Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By Restaurant- Is It Fair To Ask For Money Back?


gluten-is-kryptonite

Recommended Posts

gluten-is-kryptonite Apprentice

It was a gluten free pasta dish and I gave them my celiac dining card. Is that fair to ask for my money back? I was glutened quite badly- been sick for the past 6 days.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

You can always ask. Not sure how you could prove it. Might have been better if you had contacted the manager on day one rather than day 6 or 7. They might have been able to check what happened and who cooked, etc and corrected any mistakes.

Adalaide Mentor

I see a fair number of restaurants say right on the menu that they handle gluten containing ingredients in the kitchen and that while they will take every precaution they can not guarantee that there will absolutely not be CC. In this sort of instance you would automatically be SOL as they would probably point that out to you and tell you they are very sorry but eating out is a risk.

 

We should always remember before dining out that it is a risk. How much of one really depends on the place we go, the staff and the dialogue we create with the staff to ensure a safe meal. We need to be part of a team when we dine out in educating those handling our food if necessary to be sure we eat safely. Just because a gluten free menu exists, doesn't mean the staff has a clue.

 

I do agree that it having been a week makes it a bit dicier. Personally, I would know before I left a restaurant if I were gotten. I would speak with the staff, make sure they understood the seriousness of the situation and probably expect not to pay for my meal as I would be spending a fair amount of time on my way home stopping to use bathrooms. If for any reason I had to contact them later, and I would to let them know there was some sort of mix up so they could prevent it from happening again. I would certainly not complain if I could get a gift card or something, because under most circumstances I believe people deserve second chances. Or I could at least give it as a Christmas gift, no matter how tacky people may think that is.

IrishHeart Veteran

I had one very  bad experience early on after my DX and I  contacted the restaurant the week after and asked to speak with the chef or manager. Now, this is an upscale place we have gone to  for our anniversary for many years and they have a G F menu.  I  did not expect anything.

I just wanted to alert them that their "G F Flourless Chocolate cake"...was not good enough for a celiac because I was sick

as a dog for a week after I ate it.

 

 I KNOW it was not the meal (they have a dedicated section in the kitcehn) but as it turns out, their desserts were not made on 

the premises,  So, it was probably a CC issue in the bakery.

 

The chef was stunned to know that the dessert may have been the problem. He apologized  profusely after reassuring me many times his kitchen had dedicated spaces and it was inspected to be  "G F Friendly". I said " yes, yes I know, Louis...believe me, it was the dessert!!

but you cannot say on the dessert menu "G F" when you cannot source the item.

 

So, he sent me a &$25. gift certificate and asked me to come and look at his kitchen space.  I did not care about getting the gift certificate  as I figure any time we dine out, we are playing Russian roulette and I cannot expect anything just because I have celiac.

But, really, but it was very nice of him.

 

He asked me a dozen questions and told me this: "We took a G F certification course, But I learned more about cross contamination and celiac  from you in this conversation! so, thanks".

 

You may not get anything back, but you may be able to enlighten them. And that's a very good thing..

Nikki2777 Community Regular

I recently called a restaurant where this happened to me.  They were so nice and attentive and helpful when I told them my issue, and assured me that my steak was gluten free -  I'm guessing that the issue was the marinade on the steak.  It tasted too good and was probably marinated in soy sauce.  I wanted to alert them that soy sauce is not gluten free.  After a lot of lip service, they basically dismissed me.

Lisa Mentor

I'm a firm believer that you get what you get when you eat out.  And most time you need to plan ahead and do your homework.

 

I live in a small town,with a restaurant who is not too willing to explore gluten free options for their clients. I DO know what to order, as we do weekly.  Most waitresses know me, others are new, but attentive. Friday evening, I ordered a Ceasar Salad without bread or croutons.  It arrived with hushpuppies.........why does the kitchen make choices for me???  I sent it back, and our server said to the facilitator  , "just take them off". I was not happy.  Our waitress knows me well.

 

While I did not request my money back, the tip was greatly reduced, and I intend to talk to the proprietor. (translateed:  Ginny was a b%$@# and I seriously will talk to Brian about this)! <_<

kareng Grand Master

I'm a firm believer that you get what you get when you eat out.  And most time you need to plan ahead and do your homework.

 

I live in a small town,with a restaurant who is not too willing to explore gluten free options for their clients. I DO know what to order, as we do weekly.  Most waitresses know me, others are new, but attentive. Friday evening, I ordered a Ceasar Salad without bread or croutons.  It arrived with hushpuppies.........why does the kitchen make choices for me???  I sent it back, and our server said to the facilitator  , "just take them off". I was not happy.  Our waitress knows me well.

