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Newbie Info 101


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#1 IrishHeart

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Posted 14 April 2012 - 08:04 AM

You have been diagnosed and you do not know what to do next.
First, do not panic! and Welcome to the Forum!

I have posted this information in pieces and parts on this site during the past year so many times and some newbies suggested it would have been helpful if they had seen it ALL --right away after they were DXed.... so, I thought, why not paste it all together in one spot?

Don't think about what you cannot eat--think about what you can eat: Fresh meats, veggies, fruits, nuts, eggs, fish, etc.

Some celiacs are lucky and can tolerate dairy right now, but many of us had to give it up for a few months. Why? Because lactase, which is the enzyme that breaks down the sugar lactose, is produced in the tips of the villi. When the villi get blunted in celiac disease, sometimes the ability to digest lactose is decreased and you can become “lactose intolerant.” This may cause bloating, stomach cramps, diarrhea, etc. After you go gluten-free, the villi will heal and most people are able to tolerate dairy foods again.

Learn how to read Labels.

Dietary concerns –LISTS OF safe and unsafe gluten free foods

http://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

http://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html

DISCLAIMER!!
The following suggestions ---are just that: suggestions.
I have no affiliation with any of these websites, organizations, authors, or companies and I am not a paid spokesperson and I am not endorsing any specific products. They just worked for me or other members.
I am not a doctor and this is not medical advice.
I am not a nutritionist.
I am just a fellow Celiac who learned the ropes from months of research and from the generous and compassionate contributing members of Celiac.com
And, as my wise friend, KarenG pointed out, I should say this info applies to those of us in the US. I cannot say what companies in other countries do.


Some resources for negotiating a gluten-free life:

Living Gluten Free for Dummies--Danna Korn
Celiac Disease: the First Year by Jules Dowler Shepard
Cecelia's Marketplace Gluten-free GROCERY SHOPPING GUIDE
http://www.ceceliasmarketplace.com/gluten-free/2012-2013-gluten-free-grocery-shopping-guide/

A quick “get-started” menu for gluten-free eating follows, but it is by no means "inclusive", just some ideas. Consult the many on-line gluten-free recipes available and the many wonderful contributions from our members in the cooking and baking sections of the Forum:

FLUIDS: Drink a lot of water. Celiacs are dehydrated from malabsorption. Plus, it helps cleanse toxins from body tissues and organs and keep the bowels running smoothly.
But, yes, (because I know you are going to ask :) )
unflavored coffees and tea are okay. Check teabags for "malt" --sometimes they use it.

DIGESTIVE ENZYMES help if you have pancreatic issues that cause trouble when digesting fats and proteins. A good one is Digest Gold, but others may have suggestions as well.

PROBIOTICS are a must. A good one is the multi-strain probiotic from Custom Probiotics
http://www.customprobiotics.com/

or over-the-counter brand CULTURELLE. (found in any drug store or Wlmart's) Celiacs' leaky guts have an unbalanced amount of gut flora. Here is why you need them:

http://thefooddoc.com/probiotic_facts

All the digestive issues like acid reflux (GERD) and heartburn, excess gas, camping, diarrhea and constipation should disappear or diminish on a gluten free diet.

VITAMINS: Most doctors (and fellow celiacs) recommend a good, gluten-free multivitamin. Some of you will have vitamin/mineral deficiencies or B-12 or Folate anemia--and you should have blood work done to see where you stand. Malabsorption creates all sorts of problems.

FOLLOW UP CARE: I suggest follow-up care from a celiac-savvy doctor to everyone post-DX. Lab work ( including CBC, CMP, SED RATE, IRON/FERRITIN levels, B-12, Folate levels and THYROID panels) and barium studies of the GI tract, if warranted. Do not be afraid to ask your doctor.(IMHO)

A whole foods diet is suggested to many of us as the best way to speed healing of your gut lining, but many people succesfully incorporate Certified gluten-free products into their diets right away! As with all things regarding Celiac, everyone is different.

Earth Balance (soy-free) is a good choice if you cannot have butter. You need some good essential fatty acids: Safflower oil, sunflower oil, extra virgin olive oil, coconut oil.


