Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Much Gluten Does It Take To Make You Sick?


livelifelarge24

Recommended Posts

livelifelarge24 Enthusiast

I have accidental glutening before and my reactions are almost always exactly the same down to the hour. I usually know exactly what to expect, I also always figure it out and discontinue the culprit within a few days. Well this time I didn't realize I was getting glutened. I was eating some candy every day for two weeks that was making me sick but because the symptoms were milder I didn't catch it for a long time. The candy itself doesn't have gluten but was processed on shares equipment. Apparently that was enough to make me sick. But my symptoms are now much worse than they usually get! It's a much smaller amount of cc I think but over a more extended period of time. Do you find your reaction to be worse depending on the type of glutening you get? I would think I would have gotten sicker from the swig of beer I accidentally took once but I think this is much worse.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

Yes, you have described it well, same type of reaction for me. I used to love this one cajun salt which I used for my crab boil. One day after eating the crab I woke up with these tiny bumps under my skin on my fingers. Checked the bottle and it said it could conatin wheat. Not sure if it was the wheat or the spice that created this. Had no stomach issues. I have tried candy that said it was manufactured on machinery that contains gluten which did give me a sick stomach for a day but nothing more. Had a recent bewildering experience with choco covered raisins, nothing listed in the ingredients I could not have and did not say anything about how it was processed but I have a feeling there was some cc there, made me pretty darn sick, like you, I had been slowly munching on them. But if I get a crumb of bread, I know it!

ravenwoodglass Mentor

I think if you are getting small amounts of gluten over an extended period of time that it is giving the antibodies more time and strength building up. I guess I am lucky that I get enough of an effect quick enough so that I don't get the chance to have things build up as my reaction becomes evident within a few hours at most. I have neuro issues that clue me in and let me know I am in for a rough few days. I do react to very, very small amounts of gluten. I do have to even be careful moving wrapped bread at my volunteer job and I have to wash my hands very often to stay safe as even a residue I can't see will get me. Learned that the hard way.

The delayed reaction many of us get can be troublesome as it makes it hard for us to know sometimes what is getting us. We also have to factor in other intolerances when we are new to the diet. Many times early on we can have other intolerances that show up and for some the symptoms will be similiar to our gluten reactions and can make us think we are reacting to gluten when the reaction may be to dairy or soy, as examples. It took me a long time to figure out I was reacting to soy and for a couple of years I thought items that were gluten-free and made in dedicated facilities we somehow CCing me. It turned out it was the soy in them and had nothing to do with gluten.

burdee Enthusiast

The last time I got gluten cross-contamination was after eating 2 corn tortilla chips which were fried in the same oil that flour tortillas had been fried in. I was sick for 3 weeks with excruciating cramping gut pain, bloating, nausea, etc. That was October 2005. I haven't had a gluten reaction since. However, I've accidentally consumed tiny bits of each of my other 6 allergens and reacted almost as strongly, but had only 1-2 weeks of symptoms from my other allergens.

dilettantesteph Collaborator

You did describe it well. I get hit badly from that tiny contamination built up over a long time. I think it is because it gets pretty bad before I pay attention to it enough to figure it out. Then it takes me a few more days or weeks of eliminating things before I get the right thing. By then I'm in rough shape. The system is damaged and needs to do a lot of healing. I'm finally getting over one of those myself.

If you are looking for a scientific explanation for your question, the FDA did a paper in which they evaluated research in that area:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      British Coeliacs: Marks and Spencer's have launched a Gluten Free Colin the Caterpillar Cake.

    2. - cristiana replied to colinukcoeliac's topic in Gluten-Free Restaurants
      10

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Insomnia help

    4. - cristiana replied to colinukcoeliac's topic in Gluten-Free Restaurants
      10

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    5. - melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Persistent isolated high DGP-IGG in child despite gluten-free diet

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,500
    • Most Online (within 30 mins)
      7,748

    BrittanyD
    Newest Member
    BrittanyD
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Brilliant news for British Coeliacs!   Colin was launched in 1990 so I am fortunate in that I was able to try this amazing chocolate swissroll cake before my diagnosis.  But the good news is he has now appeared in the Gluten Free aisle at M&S, and also is available home delivery through Ocado. https://www.marksandspencer.com/food/made-without-wheat-gluten-free-colin-the-caterpillar/p/fdp60761680  
    • cristiana
      Re: Michelin star.  To give an example, the Ritz Hotel in London has two Michelin stars.   Here's another article about Michelin stars - from our own archive.  
    • cristiana
      Very helpful @knitty kitty.  Thank you.  I am trying to remember what vitamin so alarmed my GP and I have a feeling it was A or E.  I remember reading the pills contained well over the 100 per cent RDA of whatever the vitamin was. One thing I'd love to ask you that has always intrigued me.  One day when my anxiety was completely through the roof.  I 'felt the fear and did it anyway' - a phrase other anxiety sufferers may be aware of, which I found a powerful tool in my recovery -  and visited a friend's house, even though I felt so wretched.  For some reason I craved milk and drank two whole pints of milk in quick succession while I was with her - to this day I can't think why, because I don't usually drink milk 'neat' - I like it in tea or coffee, or hot chocolate.  But I distinctly remember within a couple of hours feeling absolutely fine again for quite a while.  I've often wondered was it down to this milk, which I've since understood contains quite decent levels of B12.  Would that have really worked so fast?    
    • cristiana
      @trents  Good question.  We are strict at home, although I have to admit I've eating the odd chocolate at Christmas that turned out to have been made in a shared facility.  But that  is very unusual for me, and I had my last blood test before Christmas anyway.  Therefore I have concluded that eating out must be the issue.  But I'll let you know in September when I have my next blood tests done.  😊  
    • melthebell
      Thanks very much for taking the time to write this. I have been pretty worried so appreciate reading any advice. Yes, the endoscopy will include a biopsy, and we have hopefully found a good pediatric gastro to guide us through it all.  Will also run the HLA typing - I have the swabs ready to go.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.