Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Follow Up Tests


Adalaide

Recommended Posts

Adalaide Mentor

So it has finally been a whole year. I am making an appointment because it is time to get a checkup on my liver. Because of all of the screwing around that was done, not in particular in putting off my surgery in general, but once I showed up at the ER a week before Christmas in 2011 in more pain than I had ever been in with elevated liver enzymes, I get to spend the rest of my life playing the how bad is my liver messed up game. I still get pain in my liver, but my doctor told me to give it a year. <_< It has been a year, I can link the pain to no particular food, time of day, activity or anything else. It just comes and goes. It hasn't gone away since healing from surgery either. I am just crossing my fingers at this point and hoping I am not badly enough off that I'll need to be on a transplant list eventually. (This is what they were warning me about every time I ended up in the ER... but they wouldn't just take out my freaking stupid useless gallbladder!!! GAH!) Ok, done ranting.

Since I am going to be letting someone stick a needle in me anyway, I figure I may as well bring a laundry list of tests to do. I never came up positive on the celiac blood tests, although a full panel was run twice. I don't see the point running them again, waste of money, waste of a vial of blood. I do need a follow-up ANA, blah blah blah lupus. Whatever. I figure I should be tested for vitamin/mineral deficiencies. Should I be like... test for ALL the deficiencies!!!! Or do I need to bring a list in case the PA I get stuck with is a complete and total idiot. If I need a list, I have no clue what on earth I need on it. Is there anything else I should be giving up blood for while I've got a needle in me? I feel like there is something important that I know I know, but am forgetting. Old age and all that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

Gosh I could have written that all myself. I have liver issues too and am going to the Dr. in a few weeks to be checked again for that. I am interested in reading these responses as I have the same questions you do about it all.

shadowicewolf Proficient

Eh, i generally get everything done at once because my viens are hard to get to (they are deep). On adveradge it takes the tecnition 3 or so times before they hit them.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,225
    • Most Online (within 30 mins)
      7,748

    Paulyw
    Newest Member
    Paulyw
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.