Some Breakfast ideas:


Erewhon crispy brown rice cereal or gluten-free Kellogg's RICE KRISPIES, gluten-free CHEX corn or gluten-free CHEX Rice cereal, gluten-free CHEX honey-nut or gluten-free CHEX Cinnamon
Add: rice milk, almond milk or coconut milk (The So Delicious brand is excellent) and add berries or sliced banana.
CERTIFIED gluten -free oatmeal w/cinnamon (glutenfreeda brand, Bob's Red Mill are a few examples) NOTE: It is my understanding that Quaker Oats are cross-contaminated! Some celiacs cannot DIGEST oats. Only you can decide.
Gluten-free muffins made from a mix or purchased.
Eggs and bacon or sausage with gluten-free toast or bagel (Kinnikinnick, Udi's, Glutino or homemade bread)
Pocono Cream of buckwheat --it's good!! (no worries--Buckwheat is not from the wheat family)
Amaranth pancakes w/pure maple syrup (bottled syrups can contain gluten)
gluten-free packaged pancake/waffle mixes (Pamela's brand is very good as is Bob's Red Mill –we use BRM on the site, for short)
Van's frozen waffles.

FRUITS and VEGGIES—eat plenty of these daily in your diet.


LUNCH and DINNER ideas:

Leftovers from last night's dinner make an easy lunch
Some Progresso soups are gluten-free. Check the label!
Some Pacific and Imagine brand soups. Read the label!
A sandwich with gluten free bread or rolls—UDIs, Rudi's, Glutino Genius, Scharr's and Canyon Bakehouse --all have decent packaged breads, rolls and bagels, but homemade is the way to go.
(I have a simple recipe for white sandwich bread that is delicious if you want it.)
A big salad or an antipasta with tons of veggies and grilled chicken or shrimp and Hard-boiled eggs/ with gluten-free or homemade vinegrette dressing.
A list of gluten free salad dressings is available online. Marzettis, and most of WishBone and Ken's are okay. Homemade is best!
Homemade vegetable minestrone ,chicken soup, stews, black bean or White bean chili (use gluten-free stock--pacific, imagine or make your own from scratch--even better!)
Chicken or bean nachos (can use corn tortillas)
Red beans and rice
grilled burgers and beans (Sweet Baby Ray's BBQ sauce and Bush's Baked Beans are gluten-free)on a bun (Udi's makes hamburger rolls now or you can make your own. CHEBE bread mix makes killer rolls)
almost all mexican food is safe (just no flour tortillas!)
Pasta and sauce w/meatballs (brown rice or corn pasta)
TINKYADA BRAND penne pasta is delicious! Cook 13 minutes exactly. Trust me!) and use gluten-free breadcrumbs (purchase or just grind some gluten-free bread and season)in your meatballs
Another good pasta is CORN pasta. BiAglut or Sam's Hill are a couple. Cook as directed.
meatloaf (beef or ground turkey) baked potato or yams, green veggie of some kind
Other proteins: roasted or grilled chicken, turkey, pork, beef, salmon, talapia, scallops, lamb, some sausages are safe, bacon (Check labels)
Vegetarian chili--homemade.
I eat a variety of veggies.....whatever looks fresh at the super market or farmer's market or stands...steamed, grilled--- or roasted root veggies in stock.
Sweet potatoes—baked at 350 degrees in a pan for 45-50 mins.--are yummy
Potatoes—roasted, grilled, in a gratin or whipped with milk
Fritattas with veggies and salad
Stuffed peppers—with ground turkey, beef or lamb and rice

ANYTHING GOES!! :)

ANY recipe you already use can probably be altered--just use gluten-free breadcrumbs or rice/corn pasta ---use any flour made from amaranth, corn, bean, etc...just NO WHEAT, RYE OR BARLEY or cross -contaminated OATS.


