Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Worse Attack After Starting Diet And Being Exposed?
0

12 posts in this topic

First of all i do not know for sure im gluten intolerant or have celiac disease. I had a pain in my upper right rib area that felt like a tennis ball sitting in there. It was more like a constant pressure and wasn't a sever pain. I went to the Dr. and he suggested a gluten free diet and did some blood work that didn't show any other real issues.

I never really had any diarreah or really any other symptoms that i knew of until this right rib cage pressure/pain came along.

So i decideed to go gluten free and i did this for about two weeks. Whether it was mind games or not i found that even after one day i didn't really feel that pressure in my right rib so that makes me think he was on to something.

(let me add i am lactose intolerant if that ever factors into any of this)

But what i find weird is this. I went all this time and never really had any symptoms until this right rib cage pressure and started the gluten free diet. One day coming home from work i was so hungry i stopped at McDonalds and had two hamburgers and fries.Well i started feeling bad and but the symtpoms im getting NOW are not what i had ever had before.

I guess my question is this. Had i not gone gluten i am thinking the two hamburgers wouldnt have had as big a deal on my body. Dopes going gluten free even for a short time and THEN getting glutoned make symptoms worse? I have weakness in my hands when i type, i get some twithcing in mt lower calves, had some bad headaches that i think are like sinus headaches(i do have season allergies so maybe that's it),. Can it be worse trying to go free from gluten and then getting attacked? That doesn't make a lot of sense or maybe it makes a lot of sense i don't know.

I just find it real weird all the sudden i have weak muscles,twitching, maybe even a burning blood sensation, my right pinkie all the way down can go numbish and tingle as well. No diarreah, no real stomach pain, didn't even get that right rib cage pressure back i got something that felt like my body was being poisoned or attacked(of course it was).

So here i sit not knowing whether or not for sure i am anything yet this stuff is happening fast. I go from nothing at all(maybe some slight fatigue and that rib cage pain) to all the sudden i think i have serious nerve problems. My hope is that i am allergic to gluten and i can stay away from it and let my body heal properly. I just found it real weird to go from nothing to muscle fatige that fast and thinking had i NEVER started the gluten diet that may have not happened. maybe it would have but i kind of have afeeling it wuldnt of.

Hard to explain all this sorry for being all over the place.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I can tell you that a lot of people report this effect- they try the diet, and then the

first time they have gluten, the symptoms are far worse than ever before. It's

certainly not universal, but is quite common. It's really very good proof that gluten

is no good for you, if it makes you sick this way.

0

Share this post


Link to post
Share on other sites

Oh absolutely! You can research this board and find many stories of people glutened for the first time after being gluten free for even just a few weeks. I had one bowl of soup (not even a piece of bread) and was bed ridden with joint pain, fatigue and a nasty DH rash for 3 weeks. It's very possible.

0

Share this post


Link to post
Share on other sites

I have only been gluten-free for 4 months, and I was only accidentally glutened in that first month. I didn't find my reaction to be much worse than it had been in the past when I wasnot gluten-free, but it was definitely much more noticeable than it had been. I attribute that to the fact that the inflammation and symptoms were starting from a low level... let's rate it as a 2 on a scale of 1-10 for symptoms. When I was glutened, I had a reaction of a 7; going from a 2 to a 7 was very noticeable. When I was eating gluten all the time my body was in a constant state of inflammation which I would rate at a 5; so when I ate gluten and got a reaction of a 7 it wasn't such a change in symptoms to go from a 5 to a 7....

Does that make sense? LOL

Perhaps when I've been gluten-free longer I'll notice more severity in my reaction to gluten, but for now I would have to say my reactions are not worse than when I was undiagnosed.... But that's just me. :)

1

Share this post


Link to post
Share on other sites

Yep, that does happen. Bunnie is right, if your body reacts badly to gluten you shouldn't eat it. Most people with celiac don't know they have it. Symptoms are often in places besides the gut. Symptoms in other parts of the body are sometimes misdiagnosed as some other condition. Some people are "silent celiacs" and have no obvious symptoms aslo.

0

Share this post


Link to post
Share on other sites




I had 4 days of pretty rough intestinal pain and cramping after 5 weeks gluten-free and then getting glutened. The following 4-7 days were lighter symptoms followed by the last day of a 2 week recovery where I actually felt good again, as if it hadn't happened. And I didn't have a cheeseburger or anything. Mine was just cross contamination.
0

Share this post


Link to post
Share on other sites

This reaction to eating gluten, after being off of it awhile, does not happen to normal people who are eating a glutenfree diet for awhile for other reasons, such as living in a gluten free home with family members.

