Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee


nvsmom

Recommended Posts

nvsmom Community Regular

:(

I had that flu that's been going around. It caused me (I think) to feel like I had motion sickness for a few weeks and the my stomach was a bit off for a week or so. Now I have been getting stomach pain in the mornings that feel just like I was glutened and I think I've traced it back to a ground coffee we use (President's Choice from Superstore). I seem to be okay with instant coffee. My problem is that I'm not sure if this is still the flu messing with me, or a new sensitivity, or I am somehow being glutened with my morning coffee (I REALLY doubt that's it)

Coffee has always been a bit hard on my gut but that was part of the reaon I liked it. Due to celiac and hypothyroidism, my gut was, ahem, "slow" so coffee was a way to get it going in the morning. I am still "slower" than average so coffee remains a help.

Anyone else have a problem with brewed coffee? If so, please tell me it passed! LOL I doubt gluten got in the coffee unless they grind it at the same place they do flours or oats... pretty unlikely. I'm hoping this is because of the flu I had, or the coffee we use has changed, and not a new permanent problem....

I'm trying to cut down on my coffee intake... maybe this is the fates' way of hurrying me along! LOL :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

... I was just thinking that I probably should have posted this somewhere else... This is my brain on less coffee! EEK. LOL :rolleyes:

cahill Collaborator

I actuality quit drinking coffee and tea about a month before my elimination diet :ph34r: super scary I know :wacko: . It took me that whole month to get over the headaches . I wanted my head / body clear of the coffee before I started my elimination diet.I did not drink coffee AT ALL during my elimination diet :o That was a very very long 6 months with out any coffee or tea.

I have since added it back :D,,, I :wub: me a good cup of coffee.

Coffee ( as with all things) is an individual thing, if you think it is bothering you, stop drinking it . Then give your self some time to heal before you try reintroducing it .

  • 2 weeks later...
sharese28 Apprentice

I have had bad reactions to coffee since going gluten free is there a chance i can reintroduce it into my diet at a later time

shadowicewolf Proficient

Coffee acts as a laxative sort to speak. It can also be very hard on a healing gut. There is a chance that it can be reintroduced, but i wouldn't bet on it too much.

 

I quit tea and soda right after my dx and i haven't looked back since.

IrishHeart Veteran

I lost  coffee and dairy, citrus, soy and about 10 other foods for a few years before and a whole year after DX because the caffeine really agitated me and my GI tract was a burning mess from mouth to rectum.  I had GERD, IBS, etc. etc..and felt like death would be kinder.

 

Anything can give you grief when your gut is still damaged.

 

Now, I drink brewed decaf coffee with half and half every morning and orange juice with no problems whatsoever.

 

Never say never. ;) Things can change.

cahill Collaborator

I have had to give up sooooooooooooo very many foods that some one ,some where must have decided I would break  :ph34r:  if I lost coffee permanently.

 

Coffee , dairy and eggs are 3  foods I have been able to add back ( can I get a hellaluya !! :D )

 

 

I :wub: a good cup of coffee :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Hooray to getting foods back and I :wub: me a good cup o' joe, too! ;)

JNBunnie1 Community Regular

I've had to pass on the coffee for a few months now, in order to prevent cold sore outbreaks.

It doesn't bother my stomach at all anymore, though it used to. In fact, coffee in the AM is less

upsetting than tea, to my actual stomach, sometimes tea makes me a little nauseous. I can't

even begin to tell you how INCREDIBLY frustrating it is to not have coffee, cuz I lurves it

sooooooooooo much. But, we do what we gotta do!

 

To the OP, coffee did used to give my lower GI tract a hard time. Over the past two years, I've

been able to enjoy it with no GI distress whatsoever. If you do lose coffee for now, don't lose

hope!

nvsmom Community Regular

I think (or should I say hope - lol) that it was something else. I was eating some chocolates that were not made on a gluten-free line. They had barley malt cc. It was enough to give me stomach upset, bloating, and a general feeling of unwellness but because I did not get my old gluten stomach pain, it took equity a while to figure it out... That is why one should not savour chocolates over a few weeks but should eat it all at once.... After checking the labels better! Lol

EmiPark210 Contributor

Are you sure it's just the coffee or caffeine in the coffee?

I've been totally caffeine free since 2010 and it helped with a lot of my IBS symptoms (colon spasms), but it's also gotten to the point where "decaffeinated" drinks can set me off because of the traces of caffeine. 

kittty Contributor

Coffee has bothered my stomach before and after going gluten free. It's not the caffeine (other sources of caffeine are fine), but other substances in the coffee. It's definately become worse as I get older.

nvsmom Community Regular

It is coffee that rumbles my belly. Tea and colas don't do it to me.  I'm fine with that though; my morning coffee gets my gut going better than fibre supplements ever could.  LOL 

jamer Apprentice

Hmmm...I was extremely lactose intolerant as a baby/toddler but seemed to have out grown it. Until several maybe even ten years ago. I can eat egss and things baked with dairy, no probem. If I have more than one glass of 2% milk or ice cream...I'm get the runs. :unsure: The lower the milk fat, the easier I can tolerate it...I do even better on organic milk. I was recently pregnant ( had a miscarriage last week) and noticed as I did with my first two pregnancies...I can handle milk and ice cream like it's no one's business. I was drinking almost a gallon a day and gluten free chex was my go to food. Wonder what that is all about. 

 

I can also drink coffee, although keeing that to a minimun, acidic foods haven't been a problem since going gluten-free. My GI doc thinks we just caught the celiac disease in its beginng stages. I havent' had symptoms for more than a year, two at most. I have an excellent primary doc who automatically ran a blood test when I came in complaining of severe relux, nausea, and fatigue. He's a godsend

 

Sorry for getting off topic. I'm just kinda curious how some with celiac disease can handle dairy, soy , citrus...etc and some can't. Does it have something to do with how long the celiac disease has been untreated or undiagnosed?

nvsmom Community Regular

Sorry for getting off topic. I'm just kinda curious how some with celiac disease can handle dairy, soy , citrus...etc and some can't. Does it have something to do with how long the celiac disease has been untreated or undiagnosed?

 

I know I'm lactose intolerant and have been for at least 10 years. I would still eat dairy like  icecream and cottage cheese, and I would just ignore the stomach aches because I had them so often anyways.  LOL   :rolleyes: I honestly don't know how long dairy has bothered me; I wasn't too observant about my diet in the past. It could be since childhood (I'm sure I've had celiac since then).

 

Everyone responds so differently with this disease. For example, I did not have a single nutrient deficiency and my B12 actually exceeded the normal range... There almost seems to be no normal. :huh:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.