Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

12 Year Old


MJH

Recommended Posts

MJH Newbie

I have a 12 year old that is scared to eat anything not prepared by me. If we go to a restaurant that offers gluten free options she will not eat for fear she will get gluten which results in nausea, pain and hours of throwing up. I cant blame her but we like to travel. Any suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

I know the feeling. Gluten isn't an issue for me but I can't tell you how many times I have gotten food in a restaurant only to find something in it that I can't have. Even after I thought I was clear to the wait person.

It might help if you could have the wait person or the manager have a talk with her. At The Old Spaghetti Factory, the manager came to our table, told us she would prepare our food herself and that they used a special pan to cook the pasta. This after my dad told us that the pasta couldn't possibly be gluten-free because they cooked it in the same water. Turns out my dad is wrong about a LOT of things but he talks like he is an expert so people tend to believe him. Actually the gluten-free food there is prepared in a separate area of the kitchen even.

At home we tend to frequent the same restaurants. Ones that cater to people with food allergies and have no problems making special meals for us.

But for traveling? Ah, that can cause a problem. The restaurant is unknown and even though they do have a gluten-free menu, you have no way of knowing how well they get it. We also tend to really limit what we get in a restaurant. Fresh or canned fruit, cottage cheese (for my daughter, not me), hamburger patty, bacon, maybe some form of potato. Potatoes sometimes aren't safe.

One thing you might consider is packing some food and having your daughter eat in the car before or after the restaurant and while in the restaurant only ordering some small thing that is most likely to be safe. Like a fruit cup.

What we always packed when we traveled were small cans of green beans, canned kidney beans, canned refried beans and tortilla chips. That way we could make a meal if we needed to. We also always looked at every stop for things like individual packs of cheese, meat, fresh fruit and veg.

MitziG Enthusiast

This is exactly the same as my 13 yr old daughter! While 3 of us have celiac, she is the one who reacts worst to cc, and so she refuses to eat anywhere but home, and it IS a challenge. What we have gotten in the habit of doing is packing snacks for her (kind bars, fruit, gluten-free pretzels, etc- and her trusty pb &j sandwiches. Yes, it is not as good a meal as the rest of us, but it is her choice and what makes her comfortable!

mayrooni Newbie

my son is the same way, but with tree nuts. we have slowly talked to him about it, and have had people we know and people he can trust make him meals....then we were able to move to other places once he knew it was safe...it can be scary for them.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,210
    • Most Online (within 30 mins)
      7,748

    BJ OConnor
    Newest Member
    BJ OConnor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.