Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ex Husband Not Supportive


brandyburl

Recommended Posts

brandyburl Apprentice

I've posted on this forum about my two oldest children and their symptoms and mine. I had a doctor's appt scheduled for all 3 of us to see the doctor and inquire about testing. However, my symptoms were getting a lot worse and I knew I would consume most of the doctor's time so I changed the appointment just for me. My doctor referred me to the clinic's surgeon who is doing an endoscopy with biopsies on Thursday. 

I had eliminated gluten from my diet for a week and saw immediate improvement in symptoms. I have reintroduced it for the biopsy so my results will be accurate, albeit just in small amounts. I've seen some symptoms return. Mostly in the bathroom.

 

Anyway, my main purpose for writing this thread is to vent about my ex husband. He has the typical 1st and 3rd weekend visitation with the kids so they're with me majority of the time. I talked with the two older kids who are having symptoms about trying a gluten free diet soon to see if that made them feel better. My daughter seemed excited as she's been complaining a lot about bad stomach aches. So she's been telling everyone she sees that she's on a gluten free diet, even though I haven't eliminated it from her diet yet. (kids)  The kids are at their dad's this weekend. So he texts me asking why I've got her on a gluten free diet and asks if it's doctor mandated. I text back saying she isn't gluten free, that I'm being tested for celiac and the kids will be tested too due to their symptoms. I also mentioned how we're eliminating processed foods from our house. Well, he texts back that she doesn't need to be on a gluten free diet and that most of the people he knows that do that diet are doing it to try to lose weight and she doesn't need to be told she needs to lose weight that that is just terrible to tell an 8 year old. 

Argh! I referred him to this website to actually do some research on celiac and gluten intolerance and informed him that we haven't gone gluten free yet. He said because she's eating gluten free at home and still has stomach aches that it's obviously not gluten.  I informed him that just because I may cook one meal a day (supper, they eat breakfast and lunch at school) that is gluten free she probably won't see a change in symptoms because she is still ingesting gluten on a daily basis. 

 

He's just always got to argue with me. Even if it's for the benefit of our children's health. I'm sure if they do test positive for gluten intolerance or even celiac he will probably still feed them gluten. Perhaps if I have a doctor backing me he will change, but I'm not expecting much. I was just infuriated by his comment that most people eat gluten free to lose weight. He obviously has done no research on any of it. It would just be nice to have his support, but I guess that is asking too much.

 

Thanks for letting me vent. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

So sorry Brandy....no way to say anything but this sucks...but I do know it will get better.  Given time he'll become educated -- the changes are tough enough without the added stress of the dual home.  They are his kids too and when he realizes this is a health issue, not a weight issue it will help.

 

Here is hoping that process moves along quickly -- Hang in there -- you are doing the right thing for your family!

kareng Grand Master

When the kids get diagnosed, have ex talk to the doctor. If he still refuses to keep them gluten free, you may have to take him back to court for supervised visits based on his medical negligence. Hopefully, it won't come to that.

frieze Community Regular

I've posted on this forum about my two oldest children and their symptoms and mine. I had a doctor's appt scheduled for all 3 of us to see the doctor and inquire about testing. However, my symptoms were getting a lot worse and I knew I would consume most of the doctor's time so I changed the appointment just for me. My doctor referred me to the clinic's surgeon who is doing an endoscopy with biopsies on Thursday. 

I had eliminated gluten from my diet for a week and saw immediate improvement in symptoms. I have reintroduced it for the biopsy so my results will be accurate, albeit just in small amounts. I've seen some symptoms return. Mostly in the bathroom.

 

Anyway, my main purpose for writing this thread is to vent about my ex husband. He has the typical 1st and 3rd weekend visitation with the kids so they're with me majority of the time. I talked with the two older kids who are having symptoms about trying a gluten free diet soon to see if that made them feel better. My daughter seemed excited as she's been complaining a lot about bad stomach aches. So she's been telling everyone she sees that she's on a gluten free diet, even though I haven't eliminated it from her diet yet. (kids)  The kids are at their dad's this weekend. So he texts me asking why I've got her on a gluten free diet and asks if it's doctor mandated. I text back saying she isn't gluten free, that I'm being tested for celiac and the kids will be tested too due to their symptoms. I also mentioned how we're eliminating processed foods from our house. Well, he texts back that she doesn't need to be on a gluten free diet and that most of the people he knows that do that diet are doing it to try to lose weight and she doesn't need to be told she needs to lose weight that that is just terrible to tell an 8 year old. 

Argh! I referred him to this website to actually do some research on celiac and gluten intolerance and informed him that we haven't gone gluten free yet. He said because she's eating gluten free at home and still has stomach aches that it's obviously not gluten.  I informed him that just because I may cook one meal a day (supper, they eat breakfast and lunch at school) that is gluten free she probably won't see a change in symptoms because she is still ingesting gluten on a daily basis. 

 

He's just always got to argue with me. Even if it's for the benefit of our children's health. I'm sure if they do test positive for gluten intolerance or even celiac he will probably still feed them gluten. Perhaps if I have a doctor backing me he will change, but I'm not expecting much. I was just infuriated by his comment that most people eat gluten free to lose weight. He obviously has done no research on any of it. It would just be nice to have his support, but I guess that is asking too much.

 

Thanks for letting me vent. 

with his nasty attitude, maybe he needs testing also?

brandyburl Apprentice

Ha! He probably should be tested.

Thank you for the suggestions. I will have him talk to the dr. And if I need to, take him back to court.

NodakMom Newbie

My practice area isn't full-time family law, but I've handled a couple of cases where the child had medical needs.  It's really important to have a confirmed diagnosis with doctor's instruction.  If he doesn't comply with doctor's orders, then consult your attorney. 

 

For some parents (on both sides of the fence), controlling a child's diet is perceived as an attempt by the other parent to extend "control" of the children into the reach of the other parent's parenting time. 

 

Having gluten free diets becoming so popular is both a curse and a blessing.  On one hand, there are a lot more companies getting into the gluten free market and there are more choices available.  On the other hand, a lot of people think it's a fad and not a medical necessity. 

nvsmom Community Regular

(((HUGS))) That's a hard thing. I hope he bothers to educate himself.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.