-
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
Related Issues & Disorders
Discussions concerning the various associated health problems, including but not limited to pregnancy, sleep & weight issues.
7,536 topics in this forum
-
- 3 replies
- 3.4k views
-
- 6 replies
- 10.5k views
-
- 7 replies
- 3.1k views
-
- 14 replies
- 18.1k views
-
- 1 reply
- 2k views
-
- 5 replies
- 4.4k views
-
- 0 replies
- 1.7k views
-
- 4 replies
- 1.6k views
-
- 9 replies
- 3.9k views
-
Celiac.com Sponsor (A10):
Celiac.com Sponsor (A10):
-
- 11 replies
- 14.2k views
-
- 3 replies
- 2.9k views
-
- 1 reply
- 1.7k views
-
- 2 replies
- 4.3k views
-
- 5 replies
- 4.7k views
-
- 14 replies
- 4.2k views
-
- 11 replies
- 11.3k views
-
- 4 replies
- 5k views
-
- 5 replies
- 19k views
-
- 1 reply
- 2k views
-
- 9 replies
- 3.7k views
-
- 3 replies
- 3.6k views
-
- 3 replies
- 6.9k views
-
- 7 replies
- 2.3k views
-
- 5 replies
- 5.3k views
-
- 2 replies
- 2k views
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8-M):
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People12Celiac flare years after diagnosis
@Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. -
- Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People12Celiac flare years after diagnosis
@nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down... -
- Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People12
Celiac flare years after diagnosis
@Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest ... -
- Peace lily commented on Scott Adams's article in Latest Research2New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat
Hi everyone well I don’t understand totally,I look for gluten-free only. I seem to be super sensitive. I had a problem the other day don’t know why it happen . I’m the only that handles my food . My husband has pancreatitis he’s fine with me cooking gluten-free I’ve tried doing both it doesn’t work for me strictly gluten-free kitchen. But he can actu...- food allergy
- food allergy test
- (and 8 more)
-
- nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People12
Celiac flare years after diagnosis
@Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Celiac.com Sponsor (A22):
-
Forum Statistics
-
Total Topics121.7k
-
Total Posts1m
-
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
0May 06, 2026 11:00 PM
Until
May 07, 2026 12:00 AM
-
0May 07, 2026 11:00 PM
Until
May 08, 2026 12:00 AM
-
0May 12, 2026 10:30 PM
Until 11:30 PM
-
Posts
-
By nancydrewandtheceliacclue · Posted
@Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. -
By Aretaeus Cappadocia · Posted
@nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention. -
By Aretaeus Cappadocia · Posted
@Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread. However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/ -
By nancydrewandtheceliacclue · Posted
@Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. -
Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:( I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting.
-