So it is unique to the celiac and gluten intolerant. If you had not started the gluten free diet, you would have still developed those neurological symptom reactions, but the onset may have been gradual enough that you didn't feel it all at once - we should call it the boiled frog syndrome, where the frog gets put in a pot of tap water on the stove.... and doesn't notice that the water got really hot, until it is too late.

1

Share this post


Link to post
Share on other sites

amiglute, going gluten-free for sure made symptoms of glutening suddenly worse for me. It blows my mind that six months ago I was eating pasta and garlic bread and feeling noooo pain... but this week I did a mini-gluten challenge and had a super severe reaction!!

Who knows why our bodies just realize they don't want this stuff after we go gluten-free... and if any gluten sneaks back in, the body knows how to tell us loud and clear, "Oh hail no!"

OK that's my very scientific explanation of it lol...

1

Share this post


Link to post
Share on other sites

I had cramps and a D attack this Monday morning... And the different thing I ate was a bloody "gluten-free" mini pizza crust. Yeah, right...

0

Share this post


Link to post
Share on other sites

After my celiac diagnosis 1.5 years ago, I went gluten free. I was accidentally glutened once soon after and not again until a few weeks ago. Both times I had absolutely no reaction! Sometimes a little part of me wonders whether I truly do have celiac...but in my mind I know that I do. Weird. :blink:

0

Share this post


Link to post
Share on other sites

"Does going gluten free even for a short time and THEN getting glutoned make symptoms worse?"

It did me! I think it is too sick on full time gluten to let you know. But when it has a chance to recover even a bit, it will let you know! It is actually a very good thing. It is super motivating!

Diana

0

Share this post


Link to post
Share on other sites

I have been gluten free for six years, and YES, an accidental exposure to gluten brings a swift and extremely unpleasant reaction. And, 1desperateladysaved, it is a very strong motivator.

I have learned so much from you people on this site. I don't know how I would have ever gone from my original "I will never be able to eat anything" to "It's just routine" without y'all. Thanks a million times.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,893
    • Total Posts
      919,525
  • Topics

  • Posts

    • Gluten does WHAT to the brain?
      My first thought was how many people that have been labeled as mentally ill or psychotic actually have Celiac Disease and never get diagnosed?  Their whole lives spent battling these conditions, being flooded with various meds and no one looks at their diet or does other testing!  It really is tragic.  I always wondered whether Patty Duke was an un-diagnosed Celiac.  She was finally diagnosed with bi-polar and ended up dying of a perforated intestine, at the young age of 69.  Ya gotta wonder........
    • Desperately Seeking DISARONNO!
      I think the company knows what the ingredients are better than us.  If you mean Amaretto, I have had it.  
    • Gluten free before biopsy???
      My doctor required me to continue eating gluten before the endoscopy for biopsy. She did say I could let up "a little" to ease some of the terrible pain I was having, but wanted me to eat gluten-containing foods every day until the biopsy. As it turned out, they were able to get me in quickly, so it was really only a few days for me. Both bloodwork and biopsy confirmed the diagnosis and now I am happily gluten-free! It has been a challenge, but having a gluten-free kitchen, checking labels on foods and being super-careful when going out has worked wonders. I am not 100% recovered yet, but getting energy back a bit at a time as my nutrition status improves. We don't eat out much - mostly at vegan places that declare they are gluten-free (although I still eat chicken, eggs, milk, and beef sometimes at home). One day, I'll go somewhere else - but not without checking first! Best of luck to you. I think it important to always double-check with the doctor when there are any questions at all. My doctor welcomes questions and I hope yours will too.
    • Gluten does WHAT to the brain?
      Thanks for posting I was just looking at this a short time ago. Something I found interesting was the last line of the article- " The psychosis that the woman experienced was an extreme condition and very unique, Fasano said. " While not common I am not sure that it is that unique.  There is a fair amount of research that has been done on the effects of gluten on the brains and nervous systems of celiacs.  Doing a search with the words neurological and celiac at places like Lancet, PubMed and the NIH can bring up some really interesting studies. Thankfully this impact is slowly becoming more common knowledge in the medical circles. Many of us have experienced in our families or first hand the way that the antibodies can impact our mood and thinking. It does seem miraculous when the clouds finally lift. I wish more doctors would test for celiac before pulling out the prescription pad, especially with kids.
    • Desperately Seeking DISARONNO!
      If you are referring to Amaretto Disaronno, then I can tell you that I have had it a couple of times since being diagnosed in 2005 and never had a problem with it. I am very sensitive too and react strongly to cc.  I do not drink much variety in the way of alcohol but red wine and this seem to be perfectly fine!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,938
    • Most Online
      1,763

    Newest Member
    ckrlink1
    Joined