Snack ideas that are safe and handy

Cozy Shack Rice Pudding or Tapioca cups (in the dairy section)
All natural applesauce cups
Gluten-free cookies or muffins (Bake them or buy them.)
Pamela's Baking Mix is versatile and good for cookies, baked goods. There are many options (check the recipe and baking section on the forum)
Bagel with cream cheese and jam or nut butters. Udi's and Glutino bagels are pretty good (frozen section)
Pamela's and King Arthur gluten-free--makes a very good brownie mix too!
Chobani Yogurt or So Delicious coconut milk Yogurts- if you cannot have dairy
Scharr cookies (chocolate-dipped shortbread or the mocha layers--are VERY tasty!)
Lundberg rice cakes or sliced apples and celery sticks with natural peanut butter or almond butter or hummus smeared on
Mary's Gone Crackers, Crunchmaster's or Glutino crackers with cheese or peanut butter
BOAR's Head or Applegate Farms deli--ham, turkey, pepperoni, salami, proscuitto--most all cold cuts and cheeses
Slices of cantaloupe wrapped in proscuitto
Watermelon with crumbled feta cheese
Peanuts, almonds, cashews. (I like Blue Diamond or
Nutsonline.com has a HUGE gluten-free selection of nuts and flours)
SUNMAID raisins, prunes. Craisins by Ocean Spray. (**some raisins and dried fruits are dusted with flour to keep them from sticking but these brands are safe.)
Smoothies- made with coconut milk, various fruits, yogurt, etc.
Potato chips----like Cape Cod, Kettle Brand, Utz
Indiana Popcorn--comes in all flavors--the kettle corn is delicious
Glutino brand pretzels—they come in all flavors even chocolate -coated
Coconut milk, creamer and ice cream ( So Delicious brand is very good)
Ice Cream, if dairy is not a problem for you. Most Haagen Das flavors are good, for example. READ LABELS!!!
Organic Corn chips w/salsa, hummus, or Guacamole
Sunflower , pumpkin or flaxseeds
Candy—Hershey's kisses or regular size bars, regular size Reese's cups, Snickers, York peppermint patty, Health Bars, Butterfinger and M &Ms plain and peanut. Ghirardelli squares. These were safe--last I read online--but READ LABELS!
Enjoy Life chocolate chips, chunks and Boom Choco Boom bars (free of ALL top 8 allergens)
Make some Chex mix with gluten-free chex cereals
gluten-free Rice Krispies treats (recipes are online)
CHEBE pizza and breadstick mixes—are very good.
Against the Grain and Glutino make some good frozen pizzas.

Check the labels of all packaged products-- if they were made with wheat or gluten, they will state so on the package.


Very important:
Cross-contamination is the bane of our existence. Learn how to make your home safe.

http://celiacdisease.about.com/od/cookingglutenfree/a/crosscontaminat.htm

Hidden sources of gluten:
http://www.practicalgastro.com/pdf/September08/HlywiakArticle.pdf



Packaged/processed Foods:

A package stating a product is “Gluten-free “ does not always guarantee it was processed and manufactured and packaged in a dedicated facility. It may just mean they did not knowingly put gluten ingredients in the product.
I, personally, look for the GIG (Gluten Intolerance Group) circle stamped on the package –it is a big G F in a circle. That's just me.
I also use common sense. I know that foods that are inherently gluten-free will not carry a gluten-free label on them (oranges, broccoli, plain cheddar cheese, etc.) :)


Some DEDICATED gluten-free facilities are listed below. There are others. Google away! :) :

Glutino
Bob's Red Mill gluten-free
1-2-3 Meredith's Marvelous
Authentic Foods gluten-free
Pamela's
Cause You're Special
Udi's
The Cravings Place
Andean Dream
Kinnikinnick
Organic Nectars
Namaste
Orgran
Foods by George
Gluten-free FULL FLAVOR Gravy Packets
Prana Bar
Enjoy Life
EnergG
Gillian's
Against the Grain

Many other companies will provide a list of gluten-free foods. The members on here can tell you which ones are good about this.



They make all kinds of ready made mixes and flours to make it easy to start baking.
The cooking and baking section on the forum has thousands of great ideas—these guys are amazingly creative!

That should get you started--- until you can create your own diet and menus and feel less "dazed and confused" by your new life.
You're going to be okay! ;)

Best wishes!
IH
  • 19

 "Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

 

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

 

 

 

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.  bliss-smiley-emoticon.gif

 

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#2 LuLuBee

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Posted 14 April 2012 - 09:14 AM

Good Morning Irish Heart!

Thank you very very much for this information! You're right, it really is great to have it all in one place. Its great to read something so positive. It helps A LOT.! I really appreciate the information about the testings. I am self diagnosed unfortunately, and have wondered if there were "round about" ways to test? I had considered challenging but once I realized its about a 3 month process, I gave up on the idea! (honestly even 1-2 weeks would do me in!)

The explanation on villi and diary was helpful too.

My approach was fairly positive after figuring out what my problem was. I'd finally had an answer to where all the pain was coming from! I had approached it positively at first, thinking about all the nutrient rich foods I could enjoy, all of my old vegetarian meals I could reincorporate back into my diet(...with meat this time) and all the weight I'd eventually knock off. Well.....that didn't last long! I have actually gained 10 lbs ( 15 if I get honest with myself!) from depressive gluten free cookie overeating!

I have a feeling I will be reading and re-reading this post quite a bit. Thank you for sharing.
  • 3
“My point is, life is about balance. The good and the bad. The highs and the lows. The pina and the colada.”
― Ellen DeGeneres, Seriously... I'm Kidding

#3 IrishHeart

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Posted 14 April 2012 - 09:33 AM

Hi LuluBee,

I am glad if it helps in any way.

