Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help. Pain In My Gut & Not Digesting, Probio's


designerstubble

Recommended Posts

designerstubble Enthusiast

Hi...

 

Any ideas... I have been on my strict diet a while now, all going ok, was feeling... dare i say it... good! But slowly, my BM are not good, undigested food EVERY time, VERY loose, not formed at all. And  I have a pain in my top right corner of my abdomen... right by the lower rib. Somethime achey, sometimes pinchy.

 

I dont want to worry (I'm having enough issues with my little boy at the moment to keep my stress levels high), anyone know anything... I havent been taking my probios for about a month as I cant find a gluten-free, dairy free, soya free, and CORN free one here in UK...

 

Are probiotics a must? Do they really help? Could it be this? I thought probiotics were only useful in the large colon?

Is it a life long thing?

 

Could this be something sinister, I'm not really up for visiting my doctor, as I am about to change doctors again.

I need some self help tips!

 

Thank you thank you thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I haven't found that probiotics make all that much difference, though they do make some difference so I continue to take a probiotic as well as eat my 100% grass fed yogurt.  I'd look at recent changes to your diet.  If there none, sometimes the change was made at the supplier end.  I have found those the most difficult to figure out.  I have just had to keep on doing elimination/challenge diets until I found the right thing.  One thing that helped me was to sometimes eat more of something to see if things get worse.  Sometimes that is faster or easier than elimination.  It seems that I have gotten more sensitive over time.  That could be happening to you too.  By strict diet, do you mean mainly produce and unprocessed meats?  If not, you could try that.  I hope you feel better soon.

designerstubble Enthusiast

I haven't found that probiotics make all that much difference, though they do make some difference so I continue to take a probiotic as well as eat my 100% grass fed yogurt.  I'd look at recent changes to your diet.  If there none, sometimes the change was made at the supplier end.  I have found those the most difficult to figure out.  I have just had to keep on doing elimination/challenge diets until I found the right thing.  One thing that helped me was to sometimes eat more of something to see if things get worse.  Sometimes that is faster or easier than elimination.  It seems that I have gotten more sensitive over time.  That could be happening to you too.  By strict diet, do you mean mainly produce and unprocessed meats?  If not, you could try that.  I hope you feel better soon.

Thanks for that... thats a good idea about trying more of something...these elimination diets are so exhausting. Interesting that the probiotics havent made much difference for you, i have just read a thread where everyone was saying how good they are...it's so confusing, i thought they weren't doing much but maybe they were? Aaaaaaaagh!

My strict diet is basically unprocessed fruit and veg (i am vegetarian so do not eat meat)... I have got so many allergies since being gluten-free that even my beloved seeds are out, and eggs are gone too sadly. So its fruit and veg. If it wasn't for my green juice in the morning I'm not sure how i would exist or if I would still be alive? 

I just don't understand why everything comes out in the same state that i ate it virtually? Worrying really.

Thanks for your help, I'm trying to be positive, I have even taken up TaeKwonDo! Only once a week, but I don't have the energy for more... 

 

Ps. Are you ever able to include those things you have eliminated because of sensitivity further along, with time?

jhol Enthusiast

hi designer stubble,

 

you sound just like me at the moment- im really struggling. im veggie too( 20 years) and ive seriously been thinking of buying some meat to try!!!!!

 

i too felt fantastic the first few weeks and its been downhill from there. foods that i was eating last month are now a no go. i just took some rice noodles out of the cupboard- there rice noodles right - made out of rice. but no theyve got potato starch in them!!! the gluten free pretzels i was snacking on,potato and soya!!. been feeling crap for past few weeks, im thinking its the soya. so now its veggie,no gluten,no dairy, no nightshades,no eggs,no drinking,no acidy fruits and no soya. dont know what id do if i lost corn !! my bm,s have undigested food in them too and are yellow :blink: im  livin off rice, sweet potato, and hummus at the moment.

soz i cant help you with any advice though.  im really hoping i can reintroduce some foods at sometime.

VeggieGal Contributor

hey, I'm veggie too and having all the same problems...just so unsure which intolerances/allergies I have but know I've got to cut dairy out for sure which is a pain!

