Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hoping To Find Answers.


Boatguy

Recommended Posts

Boatguy Newbie

Hello. This is my first post. (I think)

I have celiac disease. I have been symptom free for a long while. My wife and I were so happy that I was symptom free because we struggled with gluten and CC for a long time.

The other day I found myself with terrible symptoms. Of course we immediately tried to determine the cause. We seldom go to restaurants because of frequent cross contamination. And my diet has not changed one bit. There was only a single change we can come up with. That change is in one of my BP medications.

When my wife picked up my Carvedilol/coreg the pharmacist said, "These pills look different, but don't worry, they're the same." Okay, we have heard this about medications before and it never caused a problem.

I take two of these sort of large pills per day. If the binder has been changed to one related to wheat gluten this is the source of my problem.

Thing is, it took ages to get my BP under control using a combination of meds.

Anyone have suggestions? Thank you very much for your assistance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

They probably gave you a genaric form of the pill. You ought to call the pharmacy and ask them who the manufacturer is and then call them.

Another thought i had would be you could be developing a new intolerence to something. It happens ya know?

Adalaide Mentor

I will never, under any circumstances, fill a prescription without verifying with the manufacturer first that it is gluten free. I only take one medication on a regular basis as this point, every month when I refill it I verify that the manufacturer hasn't changed. I also call the manufacturer every three months to verify that it continues to be gluten free. I'm also possibly the most paranoid person I know. I do occasionally need to fill a prescription that I will only fill once, steroids, antibiotics, that sort of thing. I find that I frequently have to pharmacy hop to find a manufacturer I can trust, or even contact sometimes. (There is one in India without a US number, I can't wait for an email from India to fill an antibiotic or steroid, I need a human on the phone immediately.)

I would call the manufacturer of the pills right away tomorrrow. If you need to call your doctor for a sooner than usual refill, do so. Call around to local pharmacies, find out what manufacturer they use for that prescription or if necessary have your doctor prescribe the brand name. When you go in to drop off your prescription then again before you pay, verify the manufacturer. Paranoid? Yes. But really, is it worth being looked at like you're a weirdo to avoid what you're going through now?

ncdave Apprentice

use google an do a search for pill id, it"s pretty easy to find the mfg. then call ! my antibotics changed color, the doc assured me they were ok They were not ok !!!!

Boatguy Newbie

Thanks, everyone.

We are still working on a solution. I quit that particular Carvedilol pill. I see my doctor on Thursday. Sometimes things don't work out as we wish, especially down in the sticks where we live.

Ed in Baja Rookie

You might consider at least temporarily eating a vegan diet...I lost a ton of weight and bp dropped too.

dreacakes Rookie

What were your symptoms? Some meds can cause inflammation in the GI tract, and cause nutritional deficiencies.

If you are interested, there are natural ways to lower high blood pressure.

This website is a fantastic resource for nutritional and health information: Open Original Shared Link

I also found this article on how a study found that a blood pressure medication caused symptoms similar to celiac. Really interesting...

Open Original Shared Link

I hope you get it figured out and feel better soon!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

    5. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,374
    • Most Online (within 30 mins)
      7,748

    Lynt
    Newest Member
    Lynt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.