Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Celiac Effect Every Part Of Your Body

dek38

Recommended Posts

dek38 Rookie
dek38
Posted

I ask this because whatever is wrong with me is certainly systematic.  

From head to toe things have been going wrong.

Some examples :-

White foamy saliva

teeth yellowing, and gums receding

Back and shoulder pain.

cold hands.

Upper stomach pain

Strange BM's.

Urination off colour, foamy.

Easy Bruising.

Fatigue.

Tight calves, leg pain.

Dry Burning feet.

Facial/Body hair is not growing as fast as usual.

Thinning hair.

Sinus and ear problems.

 

Plus many more

Can anyone relate?

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


surviormom Rookie
surviormom
Posted

I am no expert.  I have spent a year learning all of this, but I have to say, get tested.  Now.  I gave up gluten before getting a full celiac test so now I cannot get a good celiac test.  Get it done before you stop eating gluten.  Just to make sure you know what it is or isn't.  But you sound like you are.  Problems all your life and you thought it was the norm but now as an adult you realize its not, and its worse and everything happening at once is too much?  Been there, in fact going through some right now.  Get tested.

dek38 Rookie
dek38
Posted
  • Author

Thanks for the reply I have been blood tested for Celiac which was negative, however my GI says the bloodtest is not always accurate and want to do a biopsy via endoscopy.

Lots of my symptoms have happened intermittently through my life, but suddenly bang everything starts to go wrong.

I have always had weird low blood sugar symptoms too. 

notme Experienced
notme
Posted

from a healing point of view, yes, i have had a myriad of problems clear up since going gluten free - migraines, body aches, joint pain, skin, hair and nail problems, etc. - even problems i didn't know could be related to celiac like vertigo.  also, not so nervous all the time.  

surviormom Rookie
surviormom
Posted

Sounds familiar.  You are on the right track.

dek38 Rookie
dek38
Posted
  • Author

I have decided even if my biopsy is Negative, I will try a Gluten free diet.  I am currently eating plenty of Gluten, so that it may show in my biopsy.

taynichaf Contributor
taynichaf
Posted

I ask this because whatever is wrong with me is certainly systematic.  

From head to toe things have been going wrong.

Some examples :-

White foamy saliva

teeth yellowing, and gums receding

Back and shoulder pain.

cold hands.

Upper stomach pain

Strange BM's.

Urination off colour, foamy.

Easy Bruising.

Fatigue.

Tight calves, leg pain.

Dry Burning feet.

Facial/Body hair is not growing as fast as usual.

Thinning hair.

Sinus and ear problems.

 

Plus many more

Can anyone relate?

Yes.

 

I have:

weight gain

iron deficiency anemia

depression

anxiety

fertility issues

fatigue

muscle fatigue/aches

irregular BM

GERD

stomach pains

bloating

and a whole lot of other things.. It effects EVERYTHING IMO

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dek38 Rookie
dek38
Posted
  • Author

Yes.

 

I have:

weight gain

iron deficiency anemia

depression

anxiety

fertility issues

fatigue

muscle fatigue/aches

irregular BM

GERD

stomach pains

bloating

and a whole lot of other things.. It effects EVERYTHING IMO

Does the GERD effect your saliva?  Mine is always white and thick (Foamy, Frothy).  Also how was the GERD diagnosed?

Daytimevampire Newbie
Daytimevampire
Posted

I have an ungodly list of problems as well not sure if its all celiac related or not, due to the fact that I have refractory celiac and do not get any relief from a gluten free diet. Currently on prednisone and 6mp (chemo) still no relief! :-/ can be very frustrating don't give up, you're not alone!! :-)

GFinDC Veteran
GFinDC
Posted

Hi Dek,

 

Yes, celiac and mal-absorption can affect the whole body. Other things can also of  course.

 

Have you had your blood sugar tested?  You can get an AIC test done to see how it has averaged over the past 3 months.  Might be a good one to get done, it's just a simple blood test.  At first I was going to suggest werewolf, (due to the foamy saliva), but you have other symptoms that point to something else.  You can get a diabetes test kit for not much money, and an AIC test at a pharmacy and do them yourself.

 

You may also want to get your thyroid function tested.  It is not a bad idea to rule out other things, and not just assume celiac disease or NCGI.  It  is also very possible to have multiple health issues, not just one.  Or a variety of common thing s should be tested for.  Diabetes and thyroid conditions are both related to celiac disease.

dek38 Rookie
dek38
Posted
  • Author

I have an ungodly list of problems as well not sure if its all celiac related or not, due to the fact that I have refractory celiac and do not get any relief from a gluten free diet. Currently on prednisone and 6mp (chemo) still no relief! :-/ can be very frustrating don't give up, you're not alone!! :-)

I will not give up until I find what is up with me.  Reading other peoples stories make me realize I am not on my own.

dek38 Rookie
dek38
Posted
  • Author

Hi Dek,

 

Yes, celiac and mal-absorption can affect the whole body. Other things can also of  course.

 

Have you had your blood sugar tested?  You can get an AIC test done to see how it has averaged over the past 3 months.  Might be a good one to get done, it's just a simple blood test.  At first I was going to suggest werewolf, (due to the foamy saliva), but you have other symptoms that point to something else.  You can get a diabetes test kit for not much money, and an AIC test at a pharmacy and do them yourself.

