Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are You Gluten Free For Your Kids?


lorka150

Recommended Posts

lorka150 Collaborator

oops double post.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

Are any of you gluten free (but not needing to be) and does it still affect you when do you consume it because you've avoided it?

Jnkmnky Collaborator

Our family is gluten free. It doesn't bother us if we go out to dinner and consume gluten full meals. No stomach issues.

taweavmo3 Enthusiast

That's how I started out......my dd had been gluten free for a few months, and I figured I'd give the diet a try, and see how I feel. I didn't want to mess with testing, I've had enough of doctors lately.

Anyway, it's been about two months now and I can tell a difference. I used to get headaches all the time, but now I hardly get any, and when I do...a simple Tylenol or Ibuprofen does the trick. I also have much less anxiety and mood swings, which is the best part. And, I've put on weight for the first time, w/out being preggo!

I did eat a cupcake at my mom's house a few weeks ago, and I felt absolutely terrible the next day. I didn't get any gastro symptoms, but I just felt depressed, irritable, and exhausted. It was the crappiest feeling, and one I don't care to have again! I don't know if I have celiac or not, but I don't really care for a definitive dx......I just feel better, and that's enough! Plus, my dd will have someone to share her diet with, which will be nice.

VydorScope Proficient

So far as we know for sure, only my 2yr son has celiac disease. My wife has no symptons and had a neg result on her blood test. I am delbiertly eating gluten only so that I can get the blood test in November, other then that we find it MUCH eaiser with a 2yr to make all three of us gluten-free. If we are blessed with a second child I am not sure what we will do yet, since if the second child is never on gluten there will be no way to know if he/she has celiac disease or not.

Jnkmnky Collaborator
So far as we know for sure, only my 2yr son has celiac disease. My wife has no symptons and had a neg result on her blood test. I am delbiertly eating gluten only so that I can get the blood test in November, other then that  we find it MUCH eaiser with a 2yr to make all three of us gluten-free. If we are blessed with a second child I am not sure what we will do yet, since if the second child is never on gluten there will be no way to know if he/she has celiac disease or not.

<{POST_SNAPBACK}>

Vincent- you know that all sorts of studies are going on regarding celiac disease thanks to the money provided by the Celiac Walks and other fundraising. There may well be a test for celiac disease that a person can take with accuracy while off of gluten, in the near future. Even if it's in the distant future... A second child of yours would probably be eligible--being as there's a minimum of 9 months guarenteed here. :)

If celiac disease is in a family and another child is born, personally, I'd make the new child gluten free---- and nursing mom gluten free as well, because the gluten DOES pass through breastmilk no matter what anyone else will tell you--- I'd just wait on a test that can dx celiac disease without the gluten in the diet. Also, having read Dangerous Grains and a few other articles about gluten grains, I figure we're all better off without the gluten anyway.

Indea88 Newbie

I am going gluten-free after my testing is done next week. My husband wont go gluten-free? He has Celiac. I dont bother with his unwillingness and stupidity. I have just been focused on healing my 2 year old, who has recently been diagnosed. Having a gluten-free house is the best way at least for me it would be....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dwaters800 Rookie

My son was just diagnosed with gluten sensitivity, although he has not had diarrhea or weight loss yet - he has stomach pain, muscle ache, brain fog and headache. The funny thing is I quit eating wheat about 4 years ago because I just felt tired and ached when I ate it. Now I plan to go strictly gluten free along with him because I am convinced that it will be the best thing for both of us.

dwaters800 Rookie

My son was just diagnosed with gluten sensitivity, although he has not had diarrhea or weight loss yet - he has stomach pain, muscle ache, brain fog and headache. The funny thing is I quit eating wheat about 4 years ago because I just felt tired and ached when I ate it. Now I plan to go strictly gluten free along with him because I am convinced that it will be the best thing for both of us.

Ginny

skoki-mom Explorer

No, but they tend to be gluten-free for me :P Actually, my kids eat a lot of gluten-free stuff around here because I try to only cook one meal at dinner time so we all eat gluten-free for that meal. The exception is pasta, I cook them regular and me gluten-free mostly cuz it's just so freaking expensive. I have to literally pry the gluten-free chocolate chip cookies out of my youngest daughter's hands (I let her have them, but again, they are way expensive, lol!), and my oldest daughter is a pancake fiend and goes around telling everyone how the gluten-free pancakes are even better than the regular ones (Kinnikinnick mix ;)) My kids are still youngish, 7 and 5, so I figure if gluten-free gets to be normal around mom's house, it is just something they will grow with. I let them eat whatever they want for breakfast and lunch, but dinner is MINE!

Kailynsmom Apprentice

My kailyn (2 yrs old) has been gluten-free since july after blood tests and biopsy both showed no evidence of celiac disease. She's doing great and dr says he still is confident enough to give her celiac disease diagnosis. Since that time her little sister, now 11 months has weaned onto formula and began getting diahhrea. Switched to soy and she's better. Coincidence that both my kids are lactose intolerant? Perhaps, but with family history of celiac disease, dr said both kids should be gluten-free. It's just too hard to cook two meals, even though it may cost a little less for me not to eat gluten-free.

One question....anybody ever freaked over the gluten-free food prices. I recently found these AMAZING gluten-free chocolate chip cookies, but they're $4.00 for 12 cookies!! Yesterday my brother in law downed half a box and I almost lost it! I didn't know whether to scream, cry, or demand his wallet!!!

Hahaha

Mel

Guest nini

I was gluten-free first, then my daughter, but I would have to say that my husband has gone gluten-free mostly for us... we have made the house completely gluten-free. He doesn't have to be, so he will still eat it on occasion when he is out. I think he likes being gluten-free at the house because if he's eating a snack, he likes to be able to share it with our daughter and he was getting frustrated with not being able to offer her stuff when he wasn't gluten-free.

We have read Dangerous Grains too and don't think anyone should be eating gluten.

e&j0304 Enthusiast

We're trying over here, but it's been a slow transition. I don't know any good gluten-free recipies yet and Ella just basically eats hotdogs, sandwiches, and cereal for meals. Along with fruits and veggies and milk of course. She has always hated pasta and really hates gluten-free pasta. We also grill out a lot and she eats chicken.

My husband tried to be gluten-free and lasted about 12 hours and said he was starving to death. I truely believe that he has a gluten sensitivity due to his chronic fatigue, "irritable bowel", daily headaches, and overall moodiness. After all, Ella got it from somewhere, right? Actually due to her genetic testing she got one copy of the DQ1 gene from me and one from my husband so maybe we should all be gluten-free...

So far the baby is doing ok although he is almost a year old and refuses to eat solid food, spits up his milk after every feeding and has loose, watery stools about 3 times per day. Even with all of that he is gaining weight VERY well and is a healthy 23 pounds. His dr. isn't concerned about him yet.

Anyway, our whole family is hopefully going to try to go gluten-free soon.

Smunkeemom Enthusiast

I am trying to do a complete gluten lock down on the house right now, my daughter who is 2 1/2 has been gluten free for about 18 months now and it is getting annoying to cook 2 meals for dinner (although I don't have to do it often because I have found ways to gluten-free most of what I cook anyway :) )

My husband has crohn's and wants to go on the specific carbohydrate diet, which is gluten free and sugar free and dairy free and I don't think it will be near as much fun as gluten free is (seeing as how we all love our dairy) for that diet we may just single him out. I mean come on the kid can't have cake you want me to take away ice cream too? I am not seeing that happen, sorry but I really don't think so. :P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,564
    • Most Online (within 30 mins)
      7,748

    Anne65
    Newest Member
    Anne65
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.