Posted 24 July 2012 - 03:53 PM
Are you taking any NSAIDS? DH can be made worse for some people by taking NSAIDS and some are sensitive to salicylates. You might talk to your Dr. or allergist about it, or if you want to limit sals yourself you can go to http://salicylatesensitivity.com/ Maybe it's time to eliminate gluten entirely, then limit iodine, then consider if salicylates might be causing your hives.
Something like 1 in 100 are sensitive to salicylates, so it is possible to have Celiac and be sensitive to salicylates. I am both and I have DH. I guess that explains why Ibuprofen made my DH worse when I was taking it for the pain and inflammation of DH. Incidentally, I had hive-like linear welts in addition to the blisters of DH. Prednisone helped me at times, but nothing healed it until I went all the way gluten free. Those with DH are extremely sensitive to traces of gluten. Reactions can last weeks as far as the rash is concerned. Be aware that DH can present many ways and may resemble hives. It may be helpful to look at the DH photo bank and read the DH thread.
I now tolerate both iodine and salicylates in foods and I am free of DH.
Posted 25 July 2012 - 09:40 PM
If anything this might give you some thoughts and ideas to run by your doctor. I hope you get some relief soon.
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease
celiac disease(positive IgA tTG, no biopsy- 11/2010)
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
Posted 27 July 2012 - 10:10 AM
Posted 28 July 2012 - 11:46 PM
Walking every day for an hour also helps, and eating lots of (for me low salicylate and low tannin) veggies. Hatha yoga also helps. Its been proven to positively change one's biochemistry. Being on a vegetarian diet also seems to help. So I eat lots of beans and brown rice. The beans though for me have to be white to avoid tannins. And of course well soaked and cooked.
Also its important to look at what fats you are taking. Omega 3 fish oil can really help reduce one's inflammatory response. I get the Twinlabs plain fish oil, put it in a widemouth jar and freeze it to avoid amine formation.
I use spring water rather than regular filtered water due to the coconut husks used to make the carbon filters. I don't know if you have a problem with coconut, but what they hey, if you do have salicylate sensitivity it could be a problem.
If you do have a salicylate problem it means you are sensitive to some phenols. So using things like phenol assist by kirkman labs can help. And the product Histame can help with a great variety of amines...including histamines. Tannins can be yet another problem as can oxalates.
What I am implying here is further investigation into your diet is likely needed. There are solutions once you figure out what the problem is. No matter what, IMHO you may well have a problem with an overtaxed liver due to likely leaky gut from the gluten problem. This in turn makes your body become sensitized to a whole host of foods. Then of course your liver gets overtaxed from the detritus. And then next on the list is your skin and lymphatic systems...
IMHO taking steroids is no way to give your liver and skin a chance. Its likely your body wants you to discover what is actually bothering it, rather than coverup of symptoms with drugs. At most it is a dangerous stopgap though very understandable you would want to try it, it comes at a cost. Plus in your case it just is not working.
IMHO look to the Royal Prince Alpert Hospital in Australia to give you a few clues as to what is going on and how to figure it out with their Failsafe Diet.
Meanwhile though while you still do have some symptoms of DH do get it checked out rather than get another invasive procedure into your intestines. It is a very effective and less costly and often more accurate way to get a diagnosis of celiac since its right there obvious where to take the biopsy on the skin--right next to the little clear pustule filled areas. DH and celiac go hand in hand.
No matter what, whether its DH or not, this gluten sensitivity (or celiac) could be precipitating or at least making the other itchy symptoms far worse than they otherwise would be.
Posted 29 July 2012 - 06:26 AM
Posted 29 July 2012 - 10:10 AM
We got some relief for our DD using a combination of antihistamines. Ultimately, we found she had a chronic infection of H. Pylori that we treated. Treating her H. Pylori infection seemed to help her condition, and I have since found references to H. Pylori and chronic urticaria. Our DD also has a complicated and severe gluten allergy, but the hiving issues have subsided substantially since we treated the H. Pylori, in conjunction with recognising the severity of her gluten allergy. I hope you find relief soon.
I hadn't heard that about H.Pylori and skin rashes. Do you happen to have any references for it? I think that's a very interesting connection, I take mastic gum for H.pylori. It is cheap and not an prescribed anti-biotic so I like that. It is a natural cure. It take it 3 times a day if I have problems. I seem to have a propensity for getting stomach ulcers as this is the 3rd time in 4 years for me. They always start on the left side of my stomach as I sleep on the right side a lot. So right now I am taking mastic gum and Betaine HCL with meals and before going to bed. It has already knocked the pain way back after just a few days. I'll keep taking it for a couple weeks. But I think I will continue to take it maybe once a week from now on, as a preventative, plus the Betaine HCL. H. Pylori likes low stomach acid, which I am starting to think I have. Sleeping on my left side eases the pain also. Stomach acid needs to coat the affected area to kill the H. Pylori, IMHO of course
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
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