Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety!

Dozey

Recommended Posts

Dozey Apprentice
Dozey
Posted

I have just been reading some old posts and discovered a thread about anxiety. What a relief! Not that I would wish it on anyone, but anxiety is one of my worst symptoms and I'm pleased to know I'm not alone. The very worst thing for me is the feeling of not being part of the real world. Like I am locked in myself and can't find the key to get out. It makes me fear I am going mad and will never be a normal person again. Could this also be due to gluten?

Thank you

Jo

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

I have just been reading some old posts and discovered a thread about anxiety. What a relief! Not that I would wish it on anyone, but anxiety is one of my worst symptoms and I'm pleased to know I'm not alone. The very worst thing for me is the feeling of not being part of the real world. Like I am locked in myself and can't find the key to get out. It makes me fear I am going mad and will never be a normal person again. Could this also be due to gluten?

Thank you

Jo

Yes, it could.

Dozey Apprentice
Dozey
Posted
  • Author

Yes, it could.

Many thanks

Jo

dark-angel-warriore Newbie
dark-angel-warriore
Posted

I have just been reading some old posts and discovered a thread about anxiety. What a relief! Not that I would wish it on anyone, but anxiety is one of my worst symptoms and I'm pleased to know I'm not alone. The very worst thing for me is the feeling of not being part of the real world. Like I am locked in myself and can't find the key to get out. It makes me fear I am going mad and will never be a normal person again. Could this also be due to gluten?

Thank you

Jo

Yes, I have that.

taynichaf Contributor
taynichaf
Posted

I have very bad anxiety too! I think it is due to gluten... this gluten challenge has me overwhelmed about the littlest things!

Dozey Apprentice
Dozey
Posted
  • Author

Thanks dark angel and taynichaf. As I said I wouldn't wish it on anyone but it is reassuring to know others understand it, and that it has a possible cause.

Jo

VeggieGal Contributor
VeggieGal
Posted

I have just been reading some old posts and discovered a thread about anxiety. What a relief! Not that I would wish it on anyone, but anxiety is one of my worst symptoms and I'm pleased to know I'm not alone. The very worst thing for me is the feeling of not being part of the real world. Like I am locked in myself and can't find the key to get out. It makes me fear I am going mad and will never be a normal person again. Could this also be due to gluten?

Thank you

Jo

Could also be your thyroid Jo. I suffer too :( . Its possible that because I've cut out gluten then I don't need so much levothyroxine anymore so need blood works doing again.

I'm currently doing a slow gentle detox and finding ways to de-stress to help support a healthy adrenal function.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dozey Apprentice
Dozey
Posted
  • Author

Hi VeggieGal, i have recently had my thyroid checked and been told my dosage is correct, although of course I haven't gone gluten free yet. Just hope it will go away soon, I don't like it :)

Jo

VeggieGal Contributor
VeggieGal
Posted

Hi VeggieGal, i have recently had my thyroid checked and been told my dosage is correct, although of course I haven't gone gluten free yet. Just hope it will go away soon, I don't like it :)

Jo

Well hopefully the gluten free lifestyle may help ..just might take some time .

Dozey Apprentice
Dozey
Posted
  • Author

Well hopefully the gluten free lifestyle may help ..just might take some time .

Ok, thank you

Jo

jhol Enthusiast
jhol
Posted

I have just been reading some old posts and discovered a thread about anxiety. What a relief! Not that I would wish it on anyone, but anxiety is one of my worst symptoms and I'm pleased to know I'm not alone. The very worst thing for me is the feeling of not being part of the real world. Like I am locked in myself and can't find the key to get out. It makes me fear I am going mad and will never be a normal person again. Could this also be due to gluten?

Thank you

Jo

hi dozey,

 

you have just described virtually to the letter exactly how i have felt nearly all my life. ive tried to describe it as "being trapped in a bubble and i can see whats going on in the world but im unable to join in" or "being trapped in a perspex box and i can see out but nobody can see me" ive been gluten free now just over 3 months and to be honest i dont really think about stuff like that anymore. is that lack of gluten? or just that your heads in a better place? probably a mix of both- i find im finding it easier in social situations too! 

 

hope that helps, good luck with going gluten free x

Dozey Apprentice
Dozey
Posted
  • Author

Hi jhol, and thank you yes it does help and gives me a bit of hope. I hope you keep seeing improvements and am pleased you are feeling better.