 

While I did not request my money back, the tip was greatly reduced, and I intend to talk to the proprietor. (translateed:  Ginny was a b%$@# and I seriously will talk to Brian about this)! <_<

Next time accept it and put a sugar packet in the bottom. Then give it back. Even if the waitress sees you do it. That keeps you from getting a salad with crumbs


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pretty in paleo Apprentice

I guess you can try for a refund but they will either say 'you cant prove you were sick because of us' or ' if your that sensitive you shouldn't put faith in other people prepare your food'. If I were you I would just let them know be more careful for the sake of future celiacs who eat there. And don't eat there again, yourself.

Nikki2777 Community Regular

Next time accept it and put a sugar packet in the bottom. Then give it back. Even if the waitress sees you do it. That keeps you from getting a salad with crumbs

 

I don't understand this - Maybe I'm not thinking creatively, but how does this work?

kareng Grand Master

I don't understand this - Maybe I'm not thinking creatively, but how does this work?

Someone gives you a salad with a breadstick or croutons or other gluten laden stuff on it. You send it back. Some places will just take the bread off and bring you the same salad back. But how would you know? You have hidden a sugar packet in the bottom of the bowl! This is the time to call the manager over. If you are given a steak with a piece of bread on the plate, cut the steak in half before sending it back so you don't get the same steak back.

Nikki2777 Community Regular

Someone gives you a salad with a breadstick or croutons or other gluten laden stuff on it. You send it back. Some places will just take the bread off and bring you the same salad back. But how would you know? You have hidden a sugar packet in the bottom of the bowl! This is the time to call the manager over. If you are given a steak with a piece of bread on the plate, cut the steak in half before sending it back so you don't get the same steak back.

Ahhhh. Very clever! I like these. Thanks.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,976
    • Most Online (within 30 mins)
      7,748

