The New Celiac Drug Is Out There

[Tbolt47]

  On 7/13/2013 at 2:51 AM, IrishHeart said:

 

(At one time I was on 12 meds, doing what I was told--treating all my "syndromes", conditions and AI symptoms and STILL, it was  keeping me ill----'cause that how doctors and Big Pharma likes it)

 

 

Are you exaggerating to make a point ,or do you truly believe your MD and " big Pharm" are conspiring to keep you "ill " ? Perhaps its time for a new MD ?

[Lawrence]

I've been on this gluten-free diet now for almost 7 years and if a cure came out I would go running for it. I agree that pills cause problems but as we get older we will all have to take pills for various other health problems that we develop. What is the problem with adding on another pill that will make life easier? Perhaps for some people eating gluten doesn't enter their mind but I would not hesitate at the chance to go back to normal. I don't consider this to be a normal state. I know most people will disagree agree and want to argue but I think deep down inside most people are skeptical and afraid, that is why everyone wants to wait 20 years after a pill comes out to try it but by then it is pointless. We won't life forever so if something comes out then live a little and try it.

[pricklypear1971]

I've been reading this thread, determined not to get embroiled (other than my original response)... But I do feel the need to add this.

The odds that a pill (or shot or whatever) will be developed that "fixes everything" involved in Celiac disease or autoimmune diseases (that's a big pot of diseases right there) is pretty slim. Not impossible, just pretty slim. A vaccine may accomplish this - but that isn't a cure, it's prevention.

It has been my experience that every pharmaceutical fix has a side effect, or a hole where symptoms still leak through. I'd expect nothing different from a Celiac Disease pharmaceutical.

So, am I open to hearing about it - yeah. Do I think it will "fix everything"? Nope. I'm just being realistic.

A vaccine for Celiac? I'd be much more hopeful about the effectiveness if a vaccine to prevent it from developing.

[dilettantesteph]

I also don't see how eating unprocessed foods is depriving yourself.  Do you ever watch master cooking shows on T.V.?  Are they going on about opening cans and frozen boxes of food?  No, they go on about cooking with the freshest ingredients available. 

 

Edited to say:  I looked back and can't even see the post I was replying to.  I'm just agreeing with IrishHeart " veering waaaaay off topic".

[IrishHeart]

  On 7/13/2013 at 2:02 PM, Tbolt47 said:

Good Morning IrishHeart,

" Deprived " is your word, I said I was not satisfied eating produce and unprocessed meat nor with the lack of spontaneity. Developing Celiac's was not an epiphany for me, I have long understood the value of eating right and exercise. My father introduced me into running when I was 14. For the past 30+ years I have averaged 20-25 miles a week. Breakfast and Lunch are very healthy meals . Dinner I ate what I wanted and as much as I wanted and enjoyed it tremendously, until 7 months ago. I truly feel for those who have suffered for years undiagnosed and finally have the answer.I understand their agony and than  rapture when they alter their diet and  begin to feel good for the first time, possible for the first time in their life. This was not my experience. Bringing new meaning to, " one man's meat may be another's poison ".

 

Yup, that was my word all right because "unsatisfied" to me  means "deprived".

 

I eat heathfully and I venture way past produce and unprocessed meat.

 

I do not eat processed foods either and I was just offering some thoughts for you to widen your menu and satisfy your palate.

 

.....but you keep doing whatever you feel is best.

 

As always, anything I say is IMHO and best wishes to you!

[IrishHeart]

  On 7/13/2013 at 2:19 PM, Tbolt47 said:

Are you exaggerating to make a point ,or do you truly believe your MD and " big Pharm" are conspiring to keep you "ill " ? Perhaps its time for a new MD ?

 

"conspiring" is your word, not mine. 

 

I know you do not really know me very well or my experiences with doctors, otherwise you might know my sarcasm by now.

But I assure you, my feelings about the AMA are legit.

 

This is the not place for me to tell you that sordid saga, but suffice to say the majority of members reading this thread know  what I said

is not really much of an exaggeration.  They had similar experiences.

But, yes, I was very ill under the "care" of many doctors.

 

I do not need a new MD, thanks...I have a GREAT doctor now. And I am fine without medications.

I'm gluten free and thriving. 

[IrishHeart]

  On 7/13/2013 at 5:45 PM, dilettantesteph said:

I also don't see how eating unprocessed foods is depriving yourself.  Do you ever watch master cooking shows on T.V.?  Are they going on about opening cans and frozen boxes of food?  No, they go on about cooking with the freshest ingredients available. 

 

Edited to say:  I looked back and can't even see the post I was replying to.  I'm just agreeing with IrishHeart " veering waaaaay off topic".

 

Actually, . TBOLT said he only ate produce and unprocessed meats.

 

To me, that is extremely limited and I said perhaps he feels deprived. 

 

(he came back and said I used the word, not him) Yup, that is true.

 

I just answered his post and explained you can eat more than produce and unprocessed meat as a celiac and do some creative cooking.

 

(There was no mention of processed foods and cans.)

 

Hope this clears up the waaaay off topic sidetrack topic.

[kareng]

  On 7/13/2013 at 6:55 PM, IrishHeart said:

Actually, . TBOLT said he only ate produce and unprocessed meats.

 

To me, that is extremely limited and I said perhaps he feels deprived. 

