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Pregnant And Worried

LindsayS

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LindsayS Newbie
LindsayS
Posted

I am so glad I came across this website. I am 16 weeks pregnant. I have never been officially diagnosed with celiac mainly because I don't have must faith in the medical community when it comes to food allergies and because I never really thought I had "celiac" until this pregnancy. I self diagnosed with obvious DH (skin rash), lethargy, fogginess, and severe mucus response with sore throat, headache, etc. I have been gluten-free (I say that mildly because I tend to cheat and pay for it) for a year and a half.

This is my second pregnancy. I first started noticing symptoms after the birth of my first daughter while fighting candida. I had thrush for months and had to completely change my diet. It was during this time that I realized my real problem was gluten.

Now that I am pregnant again, it seems as though I can't tolerate even the slightest bit of gluten. I have been more careful than usual because I have become very sick during this pregnancy due to eating it. I am on the right track now and committed to the lifestyle but I am still very worried about the baby. Could I have done irreversible harm? Is the baby not getting the nutrients it should be? Wondering if I should see some sort of specialist. I am taking a prenantal but haven't been consistent. Any advice would be appreciated.

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Skylark Collaborator
Skylark
Posted

Hi and welcome! Women with celiac usually have perfectly healthy babies. The placenta is very aggressive about getting nutrients to your baby.

You might talk to your doctor about testing for B12, vitamin D, and iron as those are most commonly low. Obviously you need to be more consistent with the prenatal and if there are any deficiencies in the blood testing your obstetrician should be able to sort it out.

If you had obvious DH you are definitely celiac. I'm glad to hear you will be gluten-free now. It's much better for you. :)

LindsayS Newbie
LindsayS
Posted
  • Author

Thank you Skylark- I will ask about the testing for vitamin levels. If they are ok, it will ease my mind. As far as the DH, I have had blistery, scaly, extrememly itchy bumps or almost hives on both legs for 3 years or so. It was so bad, I would scratch so hard at night and it would leave scars. I didn't even want to wear shorts or skirts in the summer. When I stopped eating gluten, it healed within a month. Eliminating gluten was such a drastic change for me. I just have to stay commited for myself and the baby.

Skylark Collaborator
Skylark
Posted

That's DH for sure! I hope you can get the testing easily and that things come back OK. I'm sure your baby is doing fine.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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