Many people forego blood and biopsy testing for celiac because of how poorly they feel on a gluten challenge, but getting a proper DX for celiac is always suggested by the medical community. You DO need to be consuming gluten for a valid result.

My own DX was botched twice and "hard-earned", so to speak :rolleyes: and I was deathly ill. Still, it took me many years for validation and confirmation, so I understand the frustration.

Unless you want/need a confirmed DX, some folks will tell you just go gluten-free and feel better and don't worry about it.

Only you can decide what's best for you.

Welcome to the Forum!
  • 0

 "Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

 

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

 

 

 

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.  bliss-smiley-emoticon.gif

 

Celiac.com - Celiac Disease Board Moderator


#4 Skylark

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Posted 16 April 2012 - 09:38 PM

I just celebrated my 7th year gluten-free and I honestly cannot remember life with gluten, nor do I miss it. I have hit the point of total comfort. You can too! :D

It's too bad Irish can't take cash contributions because her advice is worth more than a doctors! :P

High five! :D I'm at seven years too this spring! Gluten? Food? Nah. The diet may seem hard at first but you get to where it's second nature and it kinda looks weird when the people around you are eating wheat. "You're eating that bread? Ew, gross!"

This is great information from IH. Above all, don't panic. Remind yourself that champagne, caviar, and a wide selection of chocolates are gluten-free. You can totally handle this. B)
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#5 IrishHeart

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Posted 23 April 2012 - 07:02 AM

Wow, this is soooo helpful. Especially the blood tests. I kinda want to cry because my doctors only did a couple of them. Gesh.


I am glad it helps. I know what you mean about wanting to cry about such things...so many things I wish I had known, too.
But, you know now--and you can always have them checked.

I have regular blood work done--my new GI doc insists.(I love him!)
First time I feel as if I am in good hands.

I am guessing this lab work will part of your consult with Dr. Fasano?
I am very excited for you that you will be seeing him!
best wishes!!
  • 0

 "Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

 

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

 

 

 

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.  bliss-smiley-emoticon.gif

 

Celiac.com - Celiac Disease Board Moderator


#6 BabsV

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Posted 23 April 2012 - 07:35 AM

I am guessing this lab work will part of your consult with Dr. Fasano?
I am very excited for you that you will be seeing him!
best wishes!!


They actually told me it was better to have the blood work done prior to seeing him -- then he can review results at evaluation and I don't have to wait longer for his input. I've got a HUGE file for him to review...all the tests done here in Poland and also the blood work and biopsy done in the States while we were there on vacation last year. Gesh, hope he's ready to do some reading!
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#7 IrishHeart

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Posted 24 April 2012 - 05:53 AM

Additional products people ask about:

San-J Organic Tamari Gluten Free Soy Sauce is available.

McCormick single spice/herbs and vanilla are gluten free.

For spice blends, be sure to read the labels!!

Spice blends can not hide grain (gluten). Seasoning blends are a whole different ball game.

Edited by psawyer, 05 May 2012 - 06:20 PM.
Spices are not the same as seasoning.

  • 1

 "Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

 

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

 

 

 

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.  bliss-smiley-emoticon.gif

 

Celiac.com - Celiac Disease Board Moderator


#8 dilettantesteph

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Posted 25 April 2012 - 04:18 AM

A whole foods diet is suggested to many of us as the best way to speed healing of your gut lining, but many people succesfully incorporate Certified gluten-free products into their diets right away! As with all things regarding Celiac, everyone is different.

Thank you for including this part. It is well stated and it is nice to see the more sensitive among us included.
  • 0

#9 IrishHeart

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Posted 25 April 2012 - 04:47 AM

Thank you for including this part. It is well stated and it is nice to see the more sensitive among us included.



I have a very low-level tolerance myself and I have to choose wisely. Despite my vigilance, I have been trace- CCed a few times myself. :rolleyes:

As I stated, "With Celiac, everyone is different."
  • 0

 "Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

 

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

 

 

 

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.  bliss-smiley-emoticon.gif

 

Celiac.com - Celiac Disease Board Moderator


#10 ncallier

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Posted 25 April 2012 - 10:19 AM

Don't think about what you cannot eat--think about what you can eat: Fresh meats, veggies, fruits, nuts, eggs, fish, etc.

Some celiacs are lucky and can tolerate dairy right now, but many of us had to give it up for a few months. Why? Because lactase, which is the enzyme that breaks down the sugar lactose, is produced in the tips of the villi. When the villi get blunted in celiac disease, sometimes the ability to digest lactose is decreased and you can become “lactose intolerant.” This may cause bloating, stomach cramps, diarrhea, etc. After you go gluten-free, the villi will heal and most people are able to tolerate dairy foods again.

