Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Guide For Family/friends Available?


kota

Recommended Posts

kota Rookie

Hello,

I haven't posted in quite awhile, and not sure if this question has been posted or not:

Is there a guide (book, website, blog, pamphlet, anything...) written specifically for family and friends about celiac disease/gluten intolerance?

Mostly because of an elimination diet, and also a quesionable biopsy I have been told by both a GI doctor and a dietician to avoid gluten. Even with that, and all the information that I read and share, my husband just does not 'get it'. He is off work this week and next which should be wonderful, but I am suffering as a result of cc issues. Not exactly the way I want to spend Christmas.

He thinks he does enough to keep food separate, but then won't wash his hands between touching his wheat bread & my food. Or, he'll just brush some of the wheat crumbs off the counter and think it's clean (half the time he doesn't even make that useless attempt).

I was thinking if there was something written specifically for family members it may be helpful for him. There is lots of good info out there, but nothing I have found with that target audience. Maybe I am going to have to write it myself? (With a title something like "Help! I Married a Celiac!") :)

Thanks for any help in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celtic Queen Explorer

I don't know about a brochure or flyer, but maybe you could bookmark the sections on cross contamination in a couple of Celiac books. There have been a bunch of threads on here with people recommending different books. Maybe you could check some out of the library and photo copy some sections.

My husband is not a huge reader, so short and to the point works better with him, which is why I recommended copying sections and not trying to make him read the whole book. You also might want to check the Univ. of Chicago and Univ. of Maryland celiac sites to see if they have anything.

Of course writing it yourself is a great idea. You could help tons of other people and their families.

domesticactivist Collaborator

A few of us talked about trying to put something like this together last summer. It was going to be focused on cross contamination stories, with tips interspersed. There is a big thread about it somewhere. I was going to work on it with one other person and put out a call for submissions but no one responded and I dropped the ball. It's still something I'd like to do. Anyone want to collaborate?

  • 2 weeks later...
mommyto2kids Collaborator

It is a process for family to learn to care. Do all the cooking if he just doesn't get it. See if you can find another celiac to explain it to him. Sometimes family members just can't take direction from family members. Believe me, I know.

  • 4 weeks later...
Organic4Life Newbie

It is a process for family to learn to care. Do all the cooking if he just doesn't get it. See if you can find another celiac to explain it to him. Sometimes family members just can't take direction from family members. Believe me, I know.

My partner and I opened an Organic Gluten free restaurant in Caldwell nj, On a daily basis we hear our clients telling us the same story, where a family member dosent understand about eating gluten free. We pride ourselves in knowing we are helping many people be able to go out and have a delicious meal and a dessert and also have other family members enjoy the food to. We enjoy talking to our customers, each day we learn something new the kids are the best as they are so honest.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    2. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    3. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    4. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

    5. - RMJ replied to Xravith's topic in Introduce Yourself / Share Stuff
      1

      Do Gluten Enzymes actually work?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,185
    • Most Online (within 30 mins)
      7,748

    JudahS
    Newest Member
    JudahS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
    • RMJ
      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.