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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,235 topics in this forum

  1. parrfunkel
    Jungle
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  2. HollyG
    mushroom
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    salexander421
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  5. Nat1
    psawyer
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  6. JenHarris
    Jestgar
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  8. DaveCZ
    Dixiebell
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    ravenwoodglass
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  12. PMC
    GFinDC
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    salexander421
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  14. HollyG
    hockeymomofceliacchild
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  15. Lshetler
    hockeymomofceliacchild
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    eatmeat4good
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    ravenwoodglass
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  19. scottyg354
    IrishHeart
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  20. Bis-quit
    SaraNade
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  21. amandromeda
    mushroom
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  22. Nat1
    SaraNade
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  23. SaraNade
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  24. scottyg354
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  25. scottyg354
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  26. LISMom
    eatmeat4good
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  27. scottyg354
    MsCurious
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  • Recent Activity

    1. - brian weinstein replied to brian weinstein's topic in Coping with Celiac Disease
      2

      Cigars

    2. - trents replied to brian weinstein's topic in Coping with Celiac Disease
      2

      Cigars

    3. - brian weinstein posted a topic in Coping with Celiac Disease
      2

      Cigars

    4. - RMJ replied to lizzie42's topic in Coping with Celiac Disease
      2

      Is tTG 9 normal after 4 months gluten-free?


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    • trents
      Welcome to the forum, @brian weinstein! Gluten is a protein found in wheat barley and rye kernels. Pectin is a polysaccharide (a very complex sugar) found in the cell walls of fruits and vegetables. It is most commonly used as a thickening agent in food products, particularly jellies. So, pectin is naturally gluten free. That is not to the same as saying the cigar is gluten free.  Personally, I am reluctant to text you. I think most of us would feel the same way. Too many people already have access to our cell phone numbers.
    • brian weinstein
      i have a question i called 3 cigar manufacturers alec bradley, olivia and camacho to ask if any of their cigars are gluten free?  camacho told me that their cigars are made with pectin does that mean they are gluten free?  does anyone know the correct answer please let me know text me at (347) 219-6325 ty 
    • lizzie42
    • RMJ
      The test result will never be shown as zero because the most negative the result can be reported as is less than the lowest amount the test can detect.  For example, you might see <2. What is the normal range for your daughter’s test?  Antibodies can hang around in the body for a while. Even if her result is not yet in the normal range, going from more than 100 to 9 in a few months is great! Good job, mom.
    • lizzie42
      My daughter has been gluten-free about 4 months. Prior, her tTG was over 100 (test maxed at 100). Her liver, iron, vit d are all normal again and she has grown 2 inches and gained 4.5 pounds in just 4 months! It's amazing. But her tTG is still at 9. Is that normal or should it be zero? Is she still getting gluten? We are SO strict. We don't eat out.  She was previously having tummy pain still. I cut oats completely 3 weeks ago and that is gone.  Can gluten-free oats raise tTG? Would I know based on symptoms? I was going to try her on oats again now that she doesn't say her tummy hurts anymore.  Also, our house is gluten free apart from one loaf of bread my husband uses. He makes sandwiches on a plate then puts it in the dishwasher. Yesterday when my celiac kids weren't home, my youngest and I ate "real" pasta. I was SO careful. All pans went in the dishwasher, I didn't spill any, I cleaned the sink I drained it in. Today my girl has her dermatitis herpetiformis rash back and had a huge hour long meltdown then fell asleep. Just like before diagnosis. Is it that hard to avoid cross contamination? Will one crumb off the plate or me cooking pasta when she's not home get her?  Again, we do not eat out, she's not in school yet, and she doesn't eat anything I don't give her. 
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