Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Here's My "i Glutened Myself Through Sheer Stupidity" Story...

Monklady123

By Monklady123
in Coping with Celiac Disease

Recommended Posts

Monklady123 Collaborator
Monklady123
Posted

To make any newbies feel better about something they might have done to themselves. I've been gluten free for about two years now. You'd think I would know better. So, we have a soup dinner at my church every month. Three people bring soup (small church), plus we have some desserts and drinks. Simple. We only started this a few months ago. I've been bringing my own dinner. This past Sunday one of the soups was clam chowder, which is one of my favorites. Here's the conversation:

 

Me: Susie [fake name] could you tell me what's in your clam chowder?

Susie: Clams, potatoes, milk, onions, salt, pepper.

Me: No broth?

Susie: No, no broth.

Me: Anything else that could possibly have wheat in it?

Susie: No, I made it totally from scratch, those are the only ingredients.

 

So I had a bowl. Later that evening before we went home Susie came up to me and said "oh, I just remembered, I put some flour in there to thicken it. Will that be a problem?"

Me: :blink: and <_< and :angry: and :ph34r:

 

Of course I was sick on Monday. (I get the intestinal stuff, plus a really bad migraine.)

 

I'm mad at her but mostly mad at myself. She gets 1% of the mad, I get 99%. sigh. I should know better! I DO know better. Never again. Next month I've signed up to make soup. :)

 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flowerqueen Community Regular
flowerqueen
Posted

To make any newbies feel better about something they might have done to themselves. I've been gluten free for about two years now. You'd think I would know better. So, we have a soup dinner at my church every month. Three people bring soup (small church), plus we have some desserts and drinks. Simple. We only started this a few months ago. I've been bringing my own dinner. This past Sunday one of the soups was clam chowder, which is one of my favorites. Here's the conversation:

 

Me: Susie [fake name] could you tell me what's in your clam chowder?

Susie: Clams, potatoes, milk, onions, salt, pepper.

Me: No broth?

Susie: No, no broth.

Me: Anything else that could possibly have wheat in it?

Susie: No, I made it totally from scratch, those are the only ingredients.

 

So I had a bowl. Later that evening before we went home Susie came up to me and said "oh, I just remembered, I put some flour in there to thicken it. Will that be a problem?"

Me: :blink: and <_< and :angry: and :ph34r:

 

Of course I was sick on Monday. (I get the intestinal stuff, plus a really bad migraine.)

 

I'm mad at her but mostly mad at myself. She gets 1% of the mad, I get 99%. sigh. I should know better! I DO know better. Never again. Next month I've signed up to make soup. :)

Sounds more like someone else glutening you, than you glutening yourself.  This is the kind of thing that has almost entirely prevented me from going out to eat.  People do not seem to realise what gluten actually is.  I went to a restaurant that knew I was coeliac and was offered cous-cous as an alternative starter until I pointed out that cous-cous was made from wheat.  Fortunately we know the chef and he came out of the kitchen to tell me what I could have. 

 

Good luck with next month's meal! (At least you know you can have the soup ;-)  )

DutchGirl Apprentice
DutchGirl
Posted

To make any newbies feel better about something they might have done to themselves. I've been gluten free for about two years now. You'd think I would know better. So, we have a soup dinner at my church every month. Three people bring soup (small church), plus we have some desserts and drinks. Simple. We only started this a few months ago. I've been bringing my own dinner. This past Sunday one of the soups was clam chowder, which is one of my favorites. Here's the conversation:

 

Me: Susie [fake name] could you tell me what's in your clam chowder?

Susie: Clams, potatoes, milk, onions, salt, pepper.

Me: No broth?

Susie: No, no broth.

Me: Anything else that could possibly have wheat in it?

Susie: No, I made it totally from scratch, those are the only ingredients.

 

So I had a bowl. Later that evening before we went home Susie came up to me and said "oh, I just remembered, I put some flour in there to thicken it. Will that be a problem?"

Me: :blink: and <_< and :angry: and :ph34r:

 

Of course I was sick on Monday. (I get the intestinal stuff, plus a really bad migraine.)

 

I'm mad at her but mostly mad at myself. She gets 1% of the mad, I get 99%. sigh. I should know better! I DO know better. Never again. Next month I've signed up to make soup. :)

Oh man!! That totally stinks, I bet she felt bad!

 

The week I got diagnosed I had a class at church and they offered dinner. My pastor's wife told me that the lady that cooked the meal made it entirely gluten free just for me. I felt bad but told her I'd have to pass. This lady made the meal in her home and their family isn't gluten free. I felt like a total jerk and really wanted to eat it just to be nice but couldn't risk CC. It was a sticky situation! :unsure:

pricklypear1971 Community Regular
pricklypear1971
Posted

Oh man!! That totally stinks, I bet she felt bad!

The week I got diagnosed I had a class at church and they offered dinner. My pastor's wife told me that the lady that cooked the meal made it entirely gluten free just for me. I felt bad but told her I'd have to pass. This lady made the meal in her home and their family isn't gluten free. I felt like a total jerk and really wanted to eat it just to be nice but couldn't risk CC. It was a sticky situation! :unsure:

That IS a difficult thing, when people mean well and to be safe you just have to say no. Sometimes it would be safe, other times no. But there's no way for YOU to know.

Smylinacha Apprentice
Smylinacha
Posted

I hear you on that..my mother in law cooks for us every Monday. She is really truing to stick to gluten free. She made stew the other night, said no gluten in it but I was sick hours after eating it. I got sick on her food last week too.

gatita Enthusiast
gatita
Posted

Oh man, what a sad story! And I've done the same thing too many times... Don't beat up on yourself for having a "normal" moment, you're going through enough misery!

Pegleg84 Collaborator
Pegleg84
Posted

In order to eat anyone else's cooking, I feel like I have to interrogate them at gunpoint to get a full list of ingredients (now with soy and dairy on my no list, this is extra important).

I've had more than a few stupid glutening moments. Most recent was this xmas. My stepbrother cooked a turducken (overkill) for dinner and I asked him, is it ok for us celiacs (ie: me and my mom). sure, he says. (I should have pulled out the big guns at that moment)

instead, while happily chewing away on my chicken/duck and tasting the familiar but alarming texture of breadiness, I ask, Um, is there stuffing in this? Uh, yeah, of course. 

Thanks a lot bro.

Thankfully my mom was smart and took the very outside of the turkey. I don't think she's quite as sensitive as me though.

The glutening didn't really kick in for a few days, but man was I sick! No fun at all.

So really, 40% mad at him, 60% mad at myself for being stupid enough to believe him. Never again!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Thanks to both of you for your responses! Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In t...
    2. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
    3. lalan45
      - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things ...
    4. Russ H
      - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
    5. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748
    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      My journey is it gluten or fiber?

      By lalan45 · Posted

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      Anti-endomysial Antibody (EMA) Testing

      By Russ H · Posted

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      Just diagnosed today

      By Scott Adams · Posted

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.