I can't normally have corn either but seem ok on the Holland & Barrett mega potency Probiotic Acidophilus (3 billion) its No starch, milk, lactose, soya, gluten, wheat, yeast, fish, porcine, flavours, sweeteners, artificial colours...but does have maltodextrin?? is that corn. I do feel better when I remember to take them anyway.

Hope you feel well soon.

bartfull Rising Star

Designer, if I'm not mistaken, Steph has DH, and those with DH don't usually get the villi damage the rest of us do. They may get digestive SYMPTOMS the way folks with non-celiac gluten intolerance do, but if probiotics don't help her, that could be the reason why.

 

I am in the same boat with you. So many intolerances I can't find any supplements without SOMETHING I can't have. The solution is to eat fermented foods like saurkraut (pardon the spelling), if you can stand the stuff. I can do dairy so I eat organic yogurt - LOTS of it.

 

VeggieGal, maltodextrin DOES have corn, at least it usually does. You could call the company to find out for sure, but if it lists all of those other things it doesn't have without mentioning corn, odds are it deos have corn.

dilettantesteph Collaborator

Ps. Are you ever able to include those things you have eliminated because of sensitivity further along, with time?

 

I'm afraid not.  In the study recently published about trace gluten referred to in the super sensitive section, they said that most of those participants were able to go back to a typical gluten-free diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Hi DS!

 

I used probiotics for several years -- I know they help many folks - but didn't do much for me -- are you taking digestive enzymes?

 

Hated to hear you are having these troubles...many of us do become more sensitive as time gluten-free passes -- I remain ever hopeful that I'll get many of the healthful foods I have lost back and you will too!

dilettantesteph Collaborator

Designer, if I'm not mistaken, Steph has DH, and those with DH don't usually get the villi damage the rest of us do. They may get digestive SYMPTOMS the way folks with non-celiac gluten intolerance do, but if probiotics don't help her, that could be the reason why.

 

I don't have DH, that was another family member.  Probiotics do help.  They just don't help as much as I would like. 

designerstubble Enthusiast

Thanks my lovelies. Your all great help, it's just nice to know I'm not on my own. I thought by now I would have picked up a bit... gluten-free for over 6 months. I'm down in the dumps today, I want to reply to you all individually but I'm so cross and upset with this new 'pressure hives' situation that has been coming on slowly (and peaked today with most of my arm covered)...just wanna go and curl into a ball and cry. So I hope you excuse me, I think I'll feel better if I do that.

Oh and that's bartful, I'll look into sauerkraut... Veggie gal, corn in the holland and barret ones (even higher nature dont do them)... Ugh.

My stomach pain, my hives and welts, my crap everything. :(

GottaSki Mentor

Thanks my lovelies. Your all great help, it's just nice to know I'm not on my own. I thought by now I would have picked up a bit... gluten-free for over 6 months. I'm down in the dumps today, I want to reply to you all individually but I'm so cross and upset with this new 'pressure hives' situation that has been coming on slowly (and peaked today with most of my arm covered)...just wanna go and curl into a ball and cry. So I hope you excuse me, I think I'll feel better if I do that.

Oh and that's bartful, I'll look into sauerkraut... Veggie gal, corn in the holland and barret ones (even higher nature dont do them)... Ugh.

My stomach pain, my hives and welts, my crap everything. :(

 

Boo.  I'm stomping my feet here for you!

shadowicewolf Proficient

The upper right area of the abdomen is where the gallbladder sits. Having issues with it are not all that uncommon. In fact, mine got worse after i removed gluten from my diet.

mushroom Proficient

I'm with Lisa on the digestive enzyme issue.  You won't get goodness out of your foods or supplements if you can't break them down, and that takes enzymes.  Sometimes gluten knocks our pancreas for a loop and it takes a vacation until we heal, thus stops sending enzymes to the gut for digestion.  I take some called v-zyme made for pharmax in the UK.  Apart from the enzymes themselves the ingredients are cellulose, and vegetable magnesium stearate. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    2. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    5. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748

    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.