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12 Year Old

MJH

By MJH
in Coping with Celiac Disease

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MJH Newbie
MJH
Posted

I have a 12 year old that is scared to eat anything not prepared by me. If we go to a restaurant that offers gluten free options she will not eat for fear she will get gluten which results in nausea, pain and hours of throwing up. I cant blame her but we like to travel. Any suggestions?

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Juliebove Rising Star
Juliebove
Posted

I know the feeling. Gluten isn't an issue for me but I can't tell you how many times I have gotten food in a restaurant only to find something in it that I can't have. Even after I thought I was clear to the wait person.

It might help if you could have the wait person or the manager have a talk with her. At The Old Spaghetti Factory, the manager came to our table, told us she would prepare our food herself and that they used a special pan to cook the pasta. This after my dad told us that the pasta couldn't possibly be gluten-free because they cooked it in the same water. Turns out my dad is wrong about a LOT of things but he talks like he is an expert so people tend to believe him. Actually the gluten-free food there is prepared in a separate area of the kitchen even.

At home we tend to frequent the same restaurants. Ones that cater to people with food allergies and have no problems making special meals for us.

But for traveling? Ah, that can cause a problem. The restaurant is unknown and even though they do have a gluten-free menu, you have no way of knowing how well they get it. We also tend to really limit what we get in a restaurant. Fresh or canned fruit, cottage cheese (for my daughter, not me), hamburger patty, bacon, maybe some form of potato. Potatoes sometimes aren't safe.

One thing you might consider is packing some food and having your daughter eat in the car before or after the restaurant and while in the restaurant only ordering some small thing that is most likely to be safe. Like a fruit cup.

What we always packed when we traveled were small cans of green beans, canned kidney beans, canned refried beans and tortilla chips. That way we could make a meal if we needed to. We also always looked at every stop for things like individual packs of cheese, meat, fresh fruit and veg.

MitziG Enthusiast
MitziG
Posted

This is exactly the same as my 13 yr old daughter! While 3 of us have celiac, she is the one who reacts worst to cc, and so she refuses to eat anywhere but home, and it IS a challenge. What we have gotten in the habit of doing is packing snacks for her (kind bars, fruit, gluten-free pretzels, etc- and her trusty pb &j sandwiches. Yes, it is not as good a meal as the rest of us, but it is her choice and what makes her comfortable!

mayrooni Newbie
mayrooni
Posted

my son is the same way, but with tree nuts. we have slowly talked to him about it, and have had people we know and people he can trust make him meals....then we were able to move to other places once he knew it was safe...it can be scary for them.

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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      Son's legs shaking

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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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