Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did You Know?


StephanieL

Recommended Posts

StephanieL Enthusiast

I'll start with this: My DS was dx 2 years ago. Been gluten-free since. I am a perpetual researcher and have figured out things that the Dr's didn't. I think I know my way around Celiac.

So my DH's Aunt was over yesterday. She was recently dx...via saliva...with a long list of issues. So she is now off soy, gluten and a host of other things including beans, spinach, all nuts all seeds (she is vegan and has been for a long time). They told her to eat sprouts for protein...at 4 grams pre cup. I don't even want to know how many sprouts she was eating.

So she decided to school me in Celiac and gluten-free :blink:

Did you know:

It isn't genetic?

There is gluten in envelopes? (I know this is a common urban legend)

Corn gluten is the same as wheat, rye and barley gluten.

If it's whole grain, it's wheat.

She had a few others (her pharmacist said since DS is allergic to bananas he MUST be allergic to latex. I know this IS true for some but it is reverse. If you are allergic to latex you are often allergic to bananas, if you're allergic to bananas you MAYbe allergic to latex.) She was arguing with me about this saying "MY PHARMACIST SAID IT'S TRUE!" to which I reply "My ALLERGIST said it is NOT and I tend to think HE has a little more knowledge about ALLERGIES!"

I was so frustrated at the end of this visit. Never mine the metric ton of crappy plastic junk toys she came with!

Thanks for letting me vent!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Giggle giggle snort. :blink::lol: Glad the visit went well. LOL Oh my...

mommida Enthusiast

Oh crap! no wonder so many people completely flip out when they are first diagnosed :rolleyes:. (Myself included) :ph34r: :ph34r:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      323

      Terrible Neurological Symptoms

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Second chance

    3. - julie falco replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Schar's products contain wheat!

    4. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Second chance

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,608
    • Most Online (within 30 mins)
      7,748

    newOneHere
    Newest Member
    newOneHere
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • HectorConvector
      Awful terrible burning pains recently. Got suicidal thoughts from this crap yet again. I'm going to try doing low carb again as meat and veg type food has in the past reduced it. This is doing my head in. 
    • Mari
      Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your   health and keep healthy. 
    • julie falco
      thank you that is good to know that it is safe for celiac people
    • Jmartes71
      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped  up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the gluten challenge! Why the hell would I eat Gluten when im Celiac coming to them for answers when my body is falling apart? Glutenfree since 1994. They did unnecessary colonoscopy KNOWING im glutenfree. A celiac specialist would know that would be pointless to do if not eating gluten and it was done!Im so angery with that hospital for not explaining celiac disease and withholding information, Downplaying my ailments , mental distress,  causing more health issues, ect. All this could have been avoided If medical records were sent, when asked, explained and done properly. Im so angery.I do have the celiac dietitian on here in June and linked her up to my current health care yesterday, fingers crossed hopefully with that, the understanding of celiac is explained it's not just a food allergy will be understood. 
    • Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.