Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Discrimination


AGARCIN

Recommended Posts

AGARCIN Newbie

I think I was discriminated against at work.

I work at a preschool and was recently written up for eating outside food (from home). I have been working at this facility for about 8 weeks and last week the owner was telling me that we can eat breakfast with the kids and I told her, "Oh, I have celiac disease. I can't really eat anything from the kitchen." She replies, "That's okay. I understand." So, I assumed I could bring my own food to eat with the kids since she knew and didn't say anything about outside food. The following week the Directors pulled me aside and explained to me that we couldn't bring outside food because kids have allergies. I was very sympathetic and assured them that I was not intentionally breaking any rules, instead I was given conflicting information. They proceeded to write me up and when I assured them that I understood food allergies since I had celiac disease, one of the directors made the comment, "Oh, well while you might experience some mild discomfort, these kids could die." I was appalled. Mild discomfort? I replied, "It's more than mild discomfort. Please don't trivialize my illness." He chuckled like I was kidding.

So, I want to talk to the owner about making "reasonable accommodations" since I am protected by the Americans with Disabilities Act. I am not asking for much, just the ability to bring my own lunch on days I am entitled to a lunch break, but I think they will refuse it.

What do I do?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I found this Open Original Shared Link

This is better - Open Original Shared Link

I really don't have any other advice, other than try to talk about this with your supervisor, and bring succinct medically relevant documentation and studies.

StephanieL Enthusiast

While I do understand the POV of the center, I don't see how you bringing in food would violate anything as long as you ate it away from the children. Maybe offer to brush your teeth after too just as an extra precaution. I wonder if they allow any of the students to bring in food, because if they do, there is no reason you should not be able to.

I am it felt like he was trivializing your illness but I am sure a) it wasn't meant like that and B) he doesn't understand they full extent of how badly you can feel after eating gluten. So maybe a little education and maybe a Dr's letter expelling it to him may be of use to you. I am sure they are just trying to do what they think is best of the students but again, if they are allowing outside food brought in by them, it's no different (actually probably worse for them as I am sure you would be more careful!)

Good luck!

Christine0125 Contributor

I would think there are some kind of standards that the kitchen must abide to in order to serve children with allergies. Do they have a list of safe foods that can be provided to you to make sure your outside food fits in with the guidelines of what is allowed in the center (no peanuts, etc)?

StephanieL Enthusiast

I would think there are some kind of standards that the kitchen must abide to in order to serve children with allergies.

There are not. Many parents with kids with life threatening food allergies pack for the kid....always. As in a no food that's not from home rule. It would be nice but the reality is, just the these restaurants, there is no exclusive kitchen for allergy issues and often cross contamination isn't even considered when ordering through the sources the schools have.

Trudyjerry Rookie

I'm sorry to hear about the problem at work. I feel for you. Having several school aged kids myself, let me explain a few things to you:

"That's okay. I understand." Actally meant, "I understand why you won't be eating with the kids."

As far as that director trivializing what you go through when you get glutened, that just means that they are more worried about upset parents or parents that might sue if something happens to their kids.

I don't think they were purposely discriminating against you. At least I would hope that it wasn't anything personal against you. I don't know about the disabilities act. I would try to explain to them rationally first before it gets that point but you do what you feel is necessary.

Good luck to you and I am sorry they did that to you.

ravenwoodglass Mentor

There are not. Many parents with kids with life threatening food allergies pack for the kid....always. As in a no food that's not from home rule.

Then I would want to know why you can't bring your food in. You can't safely eat the food they serve and are no different from the kids that pack a lunch. I could understand them not letting you bring in food that they know a particular child is allergic to but they can't expect you to just not eat during your shift if it is a shift length that legally requires you to have a lunch break. If you are officially diagnosed by your doctor bring in a note from him/her about your need to eat safely. Celiac is covered under the ADA and IMHO it is discrimination.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Googles Community Regular

Hi.

Your situation really sucks. It sounds like there was miscommunication here. (Thought during the meeting with the boss that was just plain rude). Sadly, there are steps that are required to get accommodations. You can't just come in and say that you have something and go about what you want. If the childcare facility has an HR department that is who you want to talk to. You want to bring in a letter from your doctor stating that you have celiac disease and what you have to do to stay healthy. Then you talk with your employer about accommodations. Just going and doing it on your own, while makes sense, isn't how the law works. Some places will be okay with that, but others will be sticklers and make you go through the whole process. It sounds like your workplace is one of those places. I would think they would have a staff lounge where you could eat your lunch away from the children and then wash your hands before going back to work with the children. If you are not diagnosed by a doctor (and your doctor wont diagnose you with the changes in your health) they you are out of luck. There is not protection required if you are not diagnosed by a doctor (which is why for some of us it is important to be diagnosed by a doctor). I hope you get this all worked out.

Addition: If they are being prickly about this they don't have to provide you with accommodations until you have officially met with them and provided them with the paperwork.

anabananakins Explorer

You should be able to bring in food that meets your needs so long as it doesn't contain anything that will harm the children. I've been on prac in a preschool and they have a no nuts, no fish, no sesame seeds rule. That makes it a little tricky for me (I rely on nuts as a snack a lot) but I can work around it. I can see how he's more worried about anaphalactyic reactions, but he shouldn't deny your right to eat a safe meal.

sandsurfgirl Collaborator

There is no way they can deny you safe food. You need to sit down with the boss and have a serious conversation. Explain that celiac disease is a serious autoimmune condition that can make you extremely ill. It CAN kill you, just not as fast as anaphylaxis.

This is extremely rare, but my GI (one of the handful of GI docs who actually know about celiac) told me about a patient of his who had a celiac crisis. Her immune system went into overdrive after she was glutened and started shutting down her organs. She was hospitalized for a month and has to take strong immunosuppressants to stay alive. She is a mother to young children and this story just makes me so sad.

There is someone on this board who had their colon explode on them and they have an ostomy bag.

Celiac reactions are serious, just as serious as any allergy. If you are exposed repeatedly it will be very dangerous for you.

You must be able to bring safe food to work. They can give you guidelines so that you dont' bring stuff that can hurt the children. You can eat it away from them. But they cannot deny you safe food.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      1

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. - Jmartes71 replied to Jmartes71's topic in Doctors
      6

      Second chance

    3. - trents replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Concerning GP advice

    4. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      327

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,642
    • Most Online (within 30 mins)
      7,748

    Jen Radford
    Newest Member
    Jen Radford
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.