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Recent Activity
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- Rebeccaj posted a topic in Coping with Celiac Disease0Help where to apply for jobs !
Hey guys. Has anyone ever worked in McDonalds or hungry jacks or kfc with coeliac disease.!? like different packaging to fresh bakery cooked bread? Did they get neurological symptoms.! Thanks. -
- Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications6Reverse Osmosis (RO) Water
I am honestly not sure. Initially I was purchasing my RO water via a refill station at the same store for the past several years. My employer (at the time) also has an RO water filtration system. Thus while drinking water and coffee at home or work, I was consuming RO water. I just so happened to switch to a gallon of sealed store bought distilled water... -
- knitty kitty replied to Rosalie P's topic in Gluten-Free Foods, Products, Shopping & Medications2Oat &gluten free eczEMA MOISTURIZER
Welcome to the forum, @Rosalie P, I like tallow balm for my eczema. Vintage Traditions is my favorite brand. I find that taking Niacin B3 and Omega Threes also very helpful in healing the skin from the inside out. Our skin reflects the state of health of our intestines. One of the first signs I ate something that my intestines didn't like... -
- Scott Adams replied to Rosalie P's topic in Gluten-Free Foods, Products, Shopping & Medications2Oat &gluten free eczEMA MOISTURIZER
If you’re avoiding both gluten and oats, you’re right — a lot of “eczema” or “moisturizer with oat” products use oat-based ingredients (like colloidal oatmeal) that can be questionable for people with celiac or oat sensitivity unless the oats are certified gluten-free and tolerated. For truly gluten-free and oat-free moisturizers many people with sensitiv... -
- Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications6
Reverse Osmosis (RO) Water
I wonder what in RO water would cause major issues with your stomach? That seems strange, unless there is an issue with the system itself, like an installation issue, lack of changing the filter for a long time, etc.
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I am honestly not sure. Initially I was purchasing my RO water via a refill station at the same store for the past several years. My employer (at the time) also has an RO water filtration system. Thus while drinking water and coffee at home or work, I was consuming RO water. I just so happened to switch to a gallon of sealed store bought distilled water at home and instantly felt better. I know that sounds like an exaggeration, but it is true. My initial thought was the RO water refill station must have been contaminated, possibly from some sort of cleaning agent. Later I bought completely sealed RO water from a different store. Again, my stomach started making crazy noises and I felt off. It took a few days to get through all of the RO water I bought. I thought it was distilled or spring, but after reading the label a bit closer...nope it was RO water. Again, as soon as I stopped drinking it my stomach settled and I felt SO much better. I cannot say what it is about RO water that does not agree with me, but there are threads on Reddit and elsewhere on the Internet with plenty of people reporting GI related issues from RO water. I linked to one in my original post within this thread. While doing more research, I have discovered that RO water filtration systems should not be used with copper plumbing. Per Google AI Overview: Reverse Osmosis (RO) water should not pass through or be stored in copper plumbing because the purified, low-TDS water is highly aggressive and causes corrosion, pitting, and pinhole leaks in copper pipes. RO water leaches copper, resulting in a metallic taste and potential health risks like copper poisoning. Always use polyethylene (plastic) tubing for RO systems. The more I learn about RO water, the more I plan to steer clear. If it is well know to damage and leach copper...well I'll just leave it at that.
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By knitty kitty · Posted
Welcome to the forum, @Rosalie P, I like tallow balm for my eczema. Vintage Traditions is my favorite brand. I find that taking Niacin B3 and Omega Threes also very helpful in healing the skin from the inside out. Our skin reflects the state of health of our intestines. One of the first signs I ate something that my intestines didn't like is eczema. Milk and other dairy products definitely make my skin break out. Have you been keeping a food journal? Have you noticed a link between break outs or exacerbation and the food you eat? -
By Scott Adams · Posted
If you’re avoiding both gluten and oats, you’re right — a lot of “eczema” or “moisturizer with oat” products use oat-based ingredients (like colloidal oatmeal) that can be questionable for people with celiac or oat sensitivity unless the oats are certified gluten-free and tolerated. For truly gluten-free and oat-free moisturizers many people with sensitive skin use and recommend: Vanicream Moisturizing Cream — no fragrance, dyes, lanolin, or oats CeraVe Moisturizing Cream or Lotion — gentle, oat-free, widely tolerated Eucerin Advanced Repair Cream — rich but oat-free La Roche-Posay Lipikar Balm AP+ — good for eczema-prone skin and oat-free Aveeno Sensitivity Free (not Aveeno with oatmeal) — check the label carefully Always check ingredients for things like Avena sativa / oat extract, and if you’re extremely sensitive, call the manufacturer to confirm there’s no cross-contamination with oats or gluten. Patch test any new product on a small area first. Plenty of people with eczema and gluten/oat intolerance have found these work well without triggering reactions. -
By Scott Adams · Posted
I wonder what in RO water would cause major issues with your stomach? That seems strange, unless there is an issue with the system itself, like an installation issue, lack of changing the filter for a long time, etc. -
By Scott Adams · Posted
Isolated DGP-IgG elevation can be tricky. In children who are not IgA deficient and who repeatedly have negative tTG-IgA and normal biopsies, DGP-IgG alone is not very specific for celiac disease. It can sometimes be elevated due to other immune activity, transient infections, lab variability, or even non-celiac inflammatory conditions. The fact that it has risen despite a gluten-free diet and without symptoms or growth issues makes true active celiac less straightforward. The pediatric GI’s plan for a supervised gluten challenge followed by endoscopy is reasonable, as it’s the only way to clarify whether this is evolving celiac or a persistent false positive. You’re doing the right thing by approaching this methodically rather than assuming the antibody alone equals disease.
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