Jo

Miss-Marie Rookie
Miss-Marie
Posted

Since I first got the symptoms of celiac I've been extremely anxious all the time, and I feel like im not apart of the real world too. I think my anxiety is mainly from the stomach issues I've been having - which means that I always have to plan the nearest bathroom etc, glad to know I'm not alone on this one x

Dozey Apprentice
Dozey
Posted
  • Author

Since I first got the symptoms of celiac I've been extremely anxious all the time, and I feel like im not apart of the real world too. I think my anxiety is mainly from the stomach issues I've been having - which means that I always have to plan the nearest bathroom etc, glad to know I'm not alone on this one x

Hi Miss Marie, it's a horrible feeling isn't it, the anxiety and unrealness. I am glad I'm not alone too. I have just had my first session of CBT and the therapist says she has never come across DP before! She did say though that she thinks my anxiety syems from some thing physical rather than being purely a mental problem. Hope things get better for you soon.

Jo

English Chris Newbie
English Chris
Posted

I have just been reading some old posts and discovered a thread about anxiety. What a relief! Not that I would wish it on anyone, but anxiety is one of my worst symptoms and I'm pleased to know I'm not alone. The very worst thing for me is the feeling of not being part of the real world. Like I am locked in myself and can't find the key to get out. It makes me fear I am going mad and will never be a normal person again. Could this also be due to gluten?

Thank you

Jo

I'm a 15 stone 6ft 5 man who doesnt do illness - six months ago I was flying a helicopter, I got on a plane on my own last year and drove across Florida. Three months ago I was diagnosed with Coeliac. Over the weekend I was obviously contaminated by a large quantity of gluten - Tuesday morning on the way to work I was hit with the mother of all Anxiety attacks, the top of my head went numb, I went dizzy and the pressure in my head had me on the verge of concerning myself that I was going to black out/ die or have a stroke. I drove myself to A&E. My blood pressure was normal, pulse a healthy 68bpm, but I really did not feel myself, they said it was a stress attack. Yesterday I cried like a baby in front of my girlfriend (I dont do crying), I felt I was losing control of myself. This morning I woke feeling the same - the release of adrenalin makes my legs shake. I got out of bed put my trainers on and ran probably the quickest mile of my life, 30 mins later I still feel dizzy, my head is still numb, but the panic has gone. I am due another check up this morning with my doc and will hopefully rule out other possible conditions, which judging on the speed I ran that mile I would imagine would rule out MS? When you feel you are slipping into the Anxiety imagine yourself in a good place and focus on it, stop your mind from racing, that makes it worse, easier said than done I know. I feel relieved that 99% this is the cause of gluten and Coeliac. I wish you well and I hope you improve - it is easy for it to dent your confidence in going out the door, dont let it.

Dozey Apprentice
Dozey
Posted
  • Author

I'm a 15 stone 6ft 5 man who doesnt do illness - six months ago I was flying a helicopter, I got on a plane on my own last year and drove across Florida. Three months ago I was diagnosed with Coeliac. Over the weekend I was obviously contaminated by a large quantity of gluten - Tuesday morning on the way to work I was hit with the mother of all Anxiety attacks, the top of my head went numb, I went dizzy and the pressure in my head had me on the verge of concerning myself that I was going to black out/ die or have a stroke. I drove myself to A&E. My blood pressure was normal, pulse a healthy 68bpm, but I really did not feel myself, they said it was a stress attack. Yesterday I cried like a baby in front of my girlfriend (I dont do crying), I felt I was losing control of myself. This morning I woke feeling the same - the release of adrenalin makes my legs shake. I got out of bed put my trainers on and ran probably the quickest mile of my life, 30 mins later I still feel dizzy, my head is still numb, but the panic has gone. I am due another check up this morning with my doc and will hopefully rule out other possible conditions, which judging on the speed I ran that mile I would imagine would rule out MS? When you feel you are slipping into the Anxiety imagine yourself in a good place and focus on it, stop your mind from racing, that makes it worse, easier said than done I know. I feel relieved that 99% this is the cause of gluten and Coeliac. I wish you well and I hope you improve - it is easy for it to dent your confidence in going out the door, dont let it.

Thank you Chris, the anxiety and spaciness is the worst thing I think. It robs us of everything positive,Courage, confidence and determination. My blood result was negative for Celiac but I think I may try cutting out Gluten anyway. My vit D was low so that I think can contribute to amxiety etc as can low b12 which I also have. I hope things improve for you soon.

Fern

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748
    tessycork47
    Newest Member
    tessycork47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.