Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Examins Biopsy Slides?


megsybeth

Recommended Posts

megsybeth Enthusiast

So at the end of November I finally get to take my 4yo down to UCSD to see a pediatric celiac specialist. His local GI doesn't really get the disease and I had her do an endoscopy and biopsies reluctantly because I knew she was convinced he had no celiac. But I would have had to keep my son on gluten, having constant diarrhea, exhausted for three months to just see the celiac specialist, much less get in for the endo, so I decided to have local GI do it and to have someone else review the slides. I wasn't terribly surprised to have her tell me the biopsy showed no signs of celiac, except a "few scattered intraepithelial T-lymphocytes".

The hospital called that I can pick the slides up. Do you think the doctor will review them at the appointment or does another pathologist at her hospital do it? If so, should I bring them down the week before? Just want the doctor to have the most information possible to address my son's needs. Basically, he has classic celiac symptoms (diarrhea, short stature, low appetite, fatigue, motor problems, anemia, weakened and stained teeth) and I have celiac and he had a strong positive DGP IGA test, same gene as I have. I think he has it and he's gluten free but I also want his doctor to have the most information possible.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

The slides should be reviewed by the hospital pathologist who is used to interpreting these things. The doctor will probably be interested in them but you need a specialist interpretation. Your GI was reading from the pathology report when she started talking about "scattered intraepithelial T-lymphocytes" I would call the San Diego doctor you are going to see and ask for her recommendation on how to handle the slides. Perhaps the one hospital can forward to the other and you needn't get involved.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    2. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    3. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      7

      Symptoms

    4. - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Prana Organics no longer GFCO-certified

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,236
    • Most Online (within 30 mins)
      7,748

    Mary Wallace
    Newest Member
    Mary Wallace
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Let us know how things go.
    • Scott Adams
      In the thread I linked to above, one of our sponsors here sells gluten-free nuts, dried fruits, etc (a coupon that might work for you there is GF20) https://www.tierrafarm.com/
    • Scott Adams
    • Scott Adams
      I’m really sorry you’re dealing with this, and what you’re describing is very real—even if other people can’t see it. Many kids and teens with celiac disease or other autoimmune conditions can have chronic joint and body pain, fatigue, and flares that come and go, which is exactly why it can look “fine one day and awful the next.” That doesn’t mean you’re faking anything. You deserve to be believed and supported, especially at school and at home. It may help to talk with a gastroenterologist or rheumatologist who understands autoimmune pain in teens, and to let a trusted adult help advocate for accommodations when you need them. Wanting to feel like a normal kid makes complete sense—and you’re not alone in feeling this way.
    • Scott Adams
      Don't  let one bad apple spoil the bunch,. as they say. Many health care professionals are doing their jobs the best they can, so it's important to try to work with them in a respectful manner, if when they might be wrong about something.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.