Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

One For The Ladies (Intolerance Symptom)


jhol

Recommended Posts

jhol Enthusiast

ok ive had this symptom for a while now,

 

even before the doc went with the celiac tests. id been keeping a food diary and one symptom was ,i kinda felt like my labia and around my clitoris was swelling up . sorry if thats too much information. its sooooo irritating and i just cant figure out whats happening. im sure its food related coz i dont feel it all the time and its mostly at night that i notice it. i cant really describe it , i dont know if its itchy or tingly, i just know its bloody annoying. i try my best not to touch it in any way coz if i do it intensifies and drives me crazy.sometimes its dry and irritated and others its perfectly normal - god ive never paid so much attention to my nether regions lol.

just looked up the diary and the symptoms were with quorn and a soya dessert. but just had cup of coffee and a handfull of cashews and got it again.

ive tried googling it but it just mostly suggests and infection - sure its not that coz its not all the time . no discharge or smell (soz again)

 

anybody had this or any suggestions

 

dont eat quorn now- i discovered how it was made(dont know if its good or bad). and try to avoid soya just because i didnt want to find out another food i couldnt eat- if that made sense. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Zibby Rookie

Honestly, if I had those symptoms and you know it isn't a yeast infection, I'd see a gynocologist. Good luck though!

Juliebove Rising Star

What age are you?  I had symptoms that I thought were a yeast infection.  Nope!  It was low estrogen.

jhol Enthusiast

hi julie,

 

although i dont like to admit it - im 44 lol

VeggieGal Contributor

its interesting you bringing that up...I gave up quorn when I went gluten free about 10 wks ago (because most of the quorn products i bought contained gluten plus I realised the process of quorn!).. but I used to get swollen lymph glands under the chin, in the armpits, and in the groin after eating it ! ...suppose it couldve been a gluten reation but im highly suspicious it was the quorn.

jhol Enthusiast

thats odd,

 

always hated quorn but thought i needed to up my protein to try to get my weight down, so made myself eat it until i didnt mind eating it. i kept getting pains under my arms like i was gonna get an abscess but then nothing would happen.. weird ...  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      27

      My journey is it gluten or fiber?

    2. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.