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Feel Weird- 3Rd Week Of gluten-free Diet
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I have felt horrible my entire life, and have had hundreds of tests done to figure out why my intestinal tract reacts the way it does. I stopped having tests done about 8 years ago because I couldn't afford it anymore, and was told I had IBS. I recently have been doing some more research and found out I was 0- blood type, and that I should try a Gluten Free diet. I've been gluten-free for about 3 weeks now, and as of this past week I feel as if I'm lacking something. I can't pin point exactly what I'm feeling but I feel a little nauseous, dizzy, and get sweats. Has anyone else felt this? The past 2 days I've started taking a multivitamin and some fish oil. I'm not sure if it's helping or making my symptoms worse. I have yet to see a doctor because I just got insurance, and have not seen a nutritionist. I've been getting most of my information from forums. Thanks for listening.

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What kinds of foods are you eating?

Oftentimes, whole unprocessed foods make a huge difference compared to a diet w/ a lot of processed foods, made from a long list of ingreds.

It also makes it far easier to find which foods might be problematic.

Lactose, casein (milk sugar & a milk protein) & soy issues are pretty common around here.

Something you've been fine eating before might not agree w/ you while healing.

It could be as simple as, say the one 'replacement product' (gluten-free reformulations of cookies, crackers, bread etc) that uses some tapioca flour, or mung bean or fava bean flour or some other ingred that you just weren't exposed to much before might have always been disagreeable but never came up.

It's a lot simpler to find out when eating a simple diet.

Or maybe the current issue 3 wks in is from something else - ppl w/ pets might try a different pet food that's on sale & find out later it's got gluten & has been affecting them.

All sorts of unlikely things might be involved & ppl here will help you find them, so don't be daunted by the scope (easier said than done - we've all felt overwhelmed early on).

Gotta start w/ reviewing current diet.

So, whatcha eatin'?

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I call what you're feeling gluten withdrawal. I felt like that & then some. It lasts different for different people. But you will find plenty of discussion on it here in threads. Use the search box & put in gluten withdrawal or just withdrawal.

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I am three weeks into gluten free and can relate. I felt so good for the first week. The swirls in my head are quieter, but they are still there.

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Withdrawal. First 6 weeks can be tough for a lot of people. Stick with it, it gets better!

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Yep, I think it's a sort of withdrawal. I had the same thing a couple weeks after I quit. I suddenly had crazy headaches and was wicked dizzy with terrible stomach pains. I felt like I was hung over! What I read is the gluten submits a toxic layer to your stomach lining. When you quit the gluten is starts to peel away and enter your stomach for a bit before it passes. Just stick by your water bottle and it'll pass. Keep up the good work!

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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