Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did You Know?


StephanieL

Recommended Posts

StephanieL Enthusiast

I'll start with this: My DS was dx 2 years ago. Been gluten-free since. I am a perpetual researcher and have figured out things that the Dr's didn't. I think I know my way around Celiac.

So my DH's Aunt was over yesterday. She was recently dx...via saliva...with a long list of issues. So she is now off soy, gluten and a host of other things including beans, spinach, all nuts all seeds (she is vegan and has been for a long time). They told her to eat sprouts for protein...at 4 grams pre cup. I don't even want to know how many sprouts she was eating.

So she decided to school me in Celiac and gluten-free :blink:

Did you know:

It isn't genetic?

There is gluten in envelopes? (I know this is a common urban legend)

Corn gluten is the same as wheat, rye and barley gluten.

If it's whole grain, it's wheat.

She had a few others (her pharmacist said since DS is allergic to bananas he MUST be allergic to latex. I know this IS true for some but it is reverse. If you are allergic to latex you are often allergic to bananas, if you're allergic to bananas you MAYbe allergic to latex.) She was arguing with me about this saying "MY PHARMACIST SAID IT'S TRUE!" to which I reply "My ALLERGIST said it is NOT and I tend to think HE has a little more knowledge about ALLERGIES!"

I was so frustrated at the end of this visit. Never mine the metric ton of crappy plastic junk toys she came with!

Thanks for letting me vent!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Giggle giggle snort. :blink::lol: Glad the visit went well. LOL Oh my...

mommida Enthusiast

Oh crap! no wonder so many people completely flip out when they are first diagnosed :rolleyes:. (Myself included) :ph34r: :ph34r:

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.