Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

College Search: Which Colleges Really Do A Good Job W/gluten-free?


Ruth

Recommended Posts

Ruth Enthusiast

My daughter is a HS junior and has begun her college search. She has been gluten-free for 9 years. She also has other food allergies.

Obviously, the competance of the dining services will be a major part of her college decision. Does any one have any input on what colleges are really good or not good at handling gluten-free diets and food allergies?

She is primarily interested in schools in the Northeast and possibly the mid-atlantic area.

We would love some input from people with recent, first hand experience either attending college or who have recently visited.

Any help is greatly appreciated!

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

My daughter is a HS junior and has begun her college search. She has been gluten-free for 9 years. She also has other food allergies.

Obviously, the competance of the dining services will be a major part of her college decision. Does any one have any input on what colleges are really good or not good at handling gluten-free diets and food allergies?

She is primarily interested in schools in the Northeast and possibly the mid-atlantic area.

We would love some input from people with recent, first hand experience either attending college or who have recently visited.

Any help is greatly appreciated!

Thanks!

My niece attends Ithaca College in N.Y.  She absolutely raves about their gluten-free food program.  They have a separate area where the gluten-free food is stored and only certain people have access to that area.  You can order meals on-line with the cafeteria.  There are also numerous places in town where the college is, which offer gluten-free options like a cafe and restaurants.  She loves it there and it's only her freshman year.  The other wonderful thing is that my niece is not officially diagnosed but definitely has a gluten issue and the school accepts that....no "Gold Standard" testing needed.  She went gluten-free when I was diagnosed and the difference in this kid is amazing.  She had gut and neuro and behavior problems galore.

 

Good luck!

shadowicewolf Proficient

First off, she will need official documentation for her gluten free diet (celiac or intolerence?), and allergies from her doctor. She will also need to meet with each school's disability office to discuss accomodations.

As for schools themselves, i have no idea.

Ruth Enthusiast

Thank you so much Gemini ~ Ithaca is on her list of schools to visit over April vacation. This info will make her so happy :)

Did your niece consider any other schools that seemed to "get" the gluten-free thing?

shadowicewolf Proficient

If they cannot accomodate normally then a student is placed in a housing option with access to a kitchen.

Generally speaking of course.

  • 2 weeks later...
Gemini Experienced

I am sorry for the late reply....been a little too busy of late!  I know my niece went to other schools for a look but didn't really say too much about them because

when she saw Ithaca and heard about their gluten-free program, that was it.  All the others went out the window.  All I can offer is that schools in the Northeast seem to be more gluten-free friendly because Celiac is more acknowledged here.  Boston is a very gluten-free friendly city, along with many others here.  The number of restaurants offering good options and safe places to eat are exploding.  Sure, it's money driven but so isn't everything else in life.  Not all colleges require the official documentation, either.  I think that will go by the wayside soon so don't let that bother you if you don't have an official diagnosis.  Kids have all sorts of food allergies and intolerances and no one questions a peanut allergy.  Within 10 years, I can see this being the norm.

 

My niece loves Ithaca and has no trouble eating gluten-free there at all.  She is not officially diagnosed, either. They take good precautions with food handling also....this from my niece who is good to stay on top of that.  I wish you luck and hope your daughter finds her perfect fit!

Thank you so much Gemini ~ Ithaca is on her list of schools to visit over April vacation. This info will make her so happy :)

Did your niece consider any other schools that seemed to "get" the gluten-free thing?

Ruth Enthusiast

Thanks Gemini,

She is going to look at Ithaca this summer. She also heard back from Colgate and Holy Cross dining services people. They both seem very accomdating and are going to meet with us and give us a tour of their facilities this week.

We are feeling much more confident that she will find a school that "gets it."

I'll keep posting as we go for others who may be looking for similar info in the future.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

Thanks Gemini,

She is going to look at Ithaca this summer. She also heard back from Colgate and Holy Cross dining services people. They both seem very accomdating and are going to meet with us and give us a tour of their facilities this week.

We are feeling much more confident that she will find a school that "gets it."

I'll keep posting as we go for others who may be looking for similar info in the future.

That's wonderful!  I think as each year goes by, more and more colleges will accommodate the right way.  It's in their best interest to do so.  There's too many of us out there!  :ph34r:

GottaSki Mentor

We toured all the Boston schools in the Spring of 2010 -- my celiac son felt "safest" with the answers we received and what we saw in the dinning facilities of Northeastern.  I think Gemini is right -- things are improving on all college campus as awareness is spreading.

