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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How To Celebrate?
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5 posts in this topic

I was diagnosed with a wheat allergy when I was 9 years old. I'm 14 now. I found Out this morning that I no longer had that allergy. I suspected It when I had fondue with friends a whole ago. I never asked what went in the fondue...turns out there was beer and soy sauce. And rice krispies and cheesecake with crust for chocolate fondue. I ate it all with no problem.

Yesterday I went in for a blood test to see if I still had it. It's completely gone. They called this morning to tell me.

How do I celebrate? I had a tortilla wrap for lunch with beans and cheese. Boy how I missed that taste.

Oh and how do I tell my friends/family that I'm no longer allergic to wheat? When they see me eating stuff with wheat, what do I say?

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First you asked for advice about non-Celiac gluten intolerance. Now you say you had a wheat allergy?

It is possible, from what I have seen, to out grow an allergy.

While I am happy for you that that supposedly has happened, don't you think its a bit odd to come on a website for Celiac Disease (which can't be out grown) and tell us all the "wonderful' things you can now eat?

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If you were diagnosed with Celiac and have been gluten free your blood tests will come back negative. Ask your parents or guardians to get a copy of the doctor's records from when you were 9. If you were diagnosed celiac you are damaging your body eating gluten whether you feel it or not.

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I agree.

Find out if you were "allergic" or if you have a gluten intolerance (celiac). They are very different.

If you are intolerant and have been gluten free for a while, the antibodies may not show up in your blood for months. Your tests could all come back negative, even though you are still sensitive.

Symptoms may not show up right away too, but damage is still being done internally.

Do NOT go crazy eating gluten until you find out what you were originally diagnosed with.

Cara

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I agree. As someone who was told I had a "wheat allergy" by my mom 30 years ago, and that I "outgrew it" only to be dx with celiac at age 37...definitely find out what tests were done specifically and what your dx was.

Don't take your lack of reaction as a sign that it is gone. Celiac often goes "dormant" during teen years- no obvious symptoms but it is still doing damage.

And blood tests done now would always be negative. You have to be regularly consuming gluten to test positive.

If it turns out you had a true allergy, and you DID outgrow it- simpnly say the doctors have told you that you outgrew it. And eat some donuts and pizza for me.

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      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
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