Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mouth Pain After Glutening?


Nikki2777

Recommended Posts

Nikki2777 Community Regular

I'm quite sure I got 'glutened' at a restaurant last night.  No need to go into the details, but I was a mess with D most of this morning.  I've been gluten-free for about two months and generally feeling good.  Tonight, I'm feeling like my mouth has got scurvy - i know, too early for a vitamin C deficiency, but that's how it feels.  I was just starting to feel this way regularly before my diagnosis, so I wonder if it's related.

 

Anyone experience this?  Kind of an odd effect of a glutening, no?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I get this also so your not alone. It does seem an odd effect but I think the inflammation that comes with a glutening has something to do with it.

Hopefully you will feel better soon.

pricklypear1971 Community Regular

Yep, inflammation. My gums will bleed when I'm inflamed. Took me forever to figure it out. Mouth problems go with swollen feet for me.

cavernio Enthusiast

Yes, feeling like I had only eaten candy all day or bit my tongue or cheek in the middle of the night is a symptom I have. I also get gum/tooth pain, but it feels just like nerve pain I get in my hands, not like sores.

Nikki2777 Community Regular

Wow.  So interesting.  Thanks everyone.  I would have never suspected the relationship.  I guess this is a good sign for me that I'm dealing with a glutening rather than just something disagreeing with me.

glutenfree7562 Newbie

Eating gluten for me has caused TMJ, mouth/tooth pain, and repeat tonsillitis (weakened immune system I think). Doctors have told me none of these things are related to my celiac, but I never had any of these symptoms or problems before. I'll get a small cold and end up with a fever, sinus infection, ear infection, and I've had tonsillitis twice since I started to get sick from celiac a year ago. I've been gluten free for 2 months now.

gatita Enthusiast

Yep, there were times when I felt my mouth was just....raw. Sore and raw. On top of that, the inside of my lips would peel off. Eeeek.

 

 

ps.The good news is since 10 months gluten-free my gums no longer bleed when I brush. Yeehaw.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
yaelchai Rookie

I just posted a question about mouth issues and now see this. For over 2 months my mouth has felt like it is burned inside. My gums are sensitive, and my lips are swollen and sore. I am now being super careful about gluten contamination and bought new pots, bowls, and utensils. 

 

Hope it works. I am really really tired of this.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,116
    • Most Online (within 30 mins)
      7,748

    Mary Pack
    Newest Member
    Mary Pack
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.