VeggieGal Contributor

I came across this article..don't know if its useful or if you're already aware .

Open Original Shared Link

  • 2 weeks later...
ryebaby0 Enthusiast

My son is finishing up his freshman year, living on campus and eating in the dining halls, at Penn State UP. He has a frig and microwave in his room, for starters. I was really skeptical at first (and we had visited Ithaca, and it is impressive) but he has had a great year. All the dining halls have a gluten free station that is stocked with pasta, chicken, etc. and desserts, sides....there is also a nutrition intern who codes the main menu for gluten-free options and that is emailed to gluten-free students (who self-identify, there's no need for documentation). There's not a lot in the main menu that's gluten-free, but the station has been more than adequate for him. His dining hall of choice knows him on sight (this is a big deal on a big campus) and is very cooperative about tweaking things to suit him. The commons convenience store, for example, at his dorm started stocking yogurt and KIND bars for him when he kept buying those. There's a tasting session each semester for new products, and the dh manager contacts him regularly to see how he's doing. It's not perfect (we're local, so I bring him a stash of gluten-free homemades to supplement) but it's very good. You don't have to order ahead, either (this used to be the case apparently, but that was changed when the students kept complaining it wasn't practical)

  • 3 weeks later...
seezee Explorer

Hi -- I found the full DOJ settlement for Lesely Unive. Your child has the right to choose any college and they are required by law to accomodate the dietary restrictions. I read a couple of news stories but didn't realize how wide the decision goes until I read the brief.

 

A recent settlement agreement between the United States Department of Justice ("DOJ") and Lesley University in Cambridge, Massachusetts explicitly extends the protections of the Americans with Disabilities Act ("ADA") to individuals with severe allergies and autoimmune conditions such as celiac disease. The position of the DOJ Civil Rights Division reflected in this precedential settlement agreement shows that every entity serving food to the public, leasing to those who serve food and even employers with cafeterias must consider how ADA requirements may affect what food is offered, how it is prepared and even how it is stored.

 

Title III of the ADA -

 

Title III of the ADA prohibits public accommodations (defined in the statute to include, among others, healthcare providers, hotels and establishments serving food, movies, theaters or other entertainment venues, public displays or collections, retail and service establishments and educational institutions) from discriminating against disabled individuals by impeding their access to full and equal enjoyment of the goods, services or programs offered by the establishment, and requires them to make reasonable accommodations to their policies, practices and procedures as necessary to provide full and equal access. For many years, ADA accommodation in educational institutions has focused on the needs of students with learning disabilities or for physical access. The DOJ's broadly-worded settlement agreement with Lesley University creates a new set of accommodation issues for schools and, more importantly, for most facilities of any kind serving food.

 

Open Original Shared Link

 

The key components of the sweeping and costly three-year  settlement agreement
require Lesley University to:
• Provide “nutritionally comparable” hot and cold gluten and allergen-free meals to
students with celiac disease and food allergies
• Take reasonable steps to avoid cross-contamination of the allergen-free food,
including preparing such meals in a dedicated space at one of the dining halls;
• Permit students with celiac disease or allergies to pre-order meals made without
gluten or specific allergens by emailing the University’s Food Services Manager
24 hours in advance;
• Serve the pre-ordered meals at the central dining hall in which they are prepared,
or deliver them (with 24 hours notice) to students at other dining halls or campus
food eateries;
• Provide students with food allergies a separate area to store and prepare food: a
room adjacent to the dining hall to which access is limited to those with  food
allergies, containing a sink and counter area, kitchen supplies, refrigerator and
freezer, cabinet space, separate appliances such as a microwave and toaster,
and a food warmer to keep pre-ordered meals warm;
• Permit students to submit to the university’s food service provider individualized
“shopping lists” of requested food made without allergens;
• Exempt students from the mandatory meal plan as a possible form of reasonable
modification;
• Train food service managers and staff to comply with the settlement agreement
and provide educational training on celiac disease and food allergies;
• Keep records of all students who request accommodations for food allergies; and
• Pay $50,000 to the complaining students.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

    2. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    4. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,924
    • Most Online (within 30 mins)
      7,748

    Jimlock
    Newest Member
    Jimlock
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • TheDHhurts
      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.