 

(he came back and said I used the word, not him) Yup, that is true.

 

I just answered his post and explained you can eat more than produce and unprocessed meat as a celiac and do some creative cooking.

 

(There was no mention of processed foods and cans.)

 

Hope this clears up the waaaay off topic sidetrack topic.

 

 

Some of these posters may be a bit like my dad - it doesn't matter how much instructions you give them - they just can't cook.  Eating more than just boring, plain food (when you can't eat at nice restaurants all the time) is something they aren't capable of if they must cook it.  So, I suppose, for those people, I can see how Celiac really limits what they are able to eat. 

[IrishHeart]

  On 7/13/2013 at 8:37 PM, kareng said:

Some of these posters may be a bit like my dad - it doesn't matter how much instructions you give them - they just can't cook.  Eating more than just boring, plain food (when you can't eat at nice restaurants all the time) is something they aren't capable of if they must cook it.  So, I suppose, for those people, I can see how Celiac really limits what they are able to eat. 

 

I took his post to mean he ate those things because those were the only foods he felt were safe: produce and unprocessed meats.

 

I was not commenting on his ability or inability to cook. 

 

If it is a "cooking thing", well, there's no time like the present to learn how to cook. It's not rocket science. Tons of easy peasy recipes for

simple, good meals. All healthy, all gluten-free, all natural.

 

And the ladies love a man who can cook. whoo baby.

[kareng]

  On 7/13/2013 at 2:02 PM, Tbolt47 said:

" I said I was not satisfied eating produce and unprocessed meat.

  

  On 7/13/2013 at 2:22 PM, Lawrence said:

. s. We won't life forever so if something comes out then live a little and try it.

I figured these two people don't know how to cook because they seem to believe that gluten-free food is only produce and meat or not enjoying life.

They seemed smart enough to know that doesn't have to be true, so I figured they may not be able to cook. Because gluten-free food is more than boring, unseasoned food and can be quite delicious and even " normal".

[Lawrence]

  On 7/13/2013 at 9:51 PM, kareng said:

 

"I figured these two people don't know how to cook because they seem to believe that gluten-free food is only produce and meat or not enjoying life.

They seemed smart enough to know that doesn't have to be true, so I figured they may not be able to cook. Because gluten-free food is more than boring, unseasoned food and can be quite delicious and even " normal"."

 

 

 @kareng,

 

 Actually to some extent I cannot cook because of my situation. I'm not living in NY anymore. I'm living in South Korea without an option to exit. My wife is a citizen and living here has its pros and cons. You can't just go into the store and find gluten-free food like back in the States. I've learned to read enough Korean to be able to figure out what is safe and what is not but if I go out to eat it is very difficult. Nobody has Celiac disease here or at least no one is diagnosed with it that is Korean. I'm living away from my wife because of where the government put me to teach English. I only have one burner and ovens in Korea are practically non existent. I could order from iherb but I haven't yet. In April 2012 I was really overweight, now I am well within my weight range, slimmer than I ever thought I would be. The gluten-free processed foods are full of fat and sugar, so are the gluten processed foods but at least they taste better. I'm not saying that all gluten-free processed food is tasteless but I would rather have the real deal over the gluten-free food the majority of the time, especially because gluten-free food is so expensive. Here I eat healthy food but I would really like to be able to just go out and eat something without having to explain something in Korean that they don't understand. Think back just a few years ago when you explained Celiac disease in English to an English speaker and the odd looks and questions, these people aren't that different but they just tell me to be careful and to check. Luckily, I am still able to eat well over here but it is a pain in the butt to have this disease.

 

  I know that pills and vaccines have there side effects but I hope one day that there is some type of cure or aid for this problem. Even if we are limited to only a certain amount of gluten each day. gluten-free food is not that healthy if it is processed and the governments of the world that have citizens with high rates of Celiac disease need to look at what is in the environment. These days people are allergic to everything. It is getting to be disturbing that many people are allergic to everything and the high rates of Autism, Down syndrome, and other diseases that are allergens or auto immune. 

[Tbolt47]

  On 7/13/2013 at 8:37 PM, kareng said:

Some of these posters may be a bit like my dad - it doesn't matter how much instructions you give them - they just can't cook.  Eating more than just boring, plain food (when you can't eat at nice restaurants all the time) is something they aren't capable of if they must cook it.  So, I suppose, for those people, I can see how Celiac really limits what they are able to eat. 

Who cooks meat?, you eat it raw ,right after foraging for your produce. Are you saying  you still live with your Dad ? Keeping on topic, There is a drug or do you prefe r" medication ", for people who jump to conclusions. I would have supplied a link but I did not want to jump to any conclusion

[GottaSki]

  On 7/14/2013 at 12:50 AM, Tbolt47 said:

Who cooks meat?, you eat it raw ,right after foraging for your produce. Are you saying  you still live with your Dad ? Keeping on topic, There is a drug or do you prefe r" medication ", for people who jump to conclusions. I would have supplied a link but I did not want to jump to any conclusion

 

Wow.

 

Really.

 

This thread has strayed very far from the original post -- should someone wander in -- this is not the normal discourse found in this forum.

 

Shall we call it done?

[psawyer]

  On 7/14/2013 at 1:37 AM, GottaSki said:

Shall we call it done?

Yes, we are done.