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Post Diagnosis, Recovery & Treatment of Celiac Disease

Discussions related to the recovery process after you've been diagnosed.


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    • lookingforanswersone
      Hi, just looked and it doesn't list that. Says : Tissue Transglutaminase (IgA)  0.30 (results - negative) U/ml (Units ) Reference range 0.00 - 10.00
    • Suze046
      Hey! Thanks and yes of course I’m posting from England. Thanks for the info 😊my count has been up and down for over a year and my platelets are slightly low too but have actually just increased again.
    • RMJ
      What is the normal range for your TTG IgA test?  The units are not standardized so they can vary from lab to lab. The normal range is usually listed as <# (less than a number), so anything less than that number is considered negative.  TTG IgA results should never be presented as 0 U/mL because this type of test has a lower limit of detection - i.e. something might be there but the test can’t see it that low.  I can get more technical if you want🙂.  
    • lookingforanswersone
      Hi, a query about testing. Background: I have existing diagnosis of pernicious anaemia (b12 deficiency) autoimmune condition. Diagnosed 5 years ago.  Symptoms for 10 years. Initially got better with b12 shots (for like a month or so) but still kicking around. So query Celiac and other clustered autoimmune conditions to PA. If celaic it would maybe be more silent as don't get vomiting, diarrhea or weight loss. Symptoms = chronic fatigue. Muscular&skeletal pain. Hot hands and feet (worse an night), nausea after eating, tiredness after consuming food like bread and pasta.  Celiac screen came back (private blood test): TTG IgA 0.30 U/ml.  My main question is, is it worth getting total iga for further testing ? I have been advised that 'low' would only count as 0 U/ml for TTG IgA not .3.  Oh and did the genetic testing and have the gene thing. Was also critically low for folate levels in recent tests  All other tests showed no likelihood of other autoimmune conditions like thyroid (luckily). Anyhow, any thoughts welcome but be kind, just trying to get well l.
    • Scott Adams
      It looks like they are naturally gluten-free, but not labeled gluten-free. It's unlikely that they contain any gluten, but not impossible. This is the one I looked at: https://www.preservision.com/areds-2-formula-minigels/
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