Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shaky, Nausea, Feel Weird After Eating.....help?


TTNOGluten

Recommended Posts

TTNOGluten Explorer

Well it has now been 4 1/2 months of gluten free-ness, and still little improvement. I am concerned with these peculair symptoms that I continue to have. Started with new GI doc, and I like him, seems to listen, but still have so many odd ball symptoms. Hoping you guys can help.

I notice about 2-3 minutes after eating, and it can be as simple as a banana, eggs, apple, anything for that matter, that I have episodes that begin with feeling nauseous, out of my head-foggy, and shakiness, and seem to have a tremoring feeling. This lasts sometimes for about 45 minutes to an hour, and I just feel aweful, then I return to my usual chronic achiness in the upper belly with nausea and back pain. I have checked my blood sugar and it is normal during this time frame as well as my blood pressure, also normal. Seems like after one of these episodes, I then get very drowsy, lasting for 2-3 hours or so, and feel like I need a nap???

any thoughts, or anyone else have similar things going on??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

I think I may have told you this already, but I had the same thing going on for many months after going gluten-free. It took a while for my system to calm down.

I found that I NEEDED PROTEIN with any carb I ate--fruit or starchy---to stop that nausea, jittery feeling, spaciness and afternoon fatigue.

I also needed B-12, Folate, D supplementation.

Eventually, all that stopped --unless I get CCed by accident.

I may have asked you this on another post you made, and I know you are still struggling post- cholecystectomy, but are all your vitamin/minerals levels up to par??

A deficiency in any one of those can wreak havoc on the body, even causing the symptoms you describe. Post surgery and a new celiac DX?--you may be deficient in a few of them.

Maybe you should ask your doctor to check them for you?

What did the GI doctor say--did he check you for other possible GI tract issues yet? You are having quite a struggle, I know. Sorry.

cyberprof Enthusiast

IrishHeart - as ususal - is right on target. I had these symptoms for years even pre-diagnosis. I could never eat just an apple it has to be an apple plus peanut butter or cheese or an egg.

In addition to what she said, a sublingual multi B is my choice because I know it will get absorbed. Plus I have to have a Magnesium supplement daily or I feel "off".

So, yes more protein. D, B and Magnesium supplements. Best of luck to you.

  • 6 months later...
hermpal Newbie

Was gluten free for 2 weeks feeling fine then eat kale. I have been nausea for the past month. Not much helps it I have started steriods about 5 days. What is going on. Can just eating kale make so sick for so long? What should I do? I thought once I was gluten free I would be fine but doesnt seem so. Help any suggestion is welcome

Chad Sines Rising Star

Everyone seems to be different with what they can tolerate and not tolerate. I had my gallbladder removed about 5ish years ago. I cannot tolerate fat at all until several weeks after gluten-free. If I slip, then it is back to the drawing board. Even a single egg would lead me to run to the restroom, plus lots of bloating, sometimes nausea.

We all seem to be broken down in slightly different ways and each seems to have their own weird issues. It would be interesting if it was not so devastating.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    2. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,207
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.