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Ibs And Hysterectomy

amanda.wilson

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amanda.wilson Newbie
amanda.wilson
Posted

Does anyone else have severe IBS?? I'm on 3 different IBS meds now and I'm even having a complete hysterectomy.

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mushroom Proficient
mushroom
Posted

Talk to us, Amanda.  Tell us a little more about yourself and your symptoms.  We are here to listen. :)

GottaSki Mentor
GottaSki
Posted

Welcome Amanda!

 

I had a hysterectomy -- not total -- 12 years ago due to cancer - wasn't diagnosed with Celiac until 4 years ago after decades of numerous symptoms.

 

IBS is a collection of symptoms that are often the same as those with missed or un-diagnosed Celiac Disease.

 

Let us know if we can help :)

IrishHeart Veteran
IrishHeart
Posted

Another "IBS" and hyster-sister right here. Total hysterectomy after years of miscarriages and the early menopause from hell. 

 

Those symptoms you're having may all be celiac-related.  Tell us more!  (that "IBS" I had for most of my life--all gone)

jerseyangel Proficient
jerseyangel
Posted

Yep, IBS all my life and hysterectomy at age 49 following an unpleasant period where I was in peri menopause, my then indiagnosed celiac was shifting into high gear, and I had fibroids, endometriosis and addenomyosis.

Let us know how we can help-- there is light at the end of this tunnel:)

IrishHeart Veteran
IrishHeart
Posted

.......and that light is not an oncoming train, we promise! :)

 

Me, too, P--I was 47 and those fibroids, endo, cysts, etc can wreak havoc with the intestines. Adhesions can make a mess, too.My entire pelvic floor was deeply impacted and I had to have "special PT" to make things right. Not fun. 

jerseyangel Proficient
jerseyangel
Posted

.......and that light is not an oncoming train, we promise! :)

 

Me, too, P--I was 47 and those fibroids, endo, cysts, etc can wreak havoc with the intestines. Adhesions can make a mess, too.My entire pelvic floor was deeply impacted and I had to have "special PT" to make things right. Not fun. 

Not at all <_< I had a similar mess going on in there--the surgeon had to deviate from the planned procedure because the endo had attached itself outside the reproductive area.  Looking back, I wish I had had it done 10 years prior. (the famous hindsight B) )

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frieze Community Regular
frieze
Posted

Does anyone else have severe IBS?? I'm on 3 different IBS meds now and I'm even having a complete hysterectomy.

what is the reason for the hyst?  what out comes are being hoped for?  If you haven't tried gluten free, I would give it a go first.

amanda.wilson Newbie
amanda.wilson
Posted
  • Author

I'm 31 and I've been gluten free for almost a year, not only with my food but w/ every products. I've always have had a history w/ my periods I.E. small clots cysts bad cramps. But since the IBS dx the clots are now the size of cutie oranges, severe watery D, and vomiting. I lost 5lbs in 3 days and was extremely weak. With an active 5 year old I can't afford to go down like that.

amanda.wilson Newbie
amanda.wilson
Posted
  • Author

And I'm having surgery 3-13-13 so if I don't respond in a timely manor you know why. Lol

jerseyangel Proficient
jerseyangel
Posted

And I'm having surgery 3-13-13 so if I don't respond in a timely manor you know why. Lol

Best of luck! I hope it all goes smoothly. Let us know how you're doing when you are able:)

GottaSki Mentor
GottaSki
Posted

Best of luck Amanda!

If you haven't been there yet HysterSisters is a great website :)

mushroom Proficient
mushroom
Posted

Best wishes for a speedy recovery!

jerseyangel Proficient
jerseyangel
Posted

Yes-- HysterSisters! That was very helpful to me, thanks Lisa:)

amanda.wilson Newbie
amanda.wilson
Posted
  • Author

My gyno office called this evening to say that BCBS decided to deny my surgery at the last minute :(. If I was a betting gal I would say the person whom denied it has male plumbing! Now they have my doc and I jumping through hoops and dang it my muscles hurt to much to keep jumping not to mention girls w/ big boobs aren't ment to jump!!!

Ok...I feel a lil better now after venting.

GottaSki Mentor
GottaSki
Posted
:(
jerseyangel Proficient
jerseyangel
Posted

Goodness:(. I hope your doctor will be able to get them to cover it.

amanda.wilson Newbie
amanda.wilson
Posted
  • Author

Only time will tell :). I'm just trying to stay positive in the mean it and jump thru their stinkin hoops. Thanks for all help!!'

frieze Community Regular
frieze
Posted

I'm 31 and I've been gluten free for almost a year, not only with my food but w/ every products. I've always have had a history w/ my periods I.E. small clots cysts bad cramps. But since the IBS dx the clots are now the size of cutie oranges, severe watery D, and vomiting. I lost 5lbs in 3 days and was extremely weak. With an active 5 year old I can't afford to go down like that.

What about an ablation?  have you tried anything to suppress ovulation for an extended period of time? have had a D/C?    It makes me very nervous when a doc is going for the hyst in a person so young. 

flowerqueen Community Regular
flowerqueen
Posted

Good luck!  Try not to worry.  I have both IBS and had hysto when I was in my early 40's, it's not as bad as you think.  Let us know how you get on.

amanda.wilson Newbie
amanda.wilson
Posted
  • Author

We have been suppressing ovulation w/ meds but my body isn't handling it very well. It's like it can sense the need to go into a cycle and can't and my bowel become inflame still killing my lower back. But she did an ultrasound and found evidence of a " spongey " uterus so now I go in for out patient procedure thru the belly button ( which the insurance wanted any way) this up coming week.

jerseyangel Proficient
jerseyangel
Posted

Thanks for the update. All the best to you:)

GottaSki Mentor
GottaSki
Posted

Oh Goodness...Hang in there Amanda!

 

Keep us updated...pulling for and praying for you that the upcoming procedure goes well. :)

amanda.wilson Newbie
amanda.wilson
Posted
  • Author

Thanks every1. I was never worried about having the hysto I was kind of looking forward to it lol, I was just wondering if it helped w/ the IBS or was hoping for to much. I know it's not a cure but I would be grateful for a 1% improvement....

jerseyangel Proficient
jerseyangel
Posted

Amanda, many times it can help with IBS symptoms, especially in the case of endometriosis.

I had my surgery after I had been gluten-free for 2 years. My bowel symptoms improved a lot in those 2 years, especially after I identified some additional food intolerances and cut those from my diet.

I can say that the monthly pain and diarreah that always accompanied my period went away, never to return.

I hope you sail through your surgery, recovery, and feel much, much better. I am betting you will:)

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