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Celiac Disease Pre-Diagnosis, Testing & Symptoms

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If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

17,584 topics in this forum

  1. Results Are In

    • 6 replies
    • 1,101 views
  2. Is It Celiac?

    • 4 replies
    • 965 views
  3. Celiac? My Story....

    • 2 replies
    • 2,567 views

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  5. Blood Test Done Today

    • 12 replies
    • 1,211 views
    • 9 replies
    • 2,369 views
  6. Advice For My Sisters

    • 2 replies
    • 780 views
  7. Beyond Irritated!

    • 4 replies
    • 1,213 views
  8. Need Some Advice Please?

    • 2 replies
    • 891 views
  9. My Sister Thinks I Just Have Anxiety

    • 4 replies
    • 768 views
  10. Sign And Symptoms But Test Are Negative

    • 1 reply
    • 1,710 views
  11. Test Results?

    • 1 reply
    • 718 views
    • 8 replies
    • 2,814 views
  12. Is It All In My Head?

    • 4 replies
    • 951 views
  13. Advice For My 5 Year Old

    • 3 replies
    • 794 views
  14. Gluten Sensitivity/ Celiacs/ Hair

    • 6 replies
    • 1,300 views
  15. Gi Specialist Says It's Not Celiac

    • 10 replies
    • 2,111 views
  16. Celiac Or Not?

    • 4 replies
    • 1,060 views
  17. Do We Need An Endoscopy?

    • 7 replies
    • 1,486 views
  18. Biopsy Result Negative

    • 5 replies
    • 2,866 views
  19. Celiac Symptoms Or Something Else?

    • 3 replies
    • 926 views
    • 4 replies
    • 1,955 views
    • 4 replies
    • 1,144 views
  20. Can Anyone Help With Endo Results?

    • 3 replies
    • 1,294 views
    • 7 replies
    • 1,869 views
  21. Stollery Childrens Hospital ~ Edmonton

    • 3 replies
    • 1,220 views
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  • Forum Discussions

    Welcome to the forum, Lura! There are more than one gluten-related medical conditions. And on top of t hat, the terminology can be confusing. "Sensitivity" can be a catch-all term. There is Celiac Disease. There is gluten intolerance. And, there is gluten allergy. Before you go on a gluten free diet, you would need to get tested for Celiac Disease. There are blood tests for the antibodies...
    Are you saying that you were diagnosed with celiac disease but your doctor did not tell you to go gluten-free afterwards? That would amount to malpractice. There is no excuse, yet after 25 years of running this site we still hear stories like this...sad!
    I need help understanding this because my doctors are no help.  Why would my Gastro Dr. not tell me about Gluten free diet?  My son is actually the one who told me that I may have a sensitivity after seeing me in pain everyday and feeling like I cannot eat....and he's not a Dr.! I am hoping to have people reach out because I am at my wits end!