    Redrayvyn
    Newest Member
    Redrayvyn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It sounds like your gastroenterologist is becoming increasingly confident that celiac disease is the likely diagnosis based on both your older and newer lab results. Her suggestion to call each Monday for possible cancellations is actually a great strategy—especially given how long the wait is until your August 29th appointment. It’s also a good sign that she’s advocating for you to be seen sooner, which shows she’s taking your case seriously. The fact that some labs might not have been drawn yet due to overlap with your functional health doctor’s upcoming testing adds a layer of confusion, but that’s unfortunately common when multiple providers are involved. Hopefully, the GI’s remaining labs will still get processed, or she can reorder them if needed. As for the colonoscopy prep, it’s totally understandable that you're dreading it—many people rank it among the least pleasant medical experiences. You’re definitely not alone in preferring the pill prep option over the liquid kind, especially if you don’t drink Gatorade and had a rough experience with Miralax in the past. Hopefully, your doctor will approve the pill form, especially since you’ve tolerated other options poorly before. Fortunately, the upper endoscopy doesn’t require any bowel prep—just fasting, usually starting the night before—so that part should be easier to handle. It’s great that you’re already trying to boost your gluten intake, but yes, tracking gluten content can be surprisingly tricky. You’re right that the general rule for wheat-based products is to multiply the protein content by about 0.75 to estimate the gluten content. That means foods like oyster crackers, while convenient, may not pack enough gluten to help reach the recommended daily goal of around 10 grams before biopsy. It’s helpful that you caught that early, and switching to more gluten-dense foods like regular wheat bread, pasta, or wheat cereals might make it easier to hit your target. It’s not easy eating more gluten when you’re trying to manage symptoms or just not used to it, but doing so can make a big difference in ensuring your biopsies are accurate. You’re on the right track—hopefully with a little luck, you’ll get a cancellation and be seen sooner.
    • cristiana
      Thanks for sharing that film, @trents.  I am not sure how I missed that film as I see it is a few years old, but it is very good.  I think you should be fine if you take your own packed lunch and eat it from your own lunchbox etc.  Might be worth doing a lunchtime recce to see how cramped the room is before making a decision - for all you know, there may be other people  there who don't eat gluten?
    • cameo674
      The GI doc messaged me this afternoon that she believes that the new blood work added to the old is definitely  looking like a celiac diagnosis is in my future.  She wants to me to call into scheduling each Monday to see if I can get my August 29th appointment moved up due to cancellations.  I have never had a doctor recommend that.  She also said there were additional labs that she requested still out that have not come back yet; so, they may have been missed drawing those since the functional health doctor has a whole slew of labs that I am suppose to be waiting until August 27th to do. I am still waiting to hear on whether or not she will allow me to do pill prep versus the typical gatorade prep that I did 8 years ago for that colonoscopy.  I do not drink gatorade to begin with and that miralax prep kept me in the bathroom up until we drove to the procedure.  My younger brother said the pill form was fairly easy when the liquid form is hard to swallow. Colonoscopy prep is definitely close to number one on the list of things I never want to experience again if I could avoid it.  Number one is a different medication that caused severe cramping that had me in tears until it wore off.  Never having had an endoscopy, I have no idea of what that prep is like, but it cannot be worse right? I started munching on oyster crackers last night.  It is shocking how filling they are.  I just read that I need to pay attention to the protein content of the wheat bread product or I will miss the gluten goal of 10 g per day prior to testing.  The post said that I should look at the protein and multiple that number by .75 if it is a wheat flour product to see how much gluten is in it.  No more oyster crackers for me.  I would have to eat 10 oz bag everyday to meet my goal.  not going to happen.
    • Alibu
      Well, I've made if from the pre-diagnosis forum to here!  I've been diagnosed with "latent" or "potential" celiac and my doctor has suggested me to go gluten-free before my appointment with him in October (first available, LOL).  My ttg-iga was 152, my EMA was positive, I have the gene, but my biopsy was negative (and he took 12 samples), so it makes sense to go gluten free to see if I improve. I know the basics - I can find lists of things to avoid, I know about hidden dangers, etc. all of that.  Where I'm struggling is just STARTING.  I need to go shopping and stock up on some staples.  My goal is to not try to find gluten-free alternatives, but to focus on naturally gluten-free foods like proteins, veggies, fruits, and carbs like potatoes and rice.  However, the rest of the household will not be gluten-free, which is fine, I don't want them to for various reasons.  But I have SO much food in my house in the pantry and fridge and cabinets, and it feels like I need to get rid of a lot in order for me to start fresh, but at the same time, I can't get rid of everything. I guess it's just feeling overwhelming and I've never given up gluten before so this is going to be a huge shift for me and I feel like I need SPACE, but I can't quite have that. Any advice on just getting started and organizing myself would be great!  
    • Scott Adams
      It’s great that you were finally able to see a gastroenterologist—and even luckier to get in the same day as your referral! It sounds like your GI is taking a very thorough approach, which is reassuring given your complex symptoms and history. The confusion around your different tissue transglutaminase (tTG) antibody results is understandable. The variation between your December and June labs may be due to multiple factors, including differences in the lab performing the test (Quest vs. Mayo Clinic), the specific assay used, and the amount of gluten you had been consuming before each test. Antibody levels can drop significantly when gluten is reduced or eliminated from the diet, even partially, which might explain why your recent tTG IgA was now negative and your tTG IgG was borderline high. That’s likely why your GI mentioned it was “usually the reverse”—typically, tTG IgA is more commonly elevated in confirmed celiac, not IgG alone, especially when IgA levels are sufficient, as yours are. Your gene testing confirms that you carry HLA types (DQ2.2 most likely) that are permissive for celiac disease, meaning you can develop it, but not everyone with these genes will. These genes don’t explain why your symptoms are milder or different from others with celiac—many people have so-called "silent" or atypical presentations like yours, with issues like long-term heartburn, loose stools, nutrient intolerances, or just gradually adapting to symptoms over time. It’s not uncommon to assume these symptoms are just aging, medication side effects, or lifestyle-related until someone finally connects the dots. It’s a good thing your daughter advocated for you to be tested—many cases are missed for years because they don’t follow the “textbook” presentation. As for the immunoglobulin tests, your doctor likely ordered those to ensure your immune system is functioning normally, particularly your IgA level, since a deficiency can cause false-negative celiac blood tests. Since your IgA level is normal, your tTG IgA test should be reliable (assuming adequate gluten intake), but again, if you weren't eating enough gluten, that could explain the lower antibody levels now. The comprehensive metabolic panel and negative stool parasite results are additional pieces ruling out other causes of your symptoms, like infections or organ dysfunction. The upcoming endoscopy and colonoscopy should provide more definitive answers, especially with biopsies looking for celiac disease, eosinophilic esophagitis, and microscopic colitis. It’s completely valid to feel unsure about what you’re experiencing, especially when your symptoms have been lifelong or gradually worsening without being severe. You’re not alone—many adults with celiac or gluten-related disorders report subtle or chronic symptoms they’ve normalized. You’re doing the right thing by staying on gluten now through your procedure date in August. Try not to stress about reaching the full 6-slice equivalent each day, but do increase your gluten intake as much as tolerable (e.g., a couple of pieces of bread, pasta, crackers, etc.) to give the biopsy the best chance of detecting any damage. Good luck with your upcoming procedures—you’re closer than ever to answers and a clearer direction forward.
×
×
  • Create New...