DIGESTIVE ENZYMES help if you have pancreatic issues that cause trouble when digesting fats and proteins. A good one is Digest Gold, but others may have suggestions as well.

PROBIOTICS are a must. A good one is the multi-strain probiotic from Custom Probiotics
http://www.customprobiotics.com/

or over-the-counter brand CULTURELLE. (found in any drug store or Wlmart's) Celiacs' leaky guts have an unbalanced amount of gut flora. Here is why you need them:

VITAMINS: Most doctors (and fellow celiacs) recommend a good, gluten-free multivitamin. Some of you will have vitamin/mineral deficiencies or B-12 or Folate anemia--and you should have blood work done to see where you stand. Malabsorption creates all sorts of problems.

FOLLOW UP CARE: I suggest follow-up care from a celiac-savvy doctor to everyone post-DX. Lab work ( including CBC, CMP, SED RATE, IRON/FERRITIN levels, B-12, Folate levels and THYROID panels) and barium studies of the GI tract, if warranted. Do not be afraid to ask your doctor.(IMHO)

A whole foods diet is suggested to many of us as the best way to speed healing of your gut lining, but many people succesfully incorporate Certified gluten-free products into their diets right away! As with all things regarding Celiac, everyone is different.


Thank you so much for your posts and suggestions! I am having a hard time keeping up with all the changes and reading your posts certainly helps a lot.

I have had celiac disease symptoms for my entire life but was misdiagnosed over and over again. My allergist finally suggested doing the blood test and diagnosed me, but I followed up with a visit to my gi doctor that I had seen for years. He confirmed the diagnosis with endoscopy and suggested a gluten free diet. That was it; no other suggestions or tests or anything. No advice for dietary supplements or anything. I really appreciate your spelling it out for all of us newbies.

Now for the big question: does anyone know of a celiac-savvy doctor in middle Georgia?

Natalie
  • 1
English lady

#11 IrishHeart

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Posted 25 April 2012 - 11:27 AM

Now for the big question: does anyone know of a celiac-savvy doctor in middle Georgia?

Natalie


Post this very question in a NEW TOPIC thread in the DOCTORS section where someone may see it better!

"Need GOOD GI in (give the closest large city) GEORGIA"

or using the SEARCH FORUM (upper right top corner under your profile name) type in Doctor in --- GA and see if anyone has already posted.

That's how I found my guy and how I routinely see others who are looking and send them to him as well.

best luck! anything else, give a shout!
  • 0

 "Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

 

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

 

 

 

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.  bliss-smiley-emoticon.gif

 

Celiac.com - Celiac Disease Board Moderator


#12 IrishHeart

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Posted 28 April 2012 - 04:48 AM

You are a true gem IrishHeart :)


Okay, now I am blushing.

Thanks. I just wanted to help by putting all this into some type of guide. Learning all this was extra difficult for me because my brain was impacted from gluten and malabsorption. If I did not have the help of my hubs and the people on C.com, I might still be floundering around making rookie mistakes. :D

I did a LOT of reesearch when I was very ill, but it was tough to make sense of it all while still in "Gluten head" mode. <_<

If anything is missing, PLEASE, feel free to add your suggestions, too!!! That would be great!
  • 0

 "Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

 

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

 

 

 

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.  bliss-smiley-emoticon.gif

 

Celiac.com - Celiac Disease Board Moderator


#13 psawyer

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Posted 05 May 2012 - 06:14 PM

If you wish to add to this discussion, please post here
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#14 IrishHeart

IrishHeart

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Posted 01 November 2012 - 01:40 PM

Updated 11/1/12 by IrishHeart

A list of symptoms and conditions associated with Celiac from the Univ. of Chicago Celiac Disease Center
(adapted from Cleo J. Libonati's book Recognizing Celiac Disease)

I had dozens of symptoms myself and found that most short lists do not include them all.
This may help.

http://www.curecelia...SymptomList.pdf
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 "Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

 

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

 

 

 

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.  bliss-smiley-emoticon.gif

 

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#15 IrishHeart

IrishHeart

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Posted 02 January 2013 - 07:26 AM

Updated 1/2/13

Some advanced members felt this explanation of using the multi-quote option would be useful to new members.

http://www.celiac.co...se/#entry846077
  • 0

 "Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

 

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

 

 

 

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.  bliss-smiley-emoticon.gif

 

Celiac.com - Celiac Disease Board Moderator



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