Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Venting


NotMollyRingwald

Recommended Posts

NotMollyRingwald Apprentice

Please excuse my pity party but its either post on this website full of prople who get it or run screaming through the neighborhood and get locked in the looney bin.

I've had about all I can take of this gluten challenge. Admittedly I've let of go too far (eating too much gluten), partly because I'm desperate for confidence in a diagnosis (+ of -, idont care, i judg want to be sure my test results are accurate) and partly because I'm mourning the loss of my childhood comfort diet (processed junk food). My head is such a mess. Headache and brain fog so thick I cant thnk straight, exhausted despite more sleep than usual, dark circles under my eyes, horrible smells all around me (body odor and gas, despite stict hygiene measures), it hurts to lie down, it hurts to sit up. Stomach acid boiling, constant acod in the back of my throat. Everyone at work has noticed, they keep asking me if m ok, that I look sick. And I AM sick. The worst part is the Ffect on my fmily. I'm missing out on time with my son, breaks my heart when he asks me if I'm still sick..."you not sick anymore mommy?" He's not even four yet...i don't remember telling him I as sick, but he obviously gets that something is wrong with mommy. :*( My marriage is strained. Hubby is trying to understand, but he just doesn't. My libido is gone, all I want to do is sleep/lay down... He is being as supportive as he can, but its not fair to him... Plus i just realized that i most likely ahve to keep eating gluten for longer thN i was thinking, unless the GI is able to schedule for an endo right away, ive got AT LEAST 2ore weeks of hell i fromt of me. Ugggggggggh. I just want to curl into a ball and hide. My optimism and positivity are gone. I hope they come back.

Sorry for the negativity. Just had to get that all out. Maybe looking back at this post will help me stay gluten free someday....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NotMollyRingwald Apprentice

Ps please excuse the typos and grammar errors. On my phone...and frankly scarlet I don't give a da*$.

SeekingSarah Apprentice

((((((hugs)))))

shadowicewolf Proficient

Look at it this way, there is only two more weeks to go. You've made it this far, you can do it!

kareng Grand Master

Thank goodness you chose posting here over running naked, down the street with a baguette in your hand!

( that was what you said, wasn't it? )

notme Experienced

((((((((((((((hugs, kiddo, hang on, you're almost there)))))))))))))))))

Celiac Mindwarp Community Regular

IT WILL GET BETTER AFTER (all of it iykwim)

My husband has back and even better version of me than the one he married.

It is always worth calling for cancellations. I wrote down my gluten challenge symptoms and my doctor saw me pretty sharply.

I know you want the definitive diagnosis, but many of us are ncgi, and experience massive benefits from gluten-free. Your body has made it very clear.

We are all rooting for you and will be here for your journey back to health.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NotMollyRingwald Apprentice

Thanks everyone!! I can't tell you how grateful I am for this site...having support from people who really know this hell is invaluable. 

 

I woke up feeling more positive this morning. Heard a few songs on the radio on the way to work that were encouraging, and a reminder that I'm not alone and foresaken, there is amazing support here and He is always with me.  Reminded me I need to be thankful the symptoms aren't much worse, caz they really could be a LOT worse. I can get through this day.  I can get through the rest of this challenge.  Then I can start healing and get my life back. It will be ok. :)

 

 

Thank goodness you chose posting here over running naked, down the street with a baguette in your hand!



( that was what you said, wasn't it? )

BTW - I literally LOL'd Kareng.  That wasn't what I wrote, but you managed to understand exactly what I meant! :lol:

kareng Grand Master

 

 

BTW - I literally LOL'd Kareng.  That wasn't what I wrote, but you managed to understand exactly what I meant! :lol:

 

I know.  Just wanted you to laugh.

NotMollyRingwald Apprentice

I know.  Just wanted you to laugh.

:D  well done!! :lol:

kareng Grand Master

:D  well done!! :lol:

 

 

The neighbors would have been talking about that for years!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,929
    • Most Online (within 30 mins)
      7,748

    Mike Rowicki
    Newest Member
    Mike Rowicki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.