 

You may also want to get your thyroid function tested.  It is not a bad idea to rule out other things, and not just assume celiac disease or NCGI.  It  is also very possible to have multiple health issues, not just one.  Or a variety of common thing s should be tested for.  Diabetes and thyroid conditions are both related to celiac disease.

I have been tested four times for Diabetes, and twice for Thyroid problems - everything was ok.  My symptoms have been so wide and varied that I think it could be possibly more than one thing.

My GI is getting my normal doc to run some more bloods and a stool sample, not sure what will show up, nothing as yet.

I had a CT of my Abdomen and pelvis which found a possible mass in my Colon, so I had a Colonoscopy which was clear (It must of been fecal matter that showed up on the CT).

Obviously cancer as been a worry, but my symptoms seem too varied for that (I Hope).

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

were you able to get the full blood panel including DGPs?  

DGP iga/igg

ttg iga/igg

total iga serum

EMA

 

the only one I was positive on was the DGP igG, and everything else was negative.  if I would've only be screened with the ttg iga, nothing would have shown up

 

I can relate to quite a few of those things.  I was sure I was going to be anemic because of easy bruising, but instead I was deficient in Vitamin K, and my iron was in the normal range.  

Open Original Shared Link

 

I was also low in potassium, so upping that has helped my leg cramping.  I drink Vita Coco water since my GI recommended that coconut water is a good, low-calorie source of potassium.

 

I bolded the ones I've had problems with

 

 

I ask this because whatever is wrong with me is certainly systematic.  

From head to toe things have been going wrong.

Some examples :-

White foamy saliva (noticed a decrease in my saliva going gluten-free)

teeth yellowing, and gums receding

Back and shoulder pain.

cold hands.  (i don't know how many times I've been told my hands are cold)

Upper stomach pain

Strange BM's.

Urination off colour, foamy.

Easy Bruising. (get checked for Vitamin K deficiency)

Fatigue.

Tight calves, leg pain.

Dry Burning feet.

Facial/Body hair is not growing as fast as usual.

Thinning hair.

Sinus and ear problems.

 

Plus many more

Can anyone relate?

1desperateladysaved Proficient
1desperateladysaved
Posted

I believe it only effects the tissues that need nutrients and oxygen, :D    I recall my comment to my chiropractor just over a year ago.  "Every tissue in my body feels irritated."

 

Just think of it this way, if you villi are damaged you can't absorb nutrients.  If you are not getting enough nutrients, your cells don't eat very well.  This is malnutrition.  When you don't have enough to eat, anything and everything can go wrong.

 

Diana

Brandiwine Contributor
Brandiwine
Posted

I really don't think any symptom could be marked off the list for celiac because when your body isn't absorbing the vitamins and minerals it needs it can cause all sorts if problem with all sorts of symptoms.

taynichaf Contributor
taynichaf
Posted

I will not give up until I find what is up with me.  Reading other peoples stories make me realize I am not on my own.

GOOD! Just repair yourself... these last two months for me have been helllll... because I keep finding new things that could be wrong with me, and I cant stop eating gluten until I get a full panel done... I think its almost over though... YAY!

 

Anyways, good luck :)

momma bee Rookie
momma bee
Posted

Some of your symptoms could be related to your kidney function to so might want to check on that.if it hasnt been checked. Especially the foamy urine but some of the others are well! Might be unrelated but worth checking!

dek38 Rookie
dek38
Posted
  • Author

were you able to get the full blood panel including DGPs?  

DGP iga/igg

ttg iga/igg

total iga serum

EMA

 

the only one I was positive on was the DGP igG, and everything else was negative.  if I would've only be screened with the ttg iga, nothing would have shown up

 

I can relate to quite a few of those things.  I was sure I was going to be anemic because of easy bruising, but instead I was deficient in Vitamin K, and my iron was in the normal range.  

Open Original Shared Link

 

I was also low in potassium, so upping that has helped my leg cramping.  I drink Vita Coco water since my GI recommended that coconut water is a good, low-calorie source of potassium.

 

I bolded the ones I've had problems with

I am not sure what Celiac panel they did on me.  It just said celiac on my blood test sheet.  The doctors dont tell you anything.  It is so frustating.

dek38 Rookie
dek38
Posted
  • Author

Some of your symptoms could be related to your kidney function to so might want to check on that.if it hasnt been checked. Especially the foamy urine but some of the others are well! Might be unrelated but worth checking!

I have had several Kidney function tests and the all came back normal.  I keep telling my doc about my Foamy urine, and they do urine tests which are always clear.

I really dont know what is causing it, but it is not normal.  I know I am not dehydrated because I drink lots of water.

momma bee Rookie
momma bee
Posted

That is good then! Rules that out! Good.luck with the figuring it out! Always amazing how many things need to rule out!

CaliSparrow Collaborator
CaliSparrow
Posted

This is the most extensive symptoms list I've run across:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless...
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system?
    3. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once...
    4. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note:...
    5. Scott Adams
      0

      Homemade Gluten-Free Egg Drop Soup

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,844
    • Most Online (within 30 mins)
      7,748
    donnawebb265
    Newest Member
    donnawebb265
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.