Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eating Gluten Free Makes Me Starving!


taynichaf

Recommended Posts

pricklypear1971 Community Regular

And btw, I will get those things that you say, once I get a job. Thanks so much :)

In the interim, eat proteins and fibers and vegetables. A little fruit. Try to stay away from sugar - and if you do coat it in fat (full fat ice cream).

Eat BEFORE you get hungry. Don't skip meals, always include a protein with every snack and meal.

That's how most handle hypoglycemia. You'll notice when you get it right.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fire Fairy Enthusiast

not sure anyone said this but...nuts and seeds! Protein Fat and Fiber! Larabars might help too, give you the idea you are eating a candy bar but it's all healthy and gluten-free.

eers03 Explorer

I'm not sure if I have this right but...

 

You think you're celiac but don't have an actual diagnosis?

 

You're currently having weight gain issues and are eating gluten.

 

You lose lots of weight when you eat gluten free.

 

You're anxious and don't want to talk to your mom about it.

 

1. If YOU think you're reacting to gluten and are currently experiencing weight gain issues, stop eating gluten.  The anxiety should start to solve itself over time.  Doesn't happen overnight.  Its a process.

 

2.  You are young and should experience intestinal healing if you have villous atrophy.  This will help you get the nutrients your body needs.  The long term effects of being gluten free are AMAZING if you are allergic to gluten.

 

3.  Address the weight loss bridge when you arrive to it.  My previous post is just one of many examples available for what you can do to cram calories and protein into your diet if you need them.  When I went gluten-free at first I lost LOADS of weight and had to pack calories for awhile to get it back up.  

 

4.  Don't let this process consume you and define you or your anxiety will continue.  Live every day that God gives you.  Don't ruin it on "Oh my God I accidentally let a piece of bread touch my finger".  If it happens, wash your hand and move on.  Don't sweat the small stuff.  You're going to have trial and error, slip-ups, we're human, do what you can do.

 

Unless you are having some seriously major issues you really don't need a bunch of doctors, tests, and appointments to help yourself.  However, over the long term, if you are celiac having the actual diagnosis is helpful to have for various reasons as you go to college or move into the workforce.  For example, if you're traveling for work, they may make extra accommodations for your travel dining if you have an allergy.  It's also important for your family physician to know if you are celiac over the long term because it could affect how aggressive he is in treating certain symptoms.

 

So...  If you're celiac, at some point, somehow, your doctor needs to know.  If your parents have insurance and if you are still covered on it make up an excuse to go to the doc for your sinuses or whatever and while you are there insist on a celiac blood test.  If you just go gluten free, start doing fine, and want the diagnosis in the future you'll have to do the gluten challenge and be forced to eat it in order to make the test work accurately.  It can't detect it if its not in your body.  And by then you could have healed enough that your body lets its guard down and you have a major reaction to it, which would not be fun.

 

My two cents...

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748

    CeceNV
    Newest Member
    CeceNV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.