Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Discrimination


AGARCIN

Recommended Posts

AGARCIN Newbie

I think I was discriminated against at work.

I work at a preschool and was recently written up for eating outside food (from home). I have been working at this facility for about 8 weeks and last week the owner was telling me that we can eat breakfast with the kids and I told her, "Oh, I have celiac disease. I can't really eat anything from the kitchen." She replies, "That's okay. I understand." So, I assumed I could bring my own food to eat with the kids since she knew and didn't say anything about outside food. The following week the Directors pulled me aside and explained to me that we couldn't bring outside food because kids have allergies. I was very sympathetic and assured them that I was not intentionally breaking any rules, instead I was given conflicting information. They proceeded to write me up and when I assured them that I understood food allergies since I had celiac disease, one of the directors made the comment, "Oh, well while you might experience some mild discomfort, these kids could die." I was appalled. Mild discomfort? I replied, "It's more than mild discomfort. Please don't trivialize my illness." He chuckled like I was kidding.

So, I want to talk to the owner about making "reasonable accommodations" since I am protected by the Americans with Disabilities Act. I am not asking for much, just the ability to bring my own lunch on days I am entitled to a lunch break, but I think they will refuse it.

What do I do?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I found this Open Original Shared Link

This is better - Open Original Shared Link

I really don't have any other advice, other than try to talk about this with your supervisor, and bring succinct medically relevant documentation and studies.

StephanieL Enthusiast

While I do understand the POV of the center, I don't see how you bringing in food would violate anything as long as you ate it away from the children. Maybe offer to brush your teeth after too just as an extra precaution. I wonder if they allow any of the students to bring in food, because if they do, there is no reason you should not be able to.

I am it felt like he was trivializing your illness but I am sure a) it wasn't meant like that and B) he doesn't understand they full extent of how badly you can feel after eating gluten. So maybe a little education and maybe a Dr's letter expelling it to him may be of use to you. I am sure they are just trying to do what they think is best of the students but again, if they are allowing outside food brought in by them, it's no different (actually probably worse for them as I am sure you would be more careful!)

Good luck!

Christine0125 Contributor

I would think there are some kind of standards that the kitchen must abide to in order to serve children with allergies. Do they have a list of safe foods that can be provided to you to make sure your outside food fits in with the guidelines of what is allowed in the center (no peanuts, etc)?

StephanieL Enthusiast

I would think there are some kind of standards that the kitchen must abide to in order to serve children with allergies.

There are not. Many parents with kids with life threatening food allergies pack for the kid....always. As in a no food that's not from home rule. It would be nice but the reality is, just the these restaurants, there is no exclusive kitchen for allergy issues and often cross contamination isn't even considered when ordering through the sources the schools have.

Trudyjerry Rookie

I'm sorry to hear about the problem at work. I feel for you. Having several school aged kids myself, let me explain a few things to you:

"That's okay. I understand." Actally meant, "I understand why you won't be eating with the kids."

As far as that director trivializing what you go through when you get glutened, that just means that they are more worried about upset parents or parents that might sue if something happens to their kids.

I don't think they were purposely discriminating against you. At least I would hope that it wasn't anything personal against you. I don't know about the disabilities act. I would try to explain to them rationally first before it gets that point but you do what you feel is necessary.

Good luck to you and I am sorry they did that to you.

ravenwoodglass Mentor

There are not. Many parents with kids with life threatening food allergies pack for the kid....always. As in a no food that's not from home rule.

Then I would want to know why you can't bring your food in. You can't safely eat the food they serve and are no different from the kids that pack a lunch. I could understand them not letting you bring in food that they know a particular child is allergic to but they can't expect you to just not eat during your shift if it is a shift length that legally requires you to have a lunch break. If you are officially diagnosed by your doctor bring in a note from him/her about your need to eat safely. Celiac is covered under the ADA and IMHO it is discrimination.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Googles Community Regular

Hi.

Your situation really sucks. It sounds like there was miscommunication here. (Thought during the meeting with the boss that was just plain rude). Sadly, there are steps that are required to get accommodations. You can't just come in and say that you have something and go about what you want. If the childcare facility has an HR department that is who you want to talk to. You want to bring in a letter from your doctor stating that you have celiac disease and what you have to do to stay healthy. Then you talk with your employer about accommodations. Just going and doing it on your own, while makes sense, isn't how the law works. Some places will be okay with that, but others will be sticklers and make you go through the whole process. It sounds like your workplace is one of those places. I would think they would have a staff lounge where you could eat your lunch away from the children and then wash your hands before going back to work with the children. If you are not diagnosed by a doctor (and your doctor wont diagnose you with the changes in your health) they you are out of luck. There is not protection required if you are not diagnosed by a doctor (which is why for some of us it is important to be diagnosed by a doctor). I hope you get this all worked out.

Addition: If they are being prickly about this they don't have to provide you with accommodations until you have officially met with them and provided them with the paperwork.

anabananakins Explorer

You should be able to bring in food that meets your needs so long as it doesn't contain anything that will harm the children. I've been on prac in a preschool and they have a no nuts, no fish, no sesame seeds rule. That makes it a little tricky for me (I rely on nuts as a snack a lot) but I can work around it. I can see how he's more worried about anaphalactyic reactions, but he shouldn't deny your right to eat a safe meal.

sandsurfgirl Collaborator

There is no way they can deny you safe food. You need to sit down with the boss and have a serious conversation. Explain that celiac disease is a serious autoimmune condition that can make you extremely ill. It CAN kill you, just not as fast as anaphylaxis.

This is extremely rare, but my GI (one of the handful of GI docs who actually know about celiac) told me about a patient of his who had a celiac crisis. Her immune system went into overdrive after she was glutened and started shutting down her organs. She was hospitalized for a month and has to take strong immunosuppressants to stay alive. She is a mother to young children and this story just makes me so sad.

There is someone on this board who had their colon explode on them and they have an ostomy bag.

Celiac reactions are serious, just as serious as any allergy. If you are exposed repeatedly it will be very dangerous for you.

You must be able to bring safe food to work. They can give you guidelines so that you dont' bring stuff that can hurt the children. You can eat it away from them. But they cannot deny you safe food.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,399
    • Most Online (within 30 mins)
      7,748

    Hoyt Marquis
    Newest Member
    Hoyt Marquis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.