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Not Sure I Can Do Much More Of This...:(

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Celiac and Discouraged

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Posted 26 November 2012 - 08:08 PM

"Anyone successfully find happiness with this? I'm failing miserably at it."

Like others, have mentioned it will take time to adjust (I'm still adjusting). It's a pain, yes. Not meaning to impose my beliefs on you and I don't know where you stand with regards to faith. But honestly for me, because of my relationship with Jesus Christ, I can still choose joy, even with this dumb disease. I've come to the conclusion that without Him, this life is just not worth living. He's the only reason I can live to face tomorrow, along with all of the challenges living with celiac presents (and that's a lot!). Message me if you'd like to hear more - I would love to share.

WOW! Not only am I thankful to hear from you and welcoming me here, but to hear you share your faith without shame. How refreshing...I couldn't agree more about the hope we have through Christ even when it doesn't seem worth fighting anymore. HE makes it possible. One of my favorite verses is, Psalm 18:32 It is God that girdeth me with strength and maketh my way perfect. Very appropriate based on what you posted. Thanks. There also a song, "Because He Lives I can face tomorrow" your post reminded me of that song. Thankful!!!!
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Celiac and Discouraged

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Posted 26 November 2012 - 08:16 PM

As if I don't struggle enough with adjusting to this lifestyle and trying to figure this out (2 weeks out), today was a disaster for me. I, honestly, am ready to give this up because it causes too much grief for others, as well.

We always go to mom's on Thanksgiving and she is very "Type A" about life, in general, and doesn't really pay attention to details and doesn't always remember things I say, etc because her mind is always running a mile a minute.

With trying to be tactful, a few days ago, I asked about the ham and turkey she was planning on having. They are gluten-free. She said potatoes and vegtables, as well...and those gluten-free. I would bring my own gluten-free bread and desert (and choke it down since I don't care for it, as it is...)so i thought we were great.

The only thing gluten free was the ham. The potatoes were some special potatoes that were full of gluten. So as I am trying to hold back tears and find alternatives, my step-father procedes to swear at me as if I am just being "picky" and on some "fad" diet.

I was in awe. I was very upset. Needless to say, even when he "apologized" it was in a loud, insincere way, and I'm probably more hurt than I've ever been in my life. It upset my kids and made my husband frustrated......

And I just can't do much more of this. I still haven't found any gluten-free foods that I actually like but also am not sure how I can live solely on basic meat and vegtables ((I'm insulin resistance so I really have to watch the fruits and, honestly, the carbs, anyway)).

I am unsure how to balance both conditions without starving...

So while I am sitting here, foodless, I am watching everyone else eat pies and ice cream cakes, I'm wondering if this is really worth it. To just avoid a potential "higher risk" of lymphoma and the like? I still sleep numerous hours and a chef I spoke with yesterday told me it took him 6 years to heal.

I'm 40 years old. I want to LIVE my life....not live it frustrated and upset and constantly being ridiculed.

I just don't know how to do it otherwise.

Anyone successfully find happiness with this? I'm failing miserably at it.

I completely understand and that is one of the main reasons I didn't go home for Thanksgiving because although family really tries to understand they can't and aren't educated about Celiac so it makes it really hard. Each day is a new chance to fight again and try to make positive changes and headway. There are ok days and there are really bad days so I'm always thankful for the night to get up and push through and fight another new day through. Thanks for sharing what we are all feeling and face each and every day with friends and family and co-workers who really are trying but it's hard.

Remember that gluten-free items aren't going to take the place of our favorites but when you realize that doing without is not a better option it does grow on you and you can manage. I have been trying different gluten free pastas and haven't really found one that I love however the rice noodles are the best I have found yet. Rice Chex have been a life saver for the crunch and the breakfast option with rice milk, which again isn't great, but better than doing without. I'm thinking of finding a nutritionist that can help put me on a better food journey than I've been on for almost a year now. I'm thankful to find your post and this great support group.
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Posted 27 November 2012 - 04:57 PM


Could it be that you ate something with cinnamon in it? Some cinnamon (especially when bought in bulk) has an anti-clumping ingredient in it that can contain gluten. It's gotten me before!

Holy crap really? I've never heard of that before, that's pretty scary. That being said though, I didn't eat anything with cinnamon on thanksgiving. It's possible that it may have been a kitchen contamination issue, since my kitchen is not a gluten free one. My mother was the one preparing all of the food. Of coarse she knows I'm a celiac and was trying her best to make me separate food, using separate utencils and taking all the usual precautions you would take to prevent contamination. But a mistake might have been made somewhere along. I'll know better next time and just prepare my own food myself to keep in bins, while staying away from what everyone else eats. I'm sure she'll understand.
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Posted 27 November 2012 - 07:13 PM

newly joined the group.this is great! wish i joined earlier. i was diagnosed 3 months ago and ive resistent to joining any type of group because of i guess my ego telling me i could do on my own not that big of a deal, but i cant relate to almost everything on this page! your advice is great really helpful

a84c72 i'm sorry your family is giving you hard time, i do think they will come around.

i am sort of having the opposite problem with my mom. she means well and i appreciate that so much, but its like answering a million and 1 questions everytime i sit down to eat i cant take it. i also made the mistake of telling her i was not feeling 100% better yet and she freaked out, and now has found someone who swears she can, and i quote....."cure me" with herbs. i have not gone in to meet with her yet but everytime i talk to my mom she brings it up. anyway i told her i wouldnt be so close minded about it but has anyone tried anything similar? i dont know if im ready to try them because im a little nervous honestly but if it will help and get me to the that 100% mark faster i guess im willing to try.

just out of curiosity how long does it take to feel normal again?

thanks for letting me vent/rant a little bit, it helped to write some of this out, thanks in advance for any advice. wishing everyone happy easy gluten-free holidays!
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Posted 28 November 2012 - 10:15 AM

Ok. My brother was diagnosed with bloodwork and had absolutely no symptoms but bloat which he attributed to normal occurances. I however have many problems all that lead up to celiac and have not been diagnosed by a biopsy (although I have had many) I did not have health insurance at my worst feeling point ( pregnant belly, muscle cramps, left side gnaw pain, horribly achey ankles,off balance, fatigued, couldn't focus or concentrate among other things ...) and from "googling" it sounded like I had possible celiac. (Didnt know bro tested positive at this point) So without health insurance I had to take matters on my own hands . Went gluten-free and within a week I had a great nights sleep and I could bend over and tie my shoes without gasping for air . felt so much better over time . belly slowly went down aches And pains went away.
That being said let's move to thanksgiving shall we.....

Sis in law rolls eyes and bitc*es she doesn't have time to deal with cross contamination on previous occasions(not TG) because bro isn't sensitive. He is probably CC'd all the time , I go to thanksgiving and figure That preparations have been made so bro has his gluten-free turkey dinner and i'll just have what he is having. I didn't ask any questions because when I start asking everyone rolls their eyes. ... And my bro says he doesn't want to hear it and my mother has said she was sick of hearing about gluten. Great huh? Supportive family. Been gluten free for 2 years and I think mom is coming around ... She bought a bag of gluten free pretzels the other day. Because she complained I never visit. I complained she didn't have anything for me to eat. . Unfortunately I would rather be by myself that way I don't have to be an annoyance. I didn't even bother telling them I got sick on thanksgiving because I figured they wouldn't want to hear it and they would think I was exaggerating because my brother didnt suffer as I did. It's not always easy to deal with . And I think my anger and depression is prob left over glutinizing symptoms from thanksgiving . Sorry to vent on your post. But I just want you to know you are not alone. I feel your dismay. At least we have each other;)

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