempt).

I was thinking if there was something written specifically for family members it may be helpful for him. There is lots of good info out there, but nothing I have found with that target audience. Maybe I am going to have to write it myself? (With a title something like "Help! I Married a Celiac!") :)

Thanks for any help in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celtic Queen Explorer

I don't know about a brochure or flyer, but maybe you could bookmark the sections on cross contamination in a couple of Celiac books. There have been a bunch of threads on here with people recommending different books. Maybe you could check some out of the library and photo copy some sections.

My husband is not a huge reader, so short and to the point works better with him, which is why I recommended copying sections and not trying to make him read the whole book. You also might want to check the Univ. of Chicago and Univ. of Maryland celiac sites to see if they have anything.

Of course writing it yourself is a great idea. You could help tons of other people and their families.

domesticactivist Collaborator

A few of us talked about trying to put something like this together last summer. It was going to be focused on cross contamination stories, with tips interspersed. There is a big thread about it somewhere. I was going to work on it with one other person and put out a call for submissions but no one responded and I dropped the ball. It's still something I'd like to do. Anyone want to collaborate?

  • 2 weeks later...
mommyto2kids Collaborator

It is a process for family to learn to care. Do all the cooking if he just doesn't get it. See if you can find another celiac to explain it to him. Sometimes family members just can't take direction from family members. Believe me, I know.

  • 4 weeks later...
Organic4Life Newbie

It is a process for family to learn to care. Do all the cooking if he just doesn't get it. See if you can find another celiac to explain it to him. Sometimes family members just can't take direction from family members. Believe me, I know.

My partner and I opened an Organic Gluten free restaurant in Caldwell nj, On a daily basis we hear our clients telling us the same story, where a family member dosent understand about eating gluten free. We pride ourselves in knowing we are helping many people be able to go out and have a delicious meal and a dessert and also have other family members enjoy the food to. We enjoy talking to our customers, each day we learn something new the kids are the best as they are so honest.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    2. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    3. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

    5. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Annette Hill
    Newest Member
    Annette Hill
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.