Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Follow Up Tests


Adalaide

Recommended Posts

Adalaide Mentor

So it has finally been a whole year. I am making an appointment because it is time to get a checkup on my liver. Because of all of the screwing around that was done, not in particular in putting off my surgery in general, but once I showed up at the ER a week before Christmas in 2011 in more pain than I had ever been in with elevated liver enzymes, I get to spend the rest of my life playing the how bad is my liver messed up game. I still get pain in my liver, but my doctor told me to give it a year. <_< It has been a year, I can link the pain to no particular food, time of day, activity or anything else. It just comes and goes. It hasn't gone away since healing from surgery either. I am just crossing my fingers at this point and hoping I am not badly enough off that I'll need to be on a transplant list eventually. (This is what they were warning me about every time I ended up in the ER... but they wouldn't just take out my freaking stupid useless gallbladder!!! GAH!) Ok, done ranting.

Since I am going to be letting someone stick a needle in me anyway, I figure I may as well bring a laundry list of tests to do. I never came up positive on the celiac blood tests, although a full panel was run twice. I don't see the point running them again, waste of money, waste of a vial of blood. I do need a follow-up ANA, blah blah blah lupus. Whatever. I figure I should be tested for vitamin/mineral deficiencies. Should I be like... test for ALL the deficiencies!!!! Or do I need to bring a list in case the PA I get stuck with is a complete and total idiot. If I need a list, I have no clue what on earth I need on it. Is there anything else I should be giving up blood for while I've got a needle in me? I feel like there is something important that I know I know, but am forgetting. Old age and all that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

Gosh I could have written that all myself. I have liver issues too and am going to the Dr. in a few weeks to be checked again for that. I am interested in reading these responses as I have the same questions you do about it all.

shadowicewolf Proficient

Eh, i generally get everything done at once because my viens are hard to get to (they are deep). On adveradge it takes the tecnition 3 or so times before they hit them.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,097
    • Most Online (within 30 mins)
      7,748

    Ann Den
    Newest Member
    Ann Den
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Your DGP-G is also high. The thing to do now would be to trial the gluten-free diet for a few months to see if there is improvement in symptoms.
    • trents
      Welcome to the forum, @Roses8721! How long were you off gluten before getting the celiac blood testing done? The testing is not valid after having been gluten free for a significant period of time. Many of your symptoms align with celiac disease.
    • rei.b
      Hello, I am feeling frustrated. I have hEDS and lifelong digestive issues but my GI PA is very focused on my celiac panel and I just want to make sure that she should be focused on that because completely changing my diet seems to have worsened my symptoms.  Symptoms are constipation, diarrhea, and acid reflux with spicy foods and certain foods like tomatoes, bell peppers, and onions. I also don't have a gallbaldder as it was removed almost a year ago. This also exacerbated my symptoms. I did have joint pain from hEDS but that was already treated with low dose naltrexone about 4 months prior to going completely gluten free. Endoscopy was abnormal but inconclusive; basically showed some inflammation - which common with hEDS. I don't have any vitamin deficiency.   Celiac Panel Results: TTG-A <0.5 U/ML Reference Range: 0.5-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-A 72.0 U/ML Reference Range: 0.2-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 TTG-G <0.8 U/ML Reference Range: 0.8-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-G 24.0 U/ML Reference Range: 0.4-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 IgG-A-M Results: IMMUNOGLOBULIN A, QN, SERUM 165 MG/DL Reference Range: 87-352 MG/DL IMMUNOGLOBULIN M, QN, SERUM 164 MG/DL Reference Range: 26-217 MG/DL   What are your thoughts, internet? Are there any questions I should be asking the PA? Thanks!
    • Roses8721
      Help. I’m spiraling. Years of extensive symptoms:  What could this be? Years of: Mildly elevated alk and alt Fatty liver Random days of feeling like I’m coming down w flu but no fever and nobody else in house sick Intermittent diarrhea Severe abdominal distension Long history of cavities and enamel deficiency Sound sensitivity Anxiety and depression Low libido Sun skin allergy Frequent fatigue ended up seeing PCP because I looked 8 mo preg. Started gluten-free diet then celiac serology negative. SW GI Dr dx me w celiac as I had been in bed for 3 days after eating gluten after cutting. GI said not to do biopsy because it was clear what was going on and added to chart. My spiral is not seeing anywhere this is done and want to see if anyone else has dealt w this. If not celiac idk what else I will do. Family history or celiac as well as a death related to this. 
    • miguel54b
      I get canker sores one hour after eating Oats, and pimples in my butt. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.