Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed And Need Tips On How To Handle An Upcoming Event


tspiggy

Recommended Posts

tspiggy Apprentice

I wasn't entirely sure where to post this question so if I'm in the wrong place I apologize. Bear with me; I'm a newbie.

I'm now on day 6 of my new gluten-free life and am discovering that because much of my diet already consists of whole foods it's not as difficult as I originally expected. Avoiding cc because I share a kitchen with gluten eaters is the bigger hassle but again not terrible because my husband and daughter are helping. I'm still feeling emotionally fragile as I process this new, completely unexpected news but I'm hoping that will eventually subside as well. On the upside, I noticed that after only a few days the brain fog has lifted and the myriad odd little aches and pains are gone. It's amazing what gluten does to a body.

Anyway, my husband is a firefighter and we're attending his chief's 20th anniversary commemoration party on December 8th at the La Quinta hotel in our town. It's a full sit-down dinner with a limited menu offering a choice of beef, chicken or fish but I naturally worry about gluten-containing ingredients and cross contamination. We accepted the invite before my DX and because my husband is an officer he's expected to attend. I also don't want to miss the fun, so we agreed to go ahead with our plans to attend.

I'll deal with the emotional aspect of this when it comes...I'm hoping I'll have so much fun dancing and partying that I won't feel as isolated as I do now. But how do I handle the meal? I've read advice to eat before going to a party or bring something with me that I know is safe. But how do I handle an event with a dinner that's going to be prepared the same way for everyone? Should I contact the hotel ahead of time and explain my situation or seek out the maitre d' at the event and explain it to him privately? Or should I simply eat before we go and avoid the hassle altogether?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

It is possible the planned meal is gluten free, which you could find out by contacting whoever is in charge of that aspect. Of course, the potential for CC is high and it is possible that because your husband is an officer that you don't want him rushing you home sick right after you eat and that skipping their food is a better option so you can have fun! I would research your local area for gluten free restaurants or bakeries and find a nice treat for yourself if there is one. You can tuck a small sandwich or dinner container in your purse and ask for a plate as everyone is served so you don't have to watch people eat. You can also do this with something you make yourself. Whether you choose not to eat or to eat something you bring, if you want a quick way to deflect attention if someone brings it up, you can say something like I was recently diagnosed with celiac and have to eat gluten free, but we aren't here to talk about me... insert topic changer here.

Lots of people do the eat before thing. It isn't a bad plan at all, and I'm not saying it is. But come on... do you WANT to sit there and watch people eat? I wouldn't. When I was newly diagnosed I was not emotionally at a place where I would have been okay with that. If you are, great. But do only what you are comfortable with. I get that the going or not isn't optional, but how you choose to handle it is. As time goes on you'll find what works for you.

As for contacting ahead of time or at the event? Definitely ahead of time. There will be a lot going on that night and if you wait, the person you find to talk to may not be able to answer your questions or help you out at all. The last thing you want is to be hungry and unable to arm yourself with information.

GFinDC Veteran

Hi,

Defintely talk to the head chef or caterer for the event ahead of time. They may be able to prepare something for you or buy something gluten-free themselves. They could probably do at least a salad ok but maybe not the salad dressing. There may be other people at the event who are dining gluten-free also, it woudln't be unusual these days.

kareng Grand Master

Here are some thoughts on this:

1. Talk to the caterers weeks in advance and decide if they seem trustworthy or even willing -

just went to an awards dinner, had to go because Hub was winning the award. The college it was held at has an excellant culinary school. If they were catering, I was willing to take a chance. When I found out they weren't the ones making the food, I didn't really want to trust them. The food service people didn't want to try to make anything gluten-free. Turned out there was a breading on the chicken and the whole plate had gravy on it. Any banquet at a La Quinta - I'm not trusting the caterer unless I have some personal knowledge of them. I'm betting it is an outside caterer, too, so you may have to talk to the Fire Dept "party planner" first. High end caterers or places that have fancy events might be OK. If you will just be stressed about the food, don't try it.

2. Eat first - This would have worked in this case because the food they were eating didn't look very tasty. No one was very pleased with it. If you choose this option, bring a little treat that you can eat like jelly beans or chocolate chips. Avoid the appetizer table. Bring some crackers or little pieces of cheese if you need something. Grab a little plate and it will blend in. Eating first works well if its a buffet and people are not all eating at once. You can always wander away from the food.

3. Bring your own food- This caterer said they would plate and heat food for me. This probably would have worked as it was a waitress that would do it and I think she would have taken care of my food. I chose to bring a steak salad so all I needed was a big plate. Build the salad upside down in the "Tupperware" Then you flip it onto the plate and the steak and cheese are on top. It was 10 times more delicious than the other food. If you bring your food, get a large purse that the containers will fit in. You can set it down by your seat at the table when you get there or check it with the coats (so you only have to carry a little purse for cocktail hour.) Won't look as silly as my orange polka dot lunch box. I got one at Target that was meant for carrying a laptop in. Fake leather & I figure I will use it over the years so didn't mind the $30.

4. If you know who wil be seated at your table, maybe hub could mention the Celiac thing ahead of time. Everyone at our table knew so I didn't get any questions or odd looks. When you are new to this, you probably don't want to make a fuss/be noticed. I'm old enough and been doing this long enough that I usually don't care.

5. Whatever you decide on the food, you will need to find the caterer or event planner when you get there to show them where you are sitting, etc.

Hope that was helpful.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.