Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Celiac

Dezzyray123

Recommended Posts

Dezzyray123 Newbie
Dezzyray123
Posted

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nay-Nay Newbie
Nay-Nay
Posted

I feel your pain. I just got diagnosed yesterday with Celiacs Disease. I feel very discouraged and scared to eat anything because a lot of foods contain gluten. I am meeting with a nutritionist who can give me more information about gluten free diets. All I know is that I must try my hardest to stick to gluten free living because the abdominal pain is unbearable.

I bought my first gluten free cracker yesterday to see how it tasted. It wasnt bad, tasted kind of bland and super dry but, it went down (with some water and prayer)... I guess I can get use to it. Keep hope, just remember that there is someone somewhere that has it way worse then us.

FYI Try looking into gluten free pastas and rices. They sell at whole foods. They are a lil more pricy but hopefully that will make your transition a little easier.

LexiBrowni Newbie
LexiBrowni
Posted

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

I completely understand what you are going through. The first few months are extremely hard, but your taste buds do get used to eating gluten free foods. Gluten free pasta is amazing and has helped me get through this a TON. It tastes almost exactly the same as regular pasta (my family can't even tell the difference). You can find it in most major grocery stores in the pasta section (I use Walmart/Publix). Also, something else you can look into is seeing if there is an actual gluten free section in the grocery store. My Walmart does in the chip/snacky area. They have granola bar-like things, sweet mixes (brownies are my personal fave), other pastas, cereals (Chex cereal is amazing), and other nice things to have. I hope this helps! It just takes some time to adjust to this new life style but it is well worth it!

P.S. - I have been gluten free now for around 5 months

eatmeat4good Enthusiast
eatmeat4good
Posted

I know it is a huge loss when you have to totally change the way you eat. You will be grieving for a while. But I think you are in for a nice surprise as soon as you start trying gluten free pasta's. They are excellent. My son says they are better than "Regular Pasta" and he really liked his pasta! That is the one thing we had no trouble replacing on the gluten free diet. Wish you the best of luck. We like Ancient Harvest pasta, but there are a whole lot of brands to try. Good luck! :)

  • 2 weeks later...
shauniscrazy Explorer
shauniscrazy
Posted

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

Hi im a 16 year old guy and im sorry you feel so bad. I just recently found out im allergic to gluten and i love pasta type foods too but i cant have it anymore either lol :P but there is gluten free noodles you can buy which i am going to try asap

mamaw Community Regular
mamaw
Posted

Welcome to all of you young new celiac people.. Now, I'm an old celiac person but my two grandkids are 11 & 14 both celiac.. So I go to extremes to find "REAL " tasting gluten-free goodies plus I test market gluten-free goodies. So within this forum there are many conversations for newbies to celiac..All very good & Very helpful.

Here are some of the better gluten-free things..

Pastas:

Bi Aglut ( our fav)

Tinkyada

Le Veneizane ( sp may be off)

Schar

``````````````````````````````````````````````````````````

Egg noodles:

The best to date is Seitenbacher gluten-free egg ribbons...

``````````````````````````````````````````````````````````````````````

Cont'e:

pierogi's

ravioli

`````````````````````````````````````````````````````````````

English muffins, bagels pizza & much more

Joan's gluten-free great bakes

`````````````````````````````````````````````````````````````````````

Egg rolls, Asian dumplings

Feel Good Foods

``````````````````````````````````````````````````````````````````

Gravy mixes & sauces

Full Flavor Foods

``````````````````````````````````````````````````

Donuts, crossiants & more

Celiac Specialites

````````````````````````````````````````````````````

cakes brownies & such

123 gluten free

Betty Crocker

King Arthur

Namaste

many more available

```````````````````````````````````````````````````````

Ready belnded gluten-free flours

Better Batter

Jules

meister's

omata living flour

Tom Sawyer

many more

``````````````````````````````````````````````Breaded fish & Shrimp

Starfish

```````````````````````````````````````````````````````````

Depending where you all live these items may need to be ordered by mailorder....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Haugeabs
      - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil. Gluten free but not certified gluten free. Soy free, GMO free.
    2. trents
      - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even...
    3. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    4. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    5. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,413
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Haugeabs
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Haugeabs · Posted

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